Existential experience of children with cancer under palliative care

França, Jael Rúbia Figueiredo de Sá; Costa, Solange de Fátima Geraldo da; Lopes, Maria Emília Limeira; Nóbrega, Maria Mirian Lima da; Batista, Patrícia Serpa de Souza; Oliveira, Regina Célia de

doi:10.1590/0034-7167-2016-0493

Cited by 17 publications

(29 citation statements)

References 7 publications

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“…Considering the comfortability principles for companions, the projected wards are in line with the Resolution of the Collegiate Board 50 (RCB 50) (27) and NHP (14) , for guaranteeing the right to the presence of a companion (20) and design a cozy and comfortable space for them to rest beside the bed of the children or adolescents. In addition, the wards would have their own bathrooms for the companions, in order to keep them close to their loved ones, since they are a source of emotional support (1,28) , in addition to promoting well-being (10) . Moreover, participants expressed the wish that other family members and friends could be present during hospitalization and, thus, suggested open visits, as recommended by the NHP (14) .…”

Section: Discussionmentioning

confidence: 99%

The hospital designed by hospitalized children and adolescents

et al. 2020

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Objective: to identify, through the contributions of hospitalized children and adolescents, the characteristics they consider necessary for a hospital that promotes well-being and development. Method: descriptive and exploratory study, with qualitative data analysis, carried out with a total of 30 hospitalized children and adolescents. Data were collected through semi-structured interviews, mediated by drawing, and analyzed by inductive thematic analysis, supported by the theoretical framework of the humanization of health care and the Florence Nightingale’s Environmental Theory. Results: the designed hospital takes up the principles of Florence Nightingale’s Environmental Theory, as well as one of the guidelines of the National Humanization Policy, the environment, from two perspectives: elements and material resources from the physical environment; elements of comfort and well-being environment. Final considerations: hospitals such as the projected institution corroborate what is recommended in public policies, as they qualify health care.

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Section: Discussionmentioning

confidence: 99%

The hospital designed by hospitalized children and adolescents

et al. 2020

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“…All the children and adolescents facing life-threatening situations feel most of the following emotions or moods: sadness, rage or frustration, anxiety, fear, and guilt (Hongo et al, 2003; Theunissen et al, 2007; Hechler et al, 2008; Cataudella and Zelcer, 2012; Montoya-Juárez et al, 2013; França et al, 2018). Some studies emphasize some emotions over others.…”

Section: Resultsmentioning

confidence: 99%

The psychological experience of pediatric oncology patients facing life-threatening situations: A systematic review with narrative synthesis

2021

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Objective The purpose of this systematic review is to describe the elements of the psychological experience of pediatric oncology patients facing life-threatening situations and the corresponding care needs. Methods The study design is a systematic review following the PRISMA standard of qualitative, quantitative, and mixed-methods research. The review was conducted using multiple databases, including Scopus, Web of Science, PubMed, and PsycINFO. The risk of bias of the articles was evaluated with the “Critical Appraisal Skills Programme.” Results A total of 21 articles met inclusion criteria. The analysis of the evidence revealed that the psychological experience involves changes in relationships, thoughts about death, emotional changes, physical symptoms, spiritual changes, and feelings of uncertainty. Significance of results The care needs identified are maintaining normality, controlling physical and psychological symptoms, and that maintaining hope is an important aspect for children. Whether or not the children want to talk about death is another important aspect that needs to be reflected upon, and it would be appropriate to consider, on an individual level, involving patients in the discussion on the diagnosis and treatment of the illness. Future research should be conducted from the children's perspective since most existing research is from the perspective of the family members or health professionals. Furthermore, it is recommended to take into account qualitative approaches that provide more detailed information on the patients’ subjectivity.

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“…Assim, o brincar exerce uma grande importância no desenvolvimento infantil e colabora para a apreensão de comportamentos e a construção do conhecimento sobre a realidade em que a criança está inserida, como expressão de sentimentos e emoções. Considerando que a criança acometida pelo câncer apresenta mudanças na forma orgânica e na psicossocial, a brincadeira pode diminuir a ansiedade e o medo diante do desconhecido 13,14 .…”

Section: Discussionunclassified

Abordagens lúdicas e o enfrentamento do tratamento oncológico na infância

et al. 2020

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Objetivo: demonstrar como, na percepção da criança acometida por câncer, as abordagens lúdicas contribuem para que ela enfrente o tratamento oncológico. Método: trata-se de um estudo qualitativo, descritivo e exploratório. Procedeu-se à entrevista semiestruturada com dez crianças com idades entre 6 e 12 anos acolhidas em uma casa de apoio. Para analisar as informações, optou-se pela técnica de análise de conteúdo. Resultados: emergiram duas categorias: o significado de brincar na compreensão da criança em tratamento oncológico; os sentimentos revelados a partir do brincar durante o tratamento oncológico. As crianças disseram que acham importante brincar durante o tratamento e reconhecem que, ao brincar, vivenciam uma variedade de sentimentos, como felicidade e bem-estar, mas também raiva por sentir dor devido à condição de estar doente. Conclusão: as abordagens lúdicas são ferramentas essenciais para auxiliar a criança a vivenciar as diferentes situações na doença e no tratamento.

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Existential experience of children with cancer under palliative care

Abstract: It is fundamental the participation of nurses in the Palliative Care to the children with cancer in order to strengthen the trust between the children and the professional to have the relationship of dialogue as central axis.

Cited by 17 publications

References 7 publications

The hospital designed by hospitalized children and adolescents

The hospital designed by hospitalized children and adolescents

The psychological experience of pediatric oncology patients facing life-threatening situations: A systematic review with narrative synthesis

Abordagens lúdicas e o enfrentamento do tratamento oncológico na infância

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