Exhaustion of family caregivers: a masked domestic crisis? A psychodynamic and systemic approach

Bouati, Noureddine; Sagne, Alain; Hunsicker, Morgane; Gavazzi, G.; Couturier, Pascal

doi:10.1684/pnv.2016.0585

Cited by 2 publications

(1 citation statement)

References 0 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Alzheimer’s disease (AD) patients’ care and support of their family is a major issue in the health care systems of Western countries [ 1 ]. By affecting one’s cognition, emotional processes and behaviour, AD modifies the nature of the relationship between the person and his or her caregiver, usually a relative, and consequently the role of each individual in the family and social sphere [ 2 ]. Even if this change is sometimes positive for the relationship, it can lead to what has been called a “burden”, which, shouldered by informal caregivers, has been reported in the literature as causing poor physical and mental health (depression, cardiovascular disease, anxiety) [ 3 ].…”

Section: Introductionmentioning

confidence: 99%

Impact of an educational programme on Alzheimer’s disease patients’ quality of life: results of the randomized controlled trial THERAD

et al. 2021

View full text Add to dashboard Cite

Background Although educational interventions are recommended in Alzheimer’s disease (AD), studies assessing the impact of interventions such as “therapeutic patient education” are scarce. Indeed, the intrinsic nature of the disease is considered a barrier to patients’ involvement in such approaches. We aimed to evaluate an intervention by using a “dyadic” approach (patient and caregiver) in both intervention and assessment. Methods THERAD is a monocentric, randomized, controlled trial assessing the effects of a 2-month educational programme in mild to moderately severe AD patients among 98 dyads (caregiver/patient) on caregiver-reported patient quality of life (QOL) at 2 months. Community-dwelling patients and their caregivers were recruited in ambulatory units of the French Toulouse University Hospital. Self-reported patient QOL, autonomy, behavioural and psychological symptoms and caregiver QOL and burden were collected at 2, 6 and 12 months. Linear mixed models were used in modified intention-to-treat populations. We also performed sensitivity analysis. Results A total of 196 dyads were included, 98 in each group. The mean age of the patients was 82 years, 67.7% were women, diagnosed with AD (+/- cerebrovascular component) (mean MMSE =17.6), and 56.9% lived with a partner. The mean age of the caregivers was 65.7 years, and 64.6% were women (52.3% offspring/42.6% spouses), with a moderate burden (mean Zarit score = 30.9). The mean caregiver-reported patient QOL was lower than the self-reported QOL (28.61 vs. 33.96). We did not identify any significant difference in caregiver-reported patients’ QOL (p = 0.297) at 2 months, but there was a significant difference in self-reported patients’ QOL at 2 months (p = 0.0483) or 6 months (p = 0.0154). No significant difference was found for the secondary outcomes. The results were stable in the sensitivity analyses. Conclusions This randomized controlled trial assessing an educational intervention in 196 dyads (Alzheimer’s disease affected patient/caregiver) highlights the need to better consider the patient’s point of view, since only the self-reported QOL was improved. Additional studies using this dyadic approach are necessary in targeted subpopulations of caregivers (spouse vs. child, gender) and of patients (severity of cognitive impairment or behavioural disturbances) Trial registration THERAD study NCT01796314. Registered on February 19, 2013.

show abstract

Section: Introductionmentioning

confidence: 99%

Impact of an educational programme on Alzheimer’s disease patients’ quality of life: results of the randomized controlled trial THERAD

et al. 2021

View full text Add to dashboard Cite

show abstract

Le modèle de la « communauté de soin » envisagée comme une réponse au problème du deuil blanc en soins palliatifs

Keubo¹,

Mboua²

2022

Revue Internationale De Soins Palliatifs

View full text Add to dashboard Cite

Ce travail interroge les effets du deuil blanc, attachés à l’annonce d’une ablation sur les acteurs de la relation thérapeutique d’une part, et l’influence du deuil blanc relativement à l’annonce de l’ablation d’organe en situation d’accompagnement holistique, sur la communauté des soins. Les participants au nombre de trois, sélectionnés par la méthode d’échantillonnage par choix raisonné formaient « la communauté de soin ». L’échelle diagnostique de la détresse psychologique (EDAS-21) et de guide d’entretien semi structuré ont été mis à contribution pour collecter les données auprès des participants. L’analyse thématique des contenus avec une grille de lecture psychanalytique ont contribué à analyser les entretiens cliniques. Les résultats de l’étude montrent que dans un contexte où la communauté de soin bénéficie d’un accompagnement psychologique du deuil blanc, la relation thérapeutique a des effets positifs. Ces effets contribuent à la gestion du deuil blanc chez les acteurs de la relation thérapeutique dès l’annonce de l’ablation, de nature à accélérer le deuil blanc de l’organe. Ainsi, ces résultats soutiennent l’impact positif du modèle d’accompagnement axé sur la communauté de soin dans la gestion du deuil blanc.

show abstract

Exhaustion of family caregivers: a masked domestic crisis? A psychodynamic and systemic approach

Cited by 2 publications

References 0 publications

Impact of an educational programme on Alzheimer’s disease patients’ quality of life: results of the randomized controlled trial THERAD

Impact of an educational programme on Alzheimer’s disease patients’ quality of life: results of the randomized controlled trial THERAD

Le modèle de la « communauté de soin » envisagée comme une réponse au problème du deuil blanc en soins palliatifs

Contact Info

Product

Resources

About