Evidence of increasing public participation in advance care planning: a comparison of polls in Alberta between 2007 and 2013

Simon, Jessica; Ghosh, Sunita; Heyland, Daren K.; Cooke, Tim; Holroyd‐Leduc, Jayna; Wasylenko, Eric; Howlett, Jonathan G.; Fassbender, Konrad

doi:10.1136/bmjspcare-2015-000919

Cited by 15 publications

(5 citation statements)

References 18 publications

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“…1 The concept which originated from developed countries has been implemented in these high-income countries to support patients' end-of-life care. [2][3][4][5][6][7][8] ACP aims to improve the quality of end-of-life care by enabling effective communication to ensure that care is concordant with an individual's wishes particularly in the event when he or she loses the capacity to decide. 9 10 Well-implemented ACP policies may benefit patients (as they may experience a higher sense of autonomy and satisfaction with their care), their families (as they may experience less emotional stress, depression, burden and better quality of life) and the healthcare system (which may see a reduction in unnecessary hospitalisations and healthcare expenditures).…”

Section: Introductionmentioning

confidence: 99%

“…Advance care planning (ACP) is defined as ‘a process that aids a person regardless of their age and health status to understand and share their personal values, life goals and preferences toward future medical care’ 1. The concept which originated from developed countries has been implemented in these high-income countries to support patients’ end-of-life care 2–8. ACP aims to improve the quality of end-of-life care by enabling effective communication to ensure that care is concordant with an individual’s wishes particularly in the event when he or she loses the capacity to decide 9 10.…”

Section: Introductionmentioning

confidence: 99%

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Knowledge, attitude and practice of community-dwelling adults regarding advance care planning in Malaysia: a cross-sectional study

et al. 2022

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ObjectivesThis study aimed to assess the knowledge, attitude and practice (KAP) among community-dwelling adults in Malaysia regarding advance care planning (ACP), and its associated factors.DesignThis cross-sectional study was conducted from July–September 2018.SettingThis study was conducted at the University Malaya Medical Centre, Kuala Lumpur, Malaysia.ParticipantsWe recruited community-dwelling adults (ambulatory care patients or their accompanying persons) who were ≥21 years old and able to understand English or Malay. A 1:10 systematic sampling procedure was used. Excluded were community-dwelling adults with intellectual disabilities or non-Malaysian accompanying persons. A trained researcher administered the validated English or Malay Advance Care Planning Questionnaire at baseline and 2 weeks later.Primary and secondary outcome measuresThe primary outcome was the KAP regarding ACP. The secondary outcomes were factors associated with KAP.ResultsA total of 385/393 community-dwelling adults agreed to participate (response rate 98%). Only 3.1% of the community-dwelling adults have heard about ACP and 85.7% of them felt that discussion on ACP was necessary after explanation of the term. The desire to maintain their decision-making ability when seriously ill (94.9%) and reducing family burden (91.6%) were the main motivating factors for ACP. In contrast, resorting to fate (86.5%) and perceived healthy condition (77.0%) were the main reasons against ACP. Overall, 84.4% would consider discussing ACP in the future. Community-dwelling adults who were employed were less likely to know about ACP (OR=0.167, 95% CI 0.050 to 0.559, p=0.004) whereas those with comorbidities were more likely to favour ACP (OR=2.460, 95% CI 1.161 to 5.213, p=0.019). No factor was found to be associated with the practice of ACP.ConclusionsDespite the lack of awareness regarding ACP, majority of community-dwelling adults in Malaysia had a positive attitude towards ACP and were willing to engage in a discussion regarding ACP after the term ‘ACP’ has been explained to them.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Knowledge, attitude and practice of community-dwelling adults regarding advance care planning in Malaysia: a cross-sectional study

et al. 2022

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“…This includes a medical order framework, called Goals of Care Designations (GCD), for communicating a person’s goals and guiding the associated approach to his/her medical care. GCD replaced less nuanced medical orders such as “Do Not Resuscitate.” However, despite the provincial rollout of the policy and the healthcare system’s efforts to socialize it, to date public participation and awareness of ACP and GCD remains limited (only 27% of Albertans have heard of ACP) [6]. To catalyze new community engagement in ACP activities and awareness, the Advance Care Planning Collaborative Research and Innovation Opportunities research program (ACP CRIO) hosted two World Café events to learn from community members “How can we help Albertans learn about and participate in Advance Care Planning?”…”

Section: Introductionmentioning

confidence: 99%

How to increase public participation in advance care planning: findings from a World Café to elicit community group perspectives

et al. 2019

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Background In 2014, Alberta, Canada broke new ground in having the first provincial healthcare policy and procedure for advance care planning (ACP), the process of communicating and documenting a person’s future healthcare preferences. However, to date public participation and awareness of ACP remains limited. The aim of this initiative was to elicit community group perspectives on how to help people learn about and participate in ACP. Methods Targeted invitations were sent to over 300 community groups in Alberta (e.g. health/disease, seniors/retirement, social/service, legal, faith-based, funeral planning, financial, and others). Sixty-seven participants from 47 community groups attended a “World Café”. Participants moved between tables at fixed time intervals, and in small groups discussed three separate ACP-related questions. Written comments were captured by participants and facilitators. Each comment was coded according to Michie et al.’s Theoretical Domains Framework, and mapped to the Capability, Opportunity and Motivation behavior change system (COM-B) in order to identify candidate intervention strategies. Results Of 800 written comments, 76% mapped to the Opportunity: Physical COM-B component of behavior, reflecting a need for access to ACP resources. The most common intervention functions identified pertained to Education, Environmental Restructuring, Training, and Enablement. We synthesized the intervention functions and qualitative comments into eight recommendations for engaging people in ACP. These pertain to access to informational resources, group education and facilitation, health system processes, use of stories, marketing, integration into life events, inclusion of business partners, and harmonization of terminology. Conclusions There was broad support for the role of community groups in promoting ACP. Eight recommendations for engaging the public in ACP were generated and have been shared with stakeholders.

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“…The socioeconomic status of any society determines the degree of desire and ability of that society to actively participate in the health field. The socio-macroeconomic status of each country affects the ability of the government to attract public participation (34). In a study, Howard-Grabman et al introduced supportive and financial policies as key facilitators in healthcare participation (35).…”

Section: Discussionmentioning

confidence: 99%

Designing a Framework for Attracting Public Participation in the Iranian Health System: A Comparative and Mixed-Method Study

et al. 2022

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Background: Public participation strengthens the public presence in healthcare. Objectives: This study aimed to determine the dimensions of attracting public participation in the Iranian health system. Methods: A mixed-method research was conducted from May 2019 to July 2020. A comparative study (using the documents of five countries that were selected purposefully), tool design and validation (through holding two expert panels with the participation of 26 people who were selected based on the inclusion criteria), and finalization of the participation framework (field test with the participation of 283 recruited people based on the inclusion criteria) were performed. Exploratory and confirmatory factor analyses (CFA) were applied using SPSS-v26 and AMOS-v26. Results: Forty-eight components on five factors, including citizenship rights and customer orientation, socioeconomic factors, communication with people and non-governmental organizations, research and technology, and managerial and organizational factors with impact factors of 0.967, 0.951, 0.957, 0.944, and 0.955 were loaded, respectively. The CFA denoted the approval of the framework with the five mentioned factors. Conclusions: In this study, a framework was developed and approved during different stages. Using this framework, healthcare policymakers can adopt the best strategies for engaging public participation and improving the effectiveness of decisions through evidence-informed policymaking.

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Evidence of increasing public participation in advance care planning: a comparison of polls in Alberta between 2007 and 2013

Cited by 15 publications

References 18 publications

Knowledge, attitude and practice of community-dwelling adults regarding advance care planning in Malaysia: a cross-sectional study

Knowledge, attitude and practice of community-dwelling adults regarding advance care planning in Malaysia: a cross-sectional study

How to increase public participation in advance care planning: findings from a World Café to elicit community group perspectives

Designing a Framework for Attracting Public Participation in the Iranian Health System: A Comparative and Mixed-Method Study

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