Examining Factors Affecting Caregiver Burden: A Comparison of Frontotemporal Dementia and Alzheimer’s Disease

Küçükgüçlü, Özlem; Söylemez, Burcu Akpınar; Yener, Görsev; Barutçu, Canan Demir; Akyol, Merve Aliye

doi:10.1177/1533317517703479

Cited by 19 publications

(15 citation statements)

References 43 publications

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“…Another most common behavioural problem of demented person is apathy, that is lack of interest in doing their usual activities. A study informed that most frequently observed symptoms for dementia is apathy (Küçükgüçlü et al 2017). Current study corroborates with the previous study in that it also showed care recipients experienced symptoms like apathy most.…”

Section: Discussionsupporting

confidence: 90%

Factors related to adverse mental health condition of demented family caregivers: A study in West Bengal, India

Basu

Mukhopadhyay

2019

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Dementia caregiving is a unique and the caregivers faces extreme challenges which affect care-giver’s mental health adversely. Family caregiving towards elderly individuals with dementia is becoming widespread. The study aims to evaluate the mental health status of dementia family caregivers and some related factors that affect their mental health condition. Present cross sectional study includes a total of 134 family caregivers. Socio-demographic and caregiving related data were collected using pre-tested questionnaires. Standardized questionnaires were used to collect data on caregivers’ mental health traits (measured in terms of level of stress and anxiety), level of psychosocial distress, support they provided and the care recipient’s behavioural symptoms associated with dementia. Mean age of the caregivers was 61.64 years (SD 13.89) while the care recipients were above 70 years of age. Mean age of care recipients was 75.46±7.26 years. Alzheimer’s type of dementia was the most common type found among them. Higher level of stress and anxiety was prevalent among the caregivers. Level of education, being a spouse, psychological distress has strong relationship with caregivers’ mental health condition. Behavioural abnormalities of care recipients were also responsible for poor mental health conditions of caregivers. Family caregiving is becoming the most suitable option nowadays and it associated with caregivers’ psychological distress and other health issues. Present study also revealed distressed mental health conditions of caregivers. Since care recipients remain dependent mostly on their family care-givers, it is necessary that caregivers should be fit mentally as well as physically. Therefore, proper support and management is needed for caregivers in near future.

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Section: Discussionsupporting

confidence: 90%

Factors related to adverse mental health condition of demented family caregivers: A study in West Bengal, India

Basu

Mukhopadhyay

2019

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“…In other words, medical conditions that require the greatest caregiving time may not exert the greatest levels of burden to caregivers. One way to explain this nding is that though some medical conditions may require a less alarming amount of caregiving time, the intensity and emotion strain of caregiving involved in taking care of the patients may be equally, if not more, burdensome [18,28,31,32,[62][63][64]. While this nding helps shed light on the relationship between caregiving time and caregiver burden, it also emphasizes the need for more research to further chart factors that in uence caregiving time and caregiver burden (e.g., disease severity [65]).…”

Section: Discussionmentioning

confidence: 99%

“…In a comparative study, researchers found no signi cant difference in levels of burden reported by leukemia caregivers and cerebral palsy caregivers [24]. Comparing the impact of Alzheimer's disease and frontotemporal dementia on caregiver burden, study also indicates that there are no signi cant differences in levels of burden experienced in these two groups of caregivers [31]. Though evidence is needed to clarify mixed ndings in the literature, research is scarce.…”

Section: Introductionmentioning

confidence: 96%

“…Overall, only a handful of studies have investigated the impact of patients' disease types on caregiving consequences such as caregiving time and caregiver burden [26,28,29,31,32]. Furthermore, considering that most of the available studies are either conducted in the cognitive impairment disease context (e.g., comparing different types of dementia conditions) [28,29] or only examined two to three types of distinctive medical conditions' in the analysis [26,31,32], these studies are limited in the diversity of insights they can offer. To bridge this gap, we aim to examine the impact of patient's disease types on caregiving time (i.e., caregiving duration and caregiving hours spent per week) and caregiver burden (i.e., caregivers' self-rated health, body mass index or BMI, and psychological distress), using data that examined a comprehensive list of patients' disease types (see Table 1).…”

Section: Introductionmentioning

confidence: 99%

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Understanding the Impact of Patients’ Disease Types on Caregiving Time and Caregiver Burden: An Analysis of the Health Information National Trends Survey

Zhou

Gelfond

2020

Preprint

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Background: Patients with different medical conditions often have distinctive caregiving needs that could result in varying levels of caregiver burden. However, despite empirical advances in this area, little is known about how patients’ disease types interact with caregiving time and caregiver burden. To bridge this gap, we examined the impact of patients’ disease types on caregiving time and burden. Methods: Data were analyzed from the 2018 Health Information National Trends Survey 5 Cycle 2. Only participants self-identified as caregivers were included in the final analysis. Data on patients’ disease types, caregiving time (i.e., caregiving duration and caregiving hours spent per week), and caregiver burden (i.e., caregivers’ self-rated health, body mass index, and psychological distress) were examined using logistic regression analysis.Results: Patients’ disease types impacted caregiving time and burden. Caregivers of patients with neurological disease spent the greatest amount of time. For caregiver burden, caregivers of patients with cancer or aging related disease experienced worst self-rated health, caregivers of patients with orthopedic disease have the greatest likelihood to be overweight or obese, while cancer caregivers experienced greatest levels of psychological distress. Conclusions: Patients’ disease types had highly varied effects on caregiving time and burden. This study underscores the need for healthcare researchers to adopt a nuanced approach in acknowledging and addressing the burden of care experienced by caregivers, such as tailoring interventions based on both patients and caregivers’ characteristics and preferences.

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“…Our findings corroborate previous studies that find that caregiver burden may be correlated with time of care and greater dependence on ADL (Cruz e Hamdan, 2008;Yu et al, 2015;Cesário et al, 2017). Küçükgüçlü et al (2017) concluded that the factor that most affects the caregiver's burden is the decline in the performance of the ADL and neuropsychological symptoms, which primarily affect the time-dependent burden domain.…”

Section: Anexos_____________________________________________________112mentioning

confidence: 99%

A percepção do informante frente à funcionalidade do idoso com doença de Alzheimer

Harder¹

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Functional impairment is an important aspect for early diagnosis of dementia, but it might be compromised by emotional factors of the informant. Objective: We aimed to compare the direct functional assessment with the indirect evaluation and to investigate whether caregiver/informant burden, anxiety and depression might interfere in this process. Method: This is a crosssectional study of activities of daily living of 40 Alzheimer´s disease (AD) patients compared to a matched 41 elderly controls. We assessed functionality by both, direct evaluations by a health professional and indirect instruments that were answered by the informant. We investigated the presence of depressive, anxiety and burden symptoms in the informant. Statistical analysis was performed based on single-factor analysis of variance (ANOVA) with multiple comparisons (Bonferroni test). For correlational analysis we used Pearson's correlation coefficient. Results: we observed between-groups significant differences in relation to the caregiver's burden (p < 0.001), however no other finding was observed related to depression, anxiety and cognition. In the analysis of correlations between emotional aspects and functionality evaluations we observed that in both controls and mild AD groups, IQCODE was the indirect assessment that most closely approximated to the direct evaluation and was less influenced by emotional symptoms. Conclusion: The presence of emotional symptoms influences the indirect evaluation of mild conditions of cognitive decline, in which case direct evaluation is preferable. In moderate cases, indirect evaluation is less influenced by caregiver burden because the impairment is more evident.

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Examining Factors Affecting Caregiver Burden: A Comparison of Frontotemporal Dementia and Alzheimer’s Disease

Cited by 19 publications

References 43 publications

Factors related to adverse mental health condition of demented family caregivers: A study in West Bengal, India

Factors related to adverse mental health condition of demented family caregivers: A study in West Bengal, India

Understanding the Impact of Patients’ Disease Types on Caregiving Time and Caregiver Burden: An Analysis of the Health Information National Trends Survey

A percepção do informante frente à funcionalidade do idoso com doença de Alzheimer

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