Experience of at-homeness and homesickness in patients with Alzheimer's disease

Zingmark, Karin; Norberg, Astrid; Sandman, Per‐Olof

doi:10.1177/153331759300800302

Cited by 48 publications

(58 citation statements)

References 13 publications

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“…The focus is on the present (Rasmussen et al, 2000; Zingmark et al, 1993; Öhlén, 2000), and even the moment (Rasmussen et al, 2000), with the opportunity to metaphorically transcend time and space (Benzein, 1999; Öhlén, 2000). A person can live a decaying body and have severe illness, but still feel safe by arousing a zest for life (Öhlén et al, 2002) and being aware of their possibilities (Benzein, 1999).…”

Section: Resultsmentioning

confidence: 99%

Conceptual development of “at-homeness” despite illness and disease: A review

Öhlén

Ekman

Zingmark

et al. 2014

International Journal of Qualitative Studies on Health and Well

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Only one empirical study, the one by Zingmark, Norberg and Sandman published in 1995, explicitly focuses on at-homeness, the feeling of being metaphorically at-home, as a particular aspect of wellness. However, other studies reveal aspects of at-homeness, but if or how such aspects of at-homeness are related to each other is unclear. For this reason, the aim was to review Scandinavian nursing research related to at-homeness in the context of wellness–illness in severe and long-term conditions in order to take a step towards conceptual clarification of “at-homeness.” The review included interpretive studies related to severe and long-term illness conducted in Sweden: 10 original articles and 5 doctoral theses. “At-homeness” was found to be a contextually related meaning of wellness despite illness and disease embedded in the continuum of being metaphorically at-home and metaphorically homeless. This was characterized by three interrelated aspects and four processes: being safe through expanding–limiting experiences of illness and time, being connected through reunifying–detaching ways of relating, and being centred through recognition–non-recognition of oneself in the experience and others giving–withdrawing a place for oneself. This conceptualization is to be regarded as a step in conceptual clarification. Further empirical investigation and theoretical development of “at-homeness” are needed. The conceptualization will be a step of plausible significance for the evaluation of interventions aimed at enhancing wellness for people with severe long-term illness, such as the frail elderly, and people with chronic illness or palliative care needs.

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Section: Resultsmentioning

confidence: 99%

Conceptual development of “at-homeness” despite illness and disease: A review

Öhlén

Ekman

Zingmark

et al. 2014

International Journal of Qualitative Studies on Health and Well

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“…Normann, Asplund, and Norberg (1998), in a study among formal carers in nursing homes, have shown that episodes of lucidity in people with severe dementia took place when the carers were using person-centered communication and acting close to the patients. Lucidity happens in situations that Zingmark, Norberg, and Sandman (1993) described as follows: "Being one with an important other in a calm atmosphere creates the feeling of being at home" (p. 14). It is possible that the increased attentiveness of the elders experienced by the staff members was a result of the special attention that the staff members and the nurses gave the elders.…”

Section: Figure 1: Comprehensive Understanding Of Quality Aspects Of mentioning

confidence: 98%

Being Present in a Distant Room: Aspects of Teleconsultations with Older People in a Nursing Home

2004

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In a telecare project in Northern Sweden, videophones have been used to facilitate teleconsultations between nurses and elders at a nursing home. The authors designed this study to elucidate qualities in the communication in the professional encounter between nurses and elders assisted by nursing staff in the teleconsultations. They interviewed 2 registered nurses and 5 nursing staff members with long experience of using videophones in the telecare project, out of 20 staff members, and analyzed them using a phenomenological-hermeneutic method. In a comprehensive interpretation, teleconsultations could be understood as glimpses of the experience of being in the other's room with a feeling of providing nursing presence. This was attained when aspects such as familiarity, safety, transparency, and interest were promoted.

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“…As the foundation of nursing is the ontological concept of care that consists of a practical, a relational and a moral dimension (Martinsen, 1989), it is naturally desirable that the organization, on a practical level, offers a physical environment that is as homelike as possible (Zingmark et al, 1993), together with the non-under-resourced provision of staff (Duxbury & Whittington, 2005). However, when caring for persons with severe dementia and BPSD, special attention must be paid to the moral dimension.…”

Section: Focus On Organizationmentioning

confidence: 99%

“…Every resident had one or two nurses primarily responsible for his/her daily care. The central principles of philosophy of care were to facilitate daily living by providing for individual needs and social needs, as well as making the experience of care as dignified and homelike as possible (Zingmark et al, 1993).…”

Section: Contextmentioning

confidence: 99%

“…Traditional institutional care can contribute to behavioural disturbances such as confusion, wandering and difficulty adapting to surroundings. In order to provide an alternative to institutional care, small homelike settings, where people with dementia can experience ''at-homeness'' (Zingmark, Norberg, & Sandman, 1993), known as group dwellings (GD), were established in Sweden in the 1980s for people suffering from dementia.…”

Section: Introductionmentioning

confidence: 99%

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Swedish assistant nurses’ experiences of job satisfaction when caring for persons suffering from dementia and behavioural disturbances. An interview study

Kristiansen

Hellzén

Asplund

2006

International Journal of Qualitative Studies on Health and Well

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Job satisfaction is complex and is an important component in facilitating high quality nursing care. Behavioural and psychological symptoms of dementia (BPSD) can be clustered into one of five syndromes: psychosis, aggression, psychomotor agitation, depression and apathy, and comprise signs and symptoms of disturbed perception, thought content, mood or behaviour that frequently occur in patients with dementia. BPSD can cause tremendous distress both for the patients and for their caregivers and they have been seen as the most stressful aspect of care giving. Two registered nurses, 16 assistant nurses and two nursing assistants in Sweden talked about their job satisfaction when caring for residents suffering from dementia and BPSD. Thematic content analysis was conducted. The nurses' narrations indicate exposure, insufficiency, not being valued and doubt, as well as respect and importance and devotion towards the residents. One core theme was formulated: ''Job satisfaction as a process moving between breaking down and occasionally building up the working person''. A positive relationship with colleagues was the primary reason for nurses continuing to work at the group dwellings. The organization and resident behaviours were seen as very negative. Some nurses described insecurity in terms of how long they could continue to take rudeness, being spat at, being scratched or physically hit by residents, without ''hitting back''. In order to increase the well-being of the nurses, the pressure on them needs to be relieved. The development of leadership, education, supervision and reflection might be one possible way of reducing the prevalence of BPSD-related violence, enhancing job satisfaction and handling moral stress.

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Experience of at-homeness and homesickness in patients with Alzheimer's disease

Cited by 48 publications

References 13 publications

Conceptual development of “at-homeness” despite illness and disease: A review

Conceptual development of “at-homeness” despite illness and disease: A review

Being Present in a Distant Room: Aspects of Teleconsultations with Older People in a Nursing Home

Swedish assistant nurses’ experiences of job satisfaction when caring for persons suffering from dementia and behavioural disturbances. An interview study

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