Expectations of an Online-Self-Management Program for Rheumatoid Arthritis

Chen, Su-Hui; Yu, Kuang‐Hui; Lee, Yi-Hui; Shao, Jung-Hua

doi:10.1177/10547738211041692

Cited by 5 publications

(3 citation statements)

References 37 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…This highlights the need for exible interventions in clinical practice. Other studies have found that, e.g., online self-management support can be useful (53,54).…”

Section: Discussionmentioning

confidence: 99%

Patients’ experience of the feasibility of a novel interdisciplinary nurse-led self-management intervention (INSELMA) – a qualitative evaluation

Blum,

Esbensen,

Østergaard

et al. 2023

Preprint

View full text Add to dashboard Cite

Background Despite continuous improvements in anti-rheumatic pharmacological treatment, people with chronic inflammatory arthritis still report substantial disease impact. Based on the framework for complex interventions, we thus developed INSELMA, a novel nurse-coordinated multidisciplinary self-management intervention for patients with rheumatoid arthritis, psoriatic arthritis or axial spondyloarthritis. Based on individual biopsychosocial assessments, a rheumatology nurse facilitated goal setting and coordinated interdisciplinary support. The aim of this study was to explore the patients’ experience of participating in the six-months feasibility test of the INSELMA intervention. Methods Individual semi-structured interviews were conducted with 15 of the participants after their final follow-up. Thematic analysis was applied. Results The analysis derived four overall themes. 1) A new opportunity at the right time. The participants’ disease impacted all areas of daily life. Participation in INSELMA was experienced as an opportunity to improve symptoms and together reduce long-held challenges they had fought alone, until now. 2) The importance of person-centred goals. The participants found it meaningful to work with their individual goals, which encompassed physical, psychological, and social factors. Having time between consultations to work with goals at home was important. 3) Empathy, partnership and a little nudging from HPs are essential. The empathic nurses’ continuous support and coaching helped participants become aware of their own resources. The participants highlighted having access to support from a physiotherapist and occupational therapist with rheumatology experience as important. 4) I got more than I could have hoped for. Most of the participants experienced decreased symptom load and improvement in physical strength, mobility, sleep, and mood as well as increased energy, knowledge, and self-management ability. The participants expressed new hope for the future with an improved ability to manage their symptoms and work towards new goals. Conclusion The participants found the INSELMA intervention meaningful and feasible. They experienced decreased disease impact and increased activity levels, facilitated by empathy and self-management support from health professionals.

show abstract

“…This highlights the need for exible interventions in clinical practice. Other studies have found that, e.g., online self-management support can be useful (53,54).…”

Section: Discussionmentioning

confidence: 99%

Patients’ experience of the feasibility of a novel interdisciplinary nurse-led self-management intervention (INSELMA) – a qualitative evaluation

Blum,

Esbensen,

Østergaard

et al. 2023

Preprint

View full text Add to dashboard Cite

show abstract

“…The program was based on two qualitative studies, which explored patient needs and recommendations for self-management of rheumatoid arthritis ( Chen, Yu, Kao, & Shao, 2022 ; Chen, Yu, Lee, & Shao, 2022 ). The study was to be conducted as a two-arm exploratory RCT with an intervention and control group with data collected at enrollment (baseline) and a follow-up at 12 weeks.…”

Section: Methodsmentioning

confidence: 99%

COVID-19-related disruptions in implementation of a randomized control trial: An autoethnographic report

Shao

Chen

2023

Applied Nursing Research

Self Cite

View full text Add to dashboard Cite

“…Therefore, Taiwanese patients who believe their lives are controlled by God or fate often adopt strategies to achieve peace of mind instead of attempting to draw on personal resources that will allow them to be take responsibility for staying healthy [40]. The belief that health is a matter of faith has been shown to inhibit patients from adopting healthy behaviors by shifting responsibility for their chronic disease to God or fate [45,46]. Religious beliefs of Buddhism and Taoism could reduce self-efficacy for patients with RA in Taiwan because they do not believe they are able or have the responsibility to change their health condition.…”

Section: Austin Publishing Groupmentioning

confidence: 99%

Relationships among Arthritis Self-efficacy and Background Characteristics in Patients with Rheumatoid Arthritis

Chen,

Liang,

Shao

2023

austinjnurshealthcare

View full text Add to dashboard Cite

Background: A thorough evaluation of variables related to self-efficacy that are unique to each patient population is an important step for developing self-management interventions. Purpose: To determine factors associated with patient self-efficacy for managing pain and other symptoms of rheumatoid arthritis. Methods: This cross-sectional study analyzed secondary data collected for a randomized controlled trial on rheumatoid arthritis conducted from October 2016 to January 2018. A sample of 214 patients was recruited from outpatient rheumatology clinics of one medical center in northern Taiwan. Data included demographic and rheumatoid arthritis-related characteristics and self-report scores for disease activity, health status, health-related quality of life, and arthritis self-efficacy. Results: The mean age of participants was 58.72 years; 86% were female. Hierarchical regression demonstrated predictors of self-efficacy of pain management were a monthly income versus no income, living with other family members, duration (years) of arthritis, and arthritis education/counseling. Health-related quality of life scores for components of physical and mental health were also significant predictors. Predictors of self-efficacy for managing other symptoms were living with other family members in the household, religious beliefs of Buddhism or Taoism vs. none, and physical and mental component scores for health-related quality of life. Conclusions/Implications for Practice: Nurses should focus interventions targeted at adults newly diagnosed with rheumatoid arthritis, who are living alone, in poor health, and have religious beliefs of Buddhism or Taoism.

show abstract

Expectations of an Online-Self-Management Program for Rheumatoid Arthritis

Cited by 5 publications

References 37 publications

Patients’ experience of the feasibility of a novel interdisciplinary nurse-led self-management intervention (INSELMA) – a qualitative evaluation

Patients’ experience of the feasibility of a novel interdisciplinary nurse-led self-management intervention (INSELMA) – a qualitative evaluation

COVID-19-related disruptions in implementation of a randomized control trial: An autoethnographic report

Relationships among Arthritis Self-efficacy and Background Characteristics in Patients with Rheumatoid Arthritis

Contact Info

Product

Resources

About