Expanding the care continuum for HIV/AIDS: Bringing carers into focus

Ogden, Jessica; Esim, Simel; Grown, Caren

doi:10.31899/hiv2.1033

Cited by 55 publications

(60 citation statements)

References 13 publications

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“…Once HIV serostatus has been disclosed to family members, treatment becomes a challenge for the entire family (Li et al, 2007). Caring for PLH often poses significant challenges, including physical and emotional suffering, socioeconomic burden, and an increased risk of acquiring HIV due to a lack of access to self-protection materials (Lee et al, 2010; Ogden et al, 2004; Palattiyil & Chakrabarti, 2008). …”

Section: Introductionmentioning

confidence: 99%

A multilevel intervention for HIV-affected families in China: Together for Empowerment Activities (TEA)

Liang

et al. 2011

Social Science & Medicine

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This article analyzes the efficacy of the Together for Empowerment Activities (TEA) intervention in decreasing depressive symptoms and improving social support for persons living with HIV (PLH) and their family members. A total of 79 families, consisting of 88 PLH and 79 family members, were recruited from Anhui province, China, and randomized to the TEA intervention (n = 38) or a control condition (n = 41). The intervention was delivered at three levels: 1) TEA Gathering (small group for PLH and family members); 2) TEA Time (home-based family activities with children that accompany each TEA Gathering); and 3) TEA Garden (community events that build social integration). Face-to-face interviews were administered at baseline, 3, and 6 months. Mixed effects regression models and kernel density estimation were used for data analysis. PLH and their family members in the intervention reported significant improvements in depressive symptoms, social support, and family functioning at the 3-month and 6-month follow-up assessments compared to those in the control condition. Heterogeneous intervention effects on social support and family functioning were indicated at the 6-month follow-up. The intervention could have various effect patterns for different subgroups within the intervention condition. This study provides preliminary data to support the feasibility and efficacy of a multilevel intervention.

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Section: Introductionmentioning

confidence: 99%

A multilevel intervention for HIV-affected families in China: Together for Empowerment Activities (TEA)

Liang

et al. 2011

Social Science & Medicine

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“…As a chronic disease, women living with HIV must learn to manage their symptoms and care. This occurs in the face of numerous challenges including stigma which can prevent women from seeking HIV testing and treatment (Gupta, 2002; Sandelowski, Lambe, & Barroso, 2004); lack of economic power (Gupta, 2002; Hunter, 2002); fear of violence (Garcia-Moreno & Watts, 2000; Maman et al, 2002); and the growing burden of care of infected family members (Ogden & Esim, 2003; Steinberg, Johnson, Schierhout,& Ndewa, 2002). These challenges can prevent women from managing their own, much-needed care.…”

Section: Introductionmentioning

confidence: 99%

Testing a peer-based symptom management intervention for women living with HIV/AIDS

Webel

2010

AIDS Care

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Objective To test the impact of participation in a peer-based intervention for symptom management for women living with HIV infection on selected outcome measures including, symptom intensity, medication adherence, viral control, and quality of life. Design Randomized clinical trial. Methods Participants were recruited using a convenient, consecutive sampling method. Those participants randomized to the experimental condition attended seven, peer-led sessions over seven weeks. Participants randomized to the control condition received a copy of HIV Symptom Management Strategies: A Manual for People Living with HIV/AIDS. Participants completed four surveys assessing change over time in the aforementioned outcome variables. Results Eighty-nine HIV-infected women followed over 14 weeks and there were no differences between the two groups on baseline demographic variables. Mixed-effects regression indicated no significant difference between groups across time in total symptom intensity score and medication adherence. There was a significant difference between groups across time for two of the nine quality of life scales – HIV Mastery (χ2 = 25.08; p < 0.005) and Disclosure Worries (χ2 = 24.67; p < 0.005). Conclusions In urban-dwelling women living with HIV/AIDS, results suggest that a peer-based symptom management intervention may not decrease symptom intensity or increase medication adherence. There is positive evidence that suggests that the intervention may increase some important aspects of quality of life. However, further research is warranted to elucidate the effect of peer-based interventions in achieving positive self-management outcomes.

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“…While there is also recognition that family members provide home care and can play supportive roles in relation to treatment adherence, their importance is rarely stressed (e.g. Ogden, Esim & Grown 2006). Moreover, the potential of parents of adult PHA, who are often of advanced ages, to assist has received virtually no attention (see e.g.…”

Section: Introductionmentioning

confidence: 99%

The Role of Parents and Family Members in ART Treatment Adherence: Evidence From Thailand

et al. 2009

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High levels of treatment adherence are crucial for the success of expanding ART treatment programs everywhere. Augmenting adherence through treatment supporters is one promising strategy. Most discussions focus on peers, especially members of PHA groups, for this purpose. Far less attention is given to family members and especially older age parents. Yet ART recipients often live with or nearby parents and other family members who are highly motivated to ensure the treatment's success. This study examines the extent that family members, especially parents, assist adherence in Thailand. Results indicate that most adult ART patients live with family members and over half live with or in the same locality as a parent. Family members, including parents, commonly remind ART patients to take medications, especially if coresident. Moreover, parents often remind patients to get resupplies and sometimes accompany them to appointments. Clearly close family members, including parents, should be explicitly incorporated into adherence augmentation programs and provided adequate information to facilitate their role as long-term adherence partners, not only in Thailand but wherever ART recipients are closely linked to family members through living and caregiving arrangements.

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Expanding the care continuum for HIV/AIDS: Bringing carers into focus

Cited by 55 publications

References 13 publications

A multilevel intervention for HIV-affected families in China: Together for Empowerment Activities (TEA)

A multilevel intervention for HIV-affected families in China: Together for Empowerment Activities (TEA)

Testing a peer-based symptom management intervention for women living with HIV/AIDS

The Role of Parents and Family Members in ART Treatment Adherence: Evidence From Thailand

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