Examining the accessibility of high-quality physical activity behaviour change support freely available online for men with prostate cancer

Short, Camille E.; Gelder, Charlotte; Binnewerg, Lena; McIntosh, Megan; Turnbull, Deborah

doi:10.1007/s11764-017-0638-8

Cited by 8 publications

(9 citation statements)

References 55 publications

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“…If the information is perceived as confusing or inadequate, this may contribute to unmet informational needs if not properly addressed. Research has suggested PCa patients may find it difficult to locate high‐quality information online, due to both their ability to search for the information and the lack of gold‐standard information being readily available. Interpersonal factors, such as their doctor's expertise, and community factors such as the availability of resources/services, may further contribute unmet informational needs.…”

Section: Resultsmentioning

confidence: 99%

A systematic review of the unmet supportive care needs of men on active surveillance for prostate cancer

et al. 2019

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Objective Understanding the unmet supportive care needs of men on active surveillance for prostate cancer may enable researchers and health professionals to better support men and prevent discontinuation when there is no evidence of disease progression. This review aimed to identify the specific unmet supportive care needs of men on active surveillance. Methods A systematic review following PRISMA guidelines was conducted. Databases (Pubmed, Embase, PsycINFO, and CINAHL) were searched to identify qualitative and/or quantitative studies that reported unmet needs specific to men on active surveillance. Quality appraisals were conducted before results were narratively synthesised. Results Of the 3613 unique records identified, only eight articles were eligible (five qualitative and three cross‐sectional studies). Unmet Informational, Emotional/Psychological, Social, and “Other” needs were identified. Only three studies had a primary aim of investigating unmet supportive care needs. Small active surveillance samples, use of nonvalidated measures, and minimal reporting of author reflexivity in qualitative studies were the main quality issues identified. Conclusions The unmet needs of men on active surveillance is an underresearched area. Preliminary evidence suggests the information available and provided to men during active surveillance is perceived as inadequate and inconsistent. Men may also be experiencing unmet psychological/emotional, social, and other needs; however, further representative, high‐quality research is required to understand the magnitude of this issue. Reporting results specific to treatment type and utilising relevant theories/models (such as the social ecological model [SEM]) is recommended to ensure factors that may facilitate unmet needs are appropriately considered and reported.

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Section: Resultsmentioning

confidence: 99%

A systematic review of the unmet supportive care needs of men on active surveillance for prostate cancer

et al. 2019

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“…Finally, compared with other distance-based approaches (e.g., print-materials, DVDs, telephone calls), online approaches have the capacity to provide not only high-quality content, but also highly tailored content. This, in addition to opportunities for interaction with others and tools designed to support self-management and decision-making [23] favors online delivery.…”

Section: Introductionmentioning

confidence: 99%

A systematic review of the feasibility, acceptability, and efficacy of online supportive care interventions targeting men with a history of prostate cancer

et al. 2019

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Purpose To examine the feasibility, acceptability, and efficacy of online supportive care interventions targeting prostate cancer survivors (PCS). Methods Studies were identified through structured searches of PubMed, Embase and PsycINFO databases, and bibliographic review. Inclusion criteria were (1) examined feasibility, acceptability, or efficacy of an online intervention designed to improve supportive care outcomes for PCS; (2) presented outcome data collected from PCS separately (if mixed cancer); and (3) evaluated efficacy outcomes using randomized controlled trial (RCT) design. Results Sixteen studies met inclusion criteria; ten were classified as RCTs. Overall, 2446 men (average age 64 years) were included. Studies reported on the following outcomes: feasibility and acceptability of an online intervention (e.g., patient support, online medical record/follow-ups, or decision aids); reducing decisional conflict/distress; improving cancer-related distress and health-related quality of life; and satisfaction with cancer care. Conclusion We found good preliminary evidence for online supportive care among PCS, but little high level evidence. Generally, the samples were small and unrepresentative. Further, inadequate acceptability measures made it difficult to determine actual PCS acceptability and satisfaction, and lack of control groups precluded strong conclusions regarding efficacy. Translation also appears minimal; few interventions are still publicly available. Larger trials with appropriate control groups and greater emphasis on translation of effective interventions is recommended. Implications for Cancer Survivors Prostate cancer survivors have a variety of unmet supportive care needs. Using online delivery to improve the reach of high-quality supportive care programs could have a positive impact on health-related quality of life among PCS.

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“…To the best of our knowledge, only two studies reported an explanation for designing a PA guidebook for cancer patients [14,16], with similar steps to the ones we adopted. Previous studies reported low levels of quality and accuracy of written PA information in cancer [21,22]. To prevent this possibility, we have applied a rigorous methodology that permitted us to realize a guidebook, according to the recent literature in the field and the current guidelines for PA in cancer.…”

Section: Discussionmentioning

confidence: 99%

Development of Educational Print Materials for Physical Activity in Cancer: Evaluation of Readability and Suitability

et al. 2021

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Educational health materials may be important tools to increase physical activity in cancer patients. Nevertheless, most of the available resources regarding physical activity for cancer patients were found not suitable, had a low grade of readability, and thus, represent a significant barrier to behavior change. To date, little data about development criteria and evaluation of physical activity resources for cancer before their spread exist. The purposes of this study were (i) to describe the development of a physical activity guidebook designed for cancer patients and (ii) to test its readability and suitability. The guidebook was developed through multi-step passages, including group discussions, a literature review, identification of a motivational theory, and using previous research on exercise preferences, barriers, and facilitators to target the information. Two validated formulae were used to assess the readability, whereas thirty-four judges completed the Suitability of Assessment Materials questionnaire to evaluate the suitability of the guidebook. The guidebook was found readable for patients having at least a primary education, and the judges scored it as “superior” material. Our guidebook, following a rigorous method in the development phase, was considered to be suitable and readable. Further evaluations through clinical trials could investigate its effectiveness for behavior change and its impact on cancer patients.

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Examining the accessibility of high-quality physical activity behaviour change support freely available online for men with prostate cancer

Abstract: Efforts to improve physical activity information online and strategies to direct prostate cancer survivors to higher-quality websites and support services are needed to ensure safety and efficacy.

Cited by 8 publications

References 55 publications

A systematic review of the unmet supportive care needs of men on active surveillance for prostate cancer

A systematic review of the unmet supportive care needs of men on active surveillance for prostate cancer

A systematic review of the feasibility, acceptability, and efficacy of online supportive care interventions targeting men with a history of prostate cancer

Development of Educational Print Materials for Physical Activity in Cancer: Evaluation of Readability and Suitability

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