Evidence That School-Age Children Can Self-Report on Their Health

Riley, Anne W.

doi:10.1367/a03-178r.1

Cited by 489 publications

(364 citation statements)

References 49 publications

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“…Consistent with the notion that the meaning of children's answers to questions about their own health status changes as a function of their experiences and developmental levels (Korfmacher, 2003;Riley, 2004), recall and comprehension problems were dependant upon the child's age, with problems arising predominantly among children 10 years and younger. Children are not usually the best possible reporters for medical history information or the timing of past events (Riley, 2004), while parents' reports of medical conditions (Daly, Lindgren & Giebink, 1994;Pless & Pless, 1995) and use of health services by children (Canino et al, 2002) are reasonably accurate.…”

Section: Discussionmentioning

confidence: 62%

“…Children are not usually the best possible reporters for medical history information or the timing of past events (Riley, 2004), while parents' reports of medical conditions (Daly, Lindgren & Giebink, 1994;Pless & Pless, 1995) and use of health services by children (Canino et al, 2002) are reasonably accurate. The age dependency of recall and comprehension suggests that the dyad interview may be more helpful among younger children where limited recall and comprehension abilities preclude them from completing the questionnaire alone.…”

Section: Discussionmentioning

confidence: 99%

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A qualitative analysis of a dyad approach to health-related quality of life measurement in children with asthma

Ungar

Mirabelli

Cousins

et al. 2006

Social Science & Medicine

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The measurement of health-related quality of life (HRQOL) in children often relies on parents as proxy respondents. Yet, several studies have shown poor to moderate correlations between parent and child responses, questioning the validity of the parent as proxy. This qualitative study examined a dyad approach, where parent and child were interviewed together. The objective was to observe and describe the interaction in a dyad interview, wherein both parent and child perspectives are used and where the parent may expand the child's cognitive abilities to create a more meaningful description of the child's HRQOL. Children aged 8-15 years with a clinical diagnosis of asthma and their primary caregivers were recruited from The Hospital for Sick Children, Toronto, Canada. The dyads were administered the Health Utilities Index Mark II/III, the Pediatric Asthma Quality of Life Questionnaire and the PedsQL ™ Pediatric Quality of Life Inventory. Interviews were audio-taped and a second researcher recorded observations. Consistent with Grounded Theory methodology, observations were indexed according to categories and subcategories related to the response process. Data were analysed using open, axial and selective coding and constant comparison. Saturation was achieved at 16 dyad interviews. A cultural review and reflexive role taking were included to minimize interviewer bias and enhance rigour. Findings were grouped in the following 11 themes: recall difficulty, respondent bias, interviewer bias, frustration, coercion/parental influence, inter-relational conflict, psychic discomfort for health states, emotional sensitivity, parent as advocate, parent as enabler and comprehension. The specification of these categories facilitated the creation of an interview guide to accompany the administration of standardized HRQOL questionnaires to parent-child dyads. Such a guide would facilitate discussion between parent and child and enhance the consistency of the interview process.

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Section: Discussionmentioning

confidence: 62%

Section: Discussionmentioning

confidence: 99%

A qualitative analysis of a dyad approach to health-related quality of life measurement in children with asthma

Ungar

Mirabelli

Cousins

et al. 2006

Social Science & Medicine

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“…50 Child versus parent reporting Whether the parent or the child is the reporter brings different perspectives and distinct biases to the report of intake. 51 The assumption that parents are good reporters of their child's food intake can be challenged. 52,53 The results of studies in children o9 years suggest that parental reports of child intake are accurate for times when one or both parents are present to observe the child's intake.…”

Section: Recency Biasmentioning

confidence: 99%

Measuring dietary intake in children and adolescents in the context of overweight and obesity

2009

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Dietary intake throughout childhood is a key determinant of growth and development and has an important role in both the prevention and treatment of childhood overweight and obesity. Although dietary intake assessment is fraught with challenges and limitations, reporting intake remains an important research outcome if dietary recommendations to promote healthy weight are to be refined. The aims of this paper are to review current dietary intake assessment methodologies for children, to identify their biases and provide guidance on how these can be addressed to improve reporting of dietary intakes of overweight children in the literature and to identify future research priorities. Knowledge of the methodological aspects of studies examining dietary intake a priori in the context of obesity will assist researchers in improving the quality of dietary data collected and reported and facilitate publication of both dietary intake and nutrition outcomes in the context of body weight. This will help to develop a strong evidence base against which to evaluate the effectiveness of nutrition interventions for both the prevention and treatment of pediatric obesity.

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“…Our findings informed modifications to every SCIM-III SR item and response scale, producing a pediatric version of the tool that we 18 assuming that the items and response scales are written with clarity, simplicity and minimal cognitive burden. 19 We previously showed that youths with SCI as young as age 8 were able to understand and respond to questions.…”

Section: Discussionmentioning

confidence: 72%

The spinal cord independence measure (SCIM)-III self report for youth

et al. 2015

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Study design: The items and response scales of the Spinal Cord Independence Measure (SCIM-III) self report (SR) were exposed to formal cognitive testing with children with SCI, and in parallel a survey using the modified Delphi Technique was conducted to engage content experts in an iterative critical review of the SCIM-III SR. Objectives: To evaluate the validity of the SCIM-III SR for pediatric utilization. Setting: United States of America. Methods: Formal cognitive testing was conducted with 17 youths with SCI and required them to read and answer each SCIM-III SR item aloud. Think aloud methodology was used to record details about how youths understood and interpreted items and why they selected a given response. The interviews were audiotaped and transcribed verbatim. Content analysis focused on identifying words that children could not read or understand. In parallel, the Modified Delphi Technique engaged expert therapists to critically review the SCIM-III SR for pediatric utilization. Results: Every SCIM-III SR item and response scale required modification before children were able to read, understand and respond to them. Youth encountered difficulties because of vague terms, medical jargon and complex words and phrases. Three iterative Delphi rounds were required before achieving 80% agreement that items and response scales were written well for children. Conclusion: Our findings informed modifications to every SCIM-III SR item and response scale, producing a pediatric version of the tool that we formally refer to as the SCIM-III SR-Youth (SCIM-III SR-Y).

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Evidence That School-Age Children Can Self-Report on Their Health

Cited by 489 publications

References 49 publications

A qualitative analysis of a dyad approach to health-related quality of life measurement in children with asthma

A qualitative analysis of a dyad approach to health-related quality of life measurement in children with asthma

Measuring dietary intake in children and adolescents in the context of overweight and obesity

The spinal cord independence measure (SCIM)-III self report for youth

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