Examining the Effects of Chronic Disease and Disability on Children's Sibling Relationships

Lobato, Debra; Faust, David; Spirito, Anthony

doi:10.1093/jpepsy/13.3.389

Cited by 98 publications

(62 citation statements)

References 37 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Three of the nine hypotheses tested were not confirmed, i.e., age, birth order, and gender. These results contradict the findings of Leonard (1991) who suggested that the age of the sibling affected coping, and those of Lobato et al (1988) and Breslau (1982) who reported that birth order affected coping.…”

Section: Discussioncontrasting

confidence: 98%

“…The findings regarding gender are contrary to those of Darling and Darling (1982); Leonard (1991);Lobato et al (1988);and Seligman (1988), all of whom suggested that sisters of affected children have more difficulty in coping than brothers, primarily because they are more often called upon to assume care-giving roles and to assist with other household chores. The contradiction between the results of this study and those of other studies may be accounted for by cultural differences between the populations studied.…”

Section: Discussioncontrasting

confidence: 64%

See 1 more Smart Citation

Resilience in siblings of children with sickle cell disease

Royal

Headings

Molnar

et al. 1995

Journal of Genetic Counseling

View full text Add to dashboard Cite

This pilot study was conducted to identify factors responsible for promoting resilience in siblings of children with sickle cell disease. Twenty siblings (10-17 years of age) of children (5-13 years) with sickle cell disease were selected from the Pediatric Clinic of Howard University Center for Sickle Cell Disease. The siblings responded to questionnaires, and the data obtained was analyzed by chi-square for association. The results indicated that age, birth order, and gender had no effect on resilience in the siblings. However, family size, number of parents in the home, sibling's knowledge of the illness, degree of morbidity of the illness, socioeconomic status of the family, and parents' attitudes and childrearing practices were all found to affect resilience. These findings provide additional insight into the psychosocial aspects of, and genetic counseling for sickle cell disease, as well as for other chronic genetic disorders.

show abstract

Section: Discussioncontrasting

confidence: 98%

Section: Discussioncontrasting

confidence: 64%

Resilience in siblings of children with sickle cell disease

Royal

Headings

Molnar

et al. 1995

Journal of Genetic Counseling

View full text Add to dashboard Cite

show abstract

“…26,27 This study has the advantage of using data from a large representative sample comparing siblings of children with a disability with siblings of typically developing children.…”

Section: Resultsmentioning

confidence: 99%

Assessing Functional Impairment in Siblings Living With Children With Disability

et al. 2013

View full text Add to dashboard Cite

WHAT'S KNOWN ON THIS SUBJECT: Previous research on potential deleterious effects of typically developing children growing up in households with children with disability has produced mixed results. Research methods have been cited as a problem in many studies. WHAT THIS STUDY ADDS:This is the largest known empirical study comparing functional impairment in siblings living with a child with disability and siblings residing with children who are typically developing. This study also follows the trajectory of functional impairment across 2 measurement periods. abstract OBJECTIVE: The purpose of this study was to empirically test if siblings of children with disability had higher levels of parent-reported behavioral and emotional functional impairment compared with a peer group of siblings residing with only typically developing children. METHODS:This was a retrospective secondary analysis of data from the Medical Expenditure Panel Survey. We included only households with at least 2 children to ensure sibling relationships. Two groups of siblings were formed: 245 siblings resided in households with a child with disability and 6564 siblings resided in households with typically developing children. Parents responded to questions from the Columbia Impairment Scale to identify functional impairment in their children. RESULTS:On the basis of parent reports and after adjusting for sibling demographic characteristics and household background, siblings of children with disability were more likely than siblings residing with typically developing children to have problems with interpersonal relationships, psychopathological functioning, functioning at school, and use of leisure time (P , .05). The percentage of siblings of children with disability classified with significant functional impairment was 16.0% at the first measurement period and 24.2% at the second (P , .001). For siblings of typically developing children there was a smaller percentage increase from 9.5% to 10.3% (P , .001).CONCLUSIONS: Functional impairment is a key indicator for the need of mental health services and, as such, early assessment and interventions to limit increasing severity and short-to long-term consequences need to be addressed. Health care professionals need to consider a family-based health care approach for families raising children with disability. Pediatrics 2013;132:e476-e483 AUTHORS:

show abstract

“…Further, the original research frequently grouped siblings with varying disabilities together, making it difficult to appreciate the differing needs of distinct disabilities. Researchers have since called for a single-disability study design [Lobato et al, 1988;Cuskelly, 1996;Fisman et al, 1996], and from this request has emerged a preliminary understanding of what it is like to have a brother or sister with DS today.…”

Section: Introductionmentioning

confidence: 99%

What the other children are thinking: Brothers and sisters of persons with Down syndrome

Skotko

Levine

2006

American J of Med Genetics Pt C

View full text Add to dashboard Cite

Brothers and sisters are obligatorily welcomed to the disability community when a person with Down syndrome (DS) is part of the family unit. How they react to such an invitation is the focus of this investigation. Here, we review the most current research on brothers and sisters of persons with DS, and comment on our own experience in facilitating sibling workshops at the local, state, and national levels. The evidence, to date, seems clear: brothers and sisters experience a wide range of emotions, but typically the positive feelings outweigh the negative ones. Further, siblings find rich value in having a family member with DS, and most will assume positions of advocacy at some level in their lives. Recommendations for physicians on how parents can nurture healthy relationships among their children are offered.

show abstract

Examining the Effects of Chronic Disease and Disability on Children's Sibling Relationships

Cited by 98 publications

References 37 publications

Resilience in siblings of children with sickle cell disease

Resilience in siblings of children with sickle cell disease

Assessing Functional Impairment in Siblings Living With Children With Disability

What the other children are thinking: Brothers and sisters of persons with Down syndrome

Contact Info

Product

Resources

About