Experience of anxiety among patients with severe COPD: A qualitative, in-depth interview study

Strang, Susann; Ekberg-Jansson, Ann; Henoch, Ingela

doi:10.1017/s1478951513000369

Cited by 46 publications

(64 citation statements)

References 31 publications

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“…This was also found in a study by Adelbratt and Strang (2000) and Strang et al (2013) who also conclude that patients and their families are very concerned with and think about existential matters and death anxiety. Existential pain in our study concerned the meaning of death and whether death would be painful, as well as a desire for death.…”

Section: Discussionsupporting

confidence: 66%

Existential encounters: Nurses' descriptions of critical incidents in end-of-life cancer care

Browall

Henoch

Melin‐Johansson

et al. 2014

European Journal of Oncology Nursing

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a b s t r a c tNurses working with cancer patients in end of life care need to be prepared to encounter patients' psychosocial and spiritual distress. Aim: The aim of this study was to describe nurses' experiences of existential situations when caring for patients severely affected by cancer. Methods and sample: Nurses (registered and enrolled) from three urban in-patient hospices, an oncology clinic and a surgery clinic and a palliative homecare team were, prior to the start of a training program, invited to write down their experiences of a critical incident (CI), in which existential issues were featured. Results: Eighty-eight CIs were written by 83 nurses. The CIs were analyzed with qualitative content analysis. Two main themes were found: Encounters with existential pain experiences, which concerned facing death and facing losses; and Encountering experiences of hope, which concerned balancing honesty, and desire to live. Conclusions: This study points out that health care professionals need to be aware of patients' feelings of abandonment in exposed situations such as patients' feelings of existential loneliness. That there are some patients that express a desire to die and this makes the nurses feel uncomfortable and difficult to confront these occurrences and its therefore important to listen to patients' stories, regardless of care organization, in order to gain access to patients' inner existential needs.

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Section: Discussionsupporting

confidence: 66%

Existential encounters: Nurses' descriptions of critical incidents in end-of-life cancer care

Browall

Henoch

Melin‐Johansson

et al. 2014

European Journal of Oncology Nursing

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“…Previous studies show that patients with COPD can occasionally be exposed to stigmatizing attitudes from both society and within the healthcare system. [13,[23][24][25] Old people appreciate having their own housing, despite being sick and in need of support from others. [38,39] A previous study shows that even if they live in a retirement home, more than half of the elderly experience loneliness.…”

Section: Discussion Of the Resultsmentioning

confidence: 99%

“…These feelings were reinforced by other peoples' attitude that COPD is a self-inflicted disease. [13,[23][24][25] They felt that they were exposed to stigmatized attitudes from not only society in general but also healthcare professionals. [13] Positive aspects can be present when a person is suffering from a chronic illness.…”

Section: Introductionmentioning

confidence: 99%

Conceptions of everyday life among people living alone with chronic obstructive pulmonary disease

Lindqvist

Hanson

2016

Clinical Nursing Studies

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Objective: The aim of the study was to describe conceptions of everyday life among people living alone with chronic obstructive pulmonary disease (COPD). Background: COPD is a long-standing, chronic condition. As COPD progresses, it commonly affects all aspects of life. The disease creates a complex life situation for the person living alone, as they experience a wide range of difficulties and must adapt to the demands of their brittle body. They report more psychiatric distress than do those with other chronic diseases and appear to have an increased risk of depression. No previous studies have been conducted focusing on people's conceptions of everyday life when living alone with chronic obstructive pulmonary disease. Methods: A phenomenographic study was conducted in the south of Sweden with 15 women and 9 men who were living alone and suffering from different grades of COPD, ranging from mild to very severe. Data were collected through semi-structured interviews. Results: An overall descriptive category was found, when life changes direction, with three subcategories: COPD creates obstacles in daily life, when the body refuses and loneliness. The disease changed their lives dramatically and both physical and psychological strains appeared. Conclusions: The present study highlights the particular challenges facing people living alone with COPD. To live alone and manage a chronic disease such as COPD is more problematic, than living with a spouse, as they have the option to ask for help when needed and someone to talk to. New technology can reduce social isolation among older people and may act as a potential solution for people living alone with COPD. Through e-health, these people may have the opportunity to be more involved in their own care. To ensure greater security, information, participation, self-care and independence, person-centred care must be systematically implemented within health and social care systems in Sweden.

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“…Negative emotions are prevalent among individuals with COPD (45)(46)(47), to the extent that many feel unworthy of treatment, owing to their shame about being smokers and the stigma of COPD as a self-inflicted disease ORIGINAL RESEARCH (3,48,49). These negative emotions or feelings of inadequacy may cause some individuals to delay seeking help (50), thereby impairing self-management and further facilitating mounting symptom severity.…”

Section: Discussionmentioning

confidence: 99%

Emotional Intelligence: A Novel Outcome Associated with Wellbeing and Self-Management in Chronic Obstructive Pulmonary Disease

et al. 2016

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Rationale: Individuals with chronic obstructive pulmonary disease (COPD) often struggle with diminished autonomy and quality of life. Emotional factors play a crucial role in the well-being of patients with COPD; they are independently associated with critical outcomes such as dyspnea, quality of life, and health care use. Emotional intelligence is the capacity to understand and manage personal thoughts and feelings, as well as to positively influence interpersonal communication and social well-being. Emotional intelligence is a trainable skill that is extensively used in corporate business to improve well-being and performance, and it may also be significant in the self-management of emotions in patients with chronic disease. Importantly, research supports the proposition that emotional intelligence may be developed and learned at any time or any age, and training programs have been associated with increased well-being and better emotional regulation in patients with chronic disease. However, to date, no research has been done to investigate its value in patients with COPD.Objectives: We aimed to investigate the association between emotional intelligence and two meaningful outcomes in COPD: quality of life and self-management abilities.Methods: Participants with moderate to severe COPD completed a disease-specific quality of life tool (Chronic Respiratory Questionnaire), the Trait Emotional Intelligence Questionnaire, the Self-Management Abilities Scale, the modified Medical Research Council Dyspnea Scale, and pulmonary function tests, and also provided information about living conditions and self-reported health care use. Measurements and Main Results:A total of 310 patients with COPD (mean age, 69 6 9 yr; 40% female; mean FEV 1 %, 42.4 6 15.8) participated in the study. Emotional intelligence was significantly and independently associated with self-management abilities (P , 0.0001) and all domains of quality of life assessed (dyspnea, fatigue, emotions, and mastery; P , 0.0001) after adjusting for age, degree of bronchial obstruction, breathlessness, and other significant confounders.Conclusions: Emotional intelligence may represent an important attribute in COPD, as it is associated with self-management abilities and all domains of quality of life, regardless of age or disease severity. Emotional intelligence can be learned and may complement existing rehabilitation efforts. Attention to it may address the current gap that exists in the treatment of emotional components of COPD responsible for decreased quality of life and increased health care use.Keywords: chronic obstructive pulmonary disease; emotional intelligence; emotions; quality of life; self-management Author Contributions: R.P.B.: contributed to the conception and design of the work as well as the analysis and interpretation of data; J.L.K.: contributed to the analysis and interpretation of the data; and M.M.D. and B.A.-B.: contributed to the design of the study. All authors contributed to the drafting and revising of the manuscript and ga...

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Experience of anxiety among patients with severe COPD: A qualitative, in-depth interview study

Cited by 46 publications

References 31 publications

Existential encounters: Nurses' descriptions of critical incidents in end-of-life cancer care

Existential encounters: Nurses' descriptions of critical incidents in end-of-life cancer care

Conceptions of everyday life among people living alone with chronic obstructive pulmonary disease

Emotional Intelligence: A Novel Outcome Associated with Wellbeing and Self-Management in Chronic Obstructive Pulmonary Disease

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