Evaluation of the Validity and Reliability of the Turkish Translation of the Emphasis-10 Questionnaire In Patients with Pulmonary Hypertension

Odevoglu, Pinar; Demir, Rengin; Okumuş, Gülfer; Küçükoğlu, Serdar; Aslan, Gökşen Kuran

doi:10.1183/13993003.congress-2018.pa3113

Cited by 4 publications

(5 citation statements)

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“…The emPHasis-10 score was found to correlate strongly with measures of HRQoL, breathlessness and psychological morbidity and has high test-retest and internal consistency (7). In addition, the emPHasis-10 questionnaire has been translated into a number of other languages (9,10). A previous single-centre study of emPHasis-10 in patients with PAH (predominantly congenital heart disease-associated) and chronic thrombo-embolic PH demonstrated prognostic significance and a correlation with WHO functional class (FC) (11).…”

Section: Introductionmentioning

confidence: 99%

EmPHasis-10 health-related quality of life score predicts outcomes in patients with idiopathic and connective tissue disease-associated pulmonary arterial hypertension: results from a UK multicentre study

et al. 2020

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Health-related quality of life (HRQoL) scores assess symptom burden in pulmonary arterial hypertension (PAH) but data regarding their role in prognostication and risk stratification are limited. We assessed these relationships using the emPHasis-10 HRQoL measure.1745 patients with idiopathic or connective tissue disease-associated PAH who had completed emPHasis-10 questionnaires between 2014–17 at 6 UK referral centres were identified. Correlations with exercise capacity and WHO functional class (FC) were assessed, and exploratory risk stratification thresholds were tested.Moderate correlations were seen between emPHasis-10 scores and 6-minute walk distance (r=−0.546), incremental shuttle walking distance (r=−0.504) and WHO FC (r=0.497; p all <0.0001). Distribution of emPHasis-10 differed significantly between each WHO FC (p all <0.0001). At multivariate analysis, emPHasis-10, but not WHO FC, was an independent predictor of mortality. In a risk stratification approach, scores of 0–16, 17–33 and 34–50 identified incident patients with one-year mortality of 5%, 10% and 23%, respectively. Survival of patients in WHO FC III could be further stratified using an emPHasis-10 score ≥34 (p<0.01). At follow-up, patients with improved emPHasis-10 had improved exercise capacity (p<0.0001), and patients who transitioned risk groups demonstrated similar survival to patients originally in those risk groups.The emPHasis-10 score is an independent prognostic marker in patients with idiopathic or connective tissue disease-associated PAH. It has utility in risk stratification in addition to currently used parameters. Improvement in emPHasis-10 score is associated with improved exercise capacity.

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Section: Introductionmentioning

confidence: 99%

EmPHasis-10 health-related quality of life score predicts outcomes in patients with idiopathic and connective tissue disease-associated pulmonary arterial hypertension: results from a UK multicentre study

et al. 2020

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“…It mainly evaluates the impact of breathlessness, lack of energy, and the social burden of PH. It has been translated and validated in Turkish with an internal consistency of 0.97 (Odevoglu et al, 2019).…”

Section: Methodsmentioning

confidence: 99%

Caregiver Burden in Patients with Pulmonary Hypertension

et al. 2020

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Both quality of life (QoL) and caregiver burden are essential constructs in patients with pulmonary hypertension (PH) however; their relationship has never been investigated before. The aim of this study was to evaluate if there was any relationship between patients’ QoL and caregiver burden. Patients with PH and their caregivers were included. Patients’ age, sex, World Health Organization (WHO) functional class, systolic pulmonary arterial pressure (sPAP), and six-minute walk distances (6MWD) were recorded. Patients’ QoL was assessed using emPHasis-10 and caregiver burden with the Zarit Caregiver Burden Scale. 72 patient-caregiver dyads were included. Caregiver burden was significantly correlated with the QoL( r = 0.39 p < .003), but was not correlated with other clinical parameters. Patients’ QoL showed significant negative correlation with the 6MWD( r = −0.46 p < .005). There is a moderate correlation between QoL and caregiver burden. Clinical parameters influence QoL, but they do not affect caregiver burden.

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“…8 Although emPHasis-10 is a relatively new questionnaire, it has already been translated into several languages such as Dutch, Spanish, French, German, Italian, and Turkish, 9,10 and its psychometric properties have been assessed in some languages. 10,11 The expanded use of the emPHasis-10 is expected worldwide because it is easy to use, and can be used for non-profit research/medical purposes after a simple application process. In Japan, we conducted a linguistic validation of a Japanese-translated version of the emPHasis-10.…”

Section: Methodsmentioning

confidence: 99%

“…7 Furthermore, the Japanese emPHasis-10 was equally capable of discriminating the levels of exertional intolerance, similar to the English and Turkish versions. 7,10 Meanwhile, the correlations between the Japanese emPHasis-10 and HADS and D-12 varied from the original version. The Japanese version had weaker correlations with those measurements than the English version (HADS, 0.77; D-12, 0.74).…”

Section: Data Availabilitymentioning

confidence: 99%

Psychometric Validation of a Japanese Version of the emPHasis-10 Questionnaire, a Patient-Reported Outcome Measure for Pulmonary Hypertension　― Multicenter Study in Japan ―

et al. 2020

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Background: The emPHasis-10 questionnaire is a disease-specific patient-reported outcome assessment of quality of life (QOL) in pulmonary hypertension (PH). The aim of this study was to psychometrically validate a linguistically validated Japanese version of the emPHasis-10. Methods and Results: Japanese patients with PH (age ≥18 years) and no change in functional status, or initiation or change in PH-specific treatment during the past 3 months were recruited from 5 institutions from August 2018 to July 2019. A set of questionnaires was administered twice. The validity and reliability of the emPHasis-10 were assessed using the data of 76 patients. On concurrent validity analysis, a moderate-to-strong correlation was seen with the total score of all 5 external criteria (the Minnesota Living with Heart Failure modified for PH [MLHFQ-PH], Hospital Anxiety and Depression Scale, Dyspnea-12 questionnaire, European Quality of Life-5 Dimensions questionnaire [EQ-5D], and 6-min walk test), with a notably strong correlation with the MLHFQ-PH (0.77) and EQ-5D (–0.64). On known-group validity, a linear increasing trend of the emPHasis-10 score was observed across 4 World Health Organization functional status groups (Jonckheere-Terpstra test, 1-sided, P<0.001). Intraclass correlation coefficient for test-retest reliability was 0.86, and the Cronbach’s α for internal consistency was 0.89. Conclusions: The Japanese emPHasis-10 questionnaire is psychometrically valid to evaluate QOL in Japanese PH patients in a clinical setting.

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Evaluation of the Validity and Reliability of the Turkish Translation of the Emphasis-10 Questionnaire In Patients with Pulmonary Hypertension

Cited by 4 publications

References 0 publications

EmPHasis-10 health-related quality of life score predicts outcomes in patients with idiopathic and connective tissue disease-associated pulmonary arterial hypertension: results from a UK multicentre study

EmPHasis-10 health-related quality of life score predicts outcomes in patients with idiopathic and connective tissue disease-associated pulmonary arterial hypertension: results from a UK multicentre study

Caregiver Burden in Patients with Pulmonary Hypertension

Psychometric Validation of a Japanese Version of the emPHasis-10 Questionnaire, a Patient-Reported Outcome Measure for Pulmonary Hypertension　― Multicenter Study in Japan ―

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Evaluation of the Validity and Reliability of the Turkish Translation of the Emphasis-10 Questionnaire In Patients with Pulmonary Hypertension

Cited by 4 publications

References 0 publications

EmPHasis-10 health-related quality of life score predicts outcomes in patients with idiopathic and connective tissue disease-associated pulmonary arterial hypertension: results from a UK multicentre study

EmPHasis-10 health-related quality of life score predicts outcomes in patients with idiopathic and connective tissue disease-associated pulmonary arterial hypertension: results from a UK multicentre study

Caregiver Burden in Patients with Pulmonary Hypertension

Psychometric Validation of a Japanese Version of the emPHasis-10 Questionnaire, a Patient-Reported Outcome Measure for Pulmonary Hypertension ― Multicenter Study in Japan ―

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Psychometric Validation of a Japanese Version of the emPHasis-10 Questionnaire, a Patient-Reported Outcome Measure for Pulmonary Hypertension　― Multicenter Study in Japan ―