Everyday life in breast cancer survivors experiencing challenges: A qualitative study

Jakobsen, Klara; Magnus, Eva; Lundgren, Steinar; Reidunsdatter, Randi Johansen

doi:10.1080/11038128.2017.1335777

Cited by 41 publications

(62 citation statements)

References 34 publications

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“…Moreover, six months after treatment seems to be a critical period for patients within the lower clusters of all the above-mentioned functioning domains. A functioning decrease from three to six months follow-up could be due to an experience of being “left alone” as this is the first period in the treatment course without any planned contact with health professionals [ 28 , 29 ].…”

Section: Discussionmentioning

confidence: 99%

Diversity in changes of HRQoL over a 1-year period after radiotherapy in Norwegian breast cancer patients: results of cluster analyses

et al. 2019

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Purpose The diversity in long-term changes in health-related quality of life (HRQoL) among breast cancer (BC) survivors is poorly understood. The aim of this study was to identify clusters of trajectories (subgroups of patients with similar patterns of changes) of selected HRQoL domains over a 1-year period after radiotherapy (RT) in BC patients. Methods The group consisted of 250 BC patients referred for postoperative RT. Global quality of life (QoL), functions, and cancer-specific symptoms were assessed using the European Organisation for Research and Treatment of Cancer (EORTC) core Quality of Life Questionnaire (QLQ-C30) before starting RT, at completion of RT and 3, 6, and 12 months after RT. A hierarchical cluster analysis was used to identify possible trajectories of HRQoL domains. Results Three distinct types of clusters of trajectories were identified for all outcome variables: Type 1 clusters encompassing the rather time-stable high-global QoL cluster, high-functioning clusters, and low-symptom clusters (44–98% of patients), Type 2 clusters with medium levels of HRQoL domains (8–49%), Type 3 clusters encompassing low-global QoL, low-functioning, and high-symptoms clusters (2–51%). Conclusions Our results demonstrated a noticeable heterogeneity of changes in HRQoL domains after BC treatment. The findings support the importance of an accurate patient-reported HRQoL assessment as a routine element of BC survivors’ care. The pre-RT assessment of HRQoL alone allows to predict the course of HRQoL changes over the 1-year period after RT and the risk of “falling into” low functioning clusters. Electronic supplementary material The online version of this article (10.1007/s11136-019-02127-7) contains supplementary material, which is available to authorized users.

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Section: Discussionmentioning

confidence: 99%

Diversity in changes of HRQoL over a 1-year period after radiotherapy in Norwegian breast cancer patients: results of cluster analyses

et al. 2019

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“…In the context of RTW after cancer and according to Antonovsky's salutogenic model of health, the practice of searching for meaningful activities may be regarded as a coping strategy representing an important valuative-attitudinal GRR [15]. Engaging in meaningful activities in general may be a precondition for perceived good mental health [42]. In addition, participants prioritised engaging in social relations (interpersonal GRRs), which helped them feel better.…”

Section: Individual Grrsmentioning

confidence: 99%

“…b Participants who were re-interviewed. The participants' ages at the time of the interviews were: 42,45,48,48,50,52,53,59 (to protect participants' identity, the ages are not mentioned in the same sequence as the interviews).…”

Section: Danielmentioning

confidence: 99%

From shaky grounds to solid foundations: A salutogenic perspective on return to work after cancer

Brusletto

Ihlebæk

Mjøsund

et al. 2019

Scandinavian Journal of Occupational Therapy

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Background: Almost a third of employed individuals of working age fall out of work after cancer treatment. Aim: To explore cancer survivors' successful return to work, focusing on assets and resources utilised to resolve cancer-and work-related obstacles to achieve long-term employment. Methods: We interviewed eight cancer survivors who had remained at work for at least 3 years after cancer treatment. We performed interpretative phenomenological analysis and applied Antonovsky's salutogenic model of health as a framework. Results: The participants experienced uncertainty regarding cancer recurrence, impairments, and long-lasting effects on work ability. They utilised a wide range of resistance resources at personal, interpersonal, and social levels. Their determination to return to work was generally strong, but the time needed to find sustainable work and strategies to return to work varied. All participants prioritised activities that energised them and adapted actively to their new situation. When unsure about outcomes, they focused on the best alternative and controlled fear cognitively. Conclusions/Significance: Finding meaningful activities, testing actual work ability, and focusing on the best possible outcome seemed important to remain in work after cancer. It may be helpful to identify available resources and utilise them to resolve tensions resulting from cancer and cancer treatment.

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“…Feeding (Keung-Lee, Fai- Chan, & Wong, 2005), and the need for independence (n = 1), and pain management (n = 1), (Llyod & Coggles, 1988), were discussed to highlight the areas of practice for occupational therapists in cancer care. Activity of daily living intervention (n = 1), (Neo, Fettes, Gao, Hogginson, & Maddocks, 2017), leisure prescription (n = 1), (Ship, McKinstry, & Pearson, 2015) and occupational engagement (n = 3) featured in similarly small numbers (Anderson-Sviden, Tham, & Boreli, 2010;Jakobsen, Magnus, Lundgren, & Reidunsdatter, 2017;La Cour, Josephsson, Tishelman, & Nygard, 2007). Overall, a wide diversity of roles for the occupational therapist across a number of cancer-related settings were described.…”

Section: The Occupational Therapy Rolementioning

confidence: 99%

Cancer care and occupational therapy: A scoping review

Wallis

Stanley

2020

Aus Occup Therapy J

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Introduction Cancer can disrupt participation in everyday activities, suggesting a place for occupational therapy; however, there is a need to articulate the nature, scope and available evidence supporting the occupational therapy role within cancer care. In this scoping review, we identify the breadth of practice and evidence for occupational therapy in cancer care, across all stages of the disease trajectory (diagnosis to palliation/survivorship) throughout the lifespan. Methods Five electronic databases were searched in June 2018, for English language articles. Key words were: cancer care, OR oncolog*, OR oncologic care, OR neoplasms, OR cancer survivors, OR terminal cancer, OR cancer rehabilitation, AND occupational therap*. No date restrictions were imposed. Included were: all styles of literature including grey literature, all types of cancers and all age brackets. There were no restrictions on place of origin of papers. Following the Arksey and O’Malley (2006; International Journal of Social Research Methodology, 8: 19–32) framework for scoping reviews, the first author screened titles and abstracts, and all three authors reviewed sets of the included articles. Conflicts were discussed until consensus was reached. Results After evaluating 305 titles and abstracts and 111 full‐text articles, 89 papers were retained. Articles included research studies (n = 43), reviews (n = 15), grey literature (n = 16), practice analyses (n = 14) and an editorial (n = 1). The occupational therapy roles described were diverse, but largely descriptive in nature, with little evidence of outcomes from treatment. Furthermore, the majority of papers addressed adult populations, with few considering children, adolescents or young adults. Most papers focused on specific stages of the disease, and none addressed the disease along its full trajectory. Conclusion Despite identifying a diverse range of occupational therapy roles in cancer care throughout the disease trajectory and across the lifespan, the need for professional discourse and research within our profession was highlighted. This was particularly evident for adolescents and young adults with cancer.

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Everyday life in breast cancer survivors experiencing challenges: A qualitative study

Cited by 41 publications

References 34 publications

Diversity in changes of HRQoL over a 1-year period after radiotherapy in Norwegian breast cancer patients: results of cluster analyses

Diversity in changes of HRQoL over a 1-year period after radiotherapy in Norwegian breast cancer patients: results of cluster analyses

From shaky grounds to solid foundations: A salutogenic perspective on return to work after cancer

Cancer care and occupational therapy: A scoping review

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