Experience of Hong Kong patients awaiting kidney transplantation in mainland China

Leung, Sylvie S H; Shiu, Anne

doi:10.1111/j.1365-2702.2007.02070.x

Cited by 18 publications

(13 citation statements)

References 37 publications

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“…Eighteen studies including three unpublished theses were included in the review (table 1). [20][21][22][23][24][25][26][27][28][29][30][31][32][33][34][35][36][37] These studies used focus groups or in-depth semistructured interviews from 375 patients with chronic kidney disease who were treated by kidney transplant, peritoneal dialysis, haemodialysis, or palliative care. Eighty seven informal carers or family members of the patients were also included.…”

Section: Resultsmentioning

confidence: 99%

The views of patients and carers in treatment decision making for chronic kidney disease: systematic review and thematic synthesis of qualitative studies

Morton

Tong

Howard

et al. 2010

BMJ

453

478

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Objective To synthesise the views of patients and carers in decision making regarding treatment for chronic kidney disease, and to determine which factors influence those decisions.Design Systematic review of qualitative studies of decision making and choice for dialysis, transplantation, or palliative care, and thematic synthesis of qualitative studies.Data sources Medline, PsycINFO, CINAHL, Embase, social work abstracts, and digital theses (database inception to week 3 October 2008) to identify literature using qualitative methods (focus groups, interviews, or case studies).Review methods Thematic synthesis involved line by line coding of the findings of the primary studies and development of descriptive and analytical themes.Results 18 studies that reported the experiences of 375 patients and 87 carers were included. 14 studies focused on preferences for dialysis modality, three on transplantation, and one on palliative management. Four major themes were identified as being central to treatment choices: confronting mortality (choosing life or death, being a burden, living in limbo), lack of choice (medical decision, lack of information, constraints on resources), gaining knowledge of options (peer influence, timing of information), and weighing alternatives (maintaining lifestyle, family influences, maintaining the status quo).Conclusions The experiences of other patients greatly influenced the decision making of patients and carers. The problematic timing of information about treatment options and synchronous creation of vascular access seemed to predetermine haemodialysis and inhibit choice of other treatments, including palliative care. A preference to maintain the status quo may explain why patients often remain on their initial therapy.

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Section: Resultsmentioning

confidence: 99%

The views of patients and carers in treatment decision making for chronic kidney disease: systematic review and thematic synthesis of qualitative studies

Morton

Tong

Howard

et al. 2010

BMJ

453

478

View full text Add to dashboard Cite

show abstract

“…There are also contextual factors that may moderate adherence, either directly or through impacting informational, motivational, and behavioral skills. Patients commonly describe transplantation as a path back to a normal life; adherence and self‐management activities are also influenced by relationship challenges, financial worries and insurance coverage, work and family responsibilities, and emotional challenges 34,38,41,45,48,64,67,77,79,83 . Financial constraints may limit access to medications, particularly for recipients with high copayments 39,45,53 .…”

Section: Resultsmentioning

confidence: 99%

Describing barriers and facilitators for medication adherence and self‐management among kidney transplant recipients using the information‐motivation‐behavioral skills model

Ranahan

Visger

Kayler

2020

Clinical Transplantation

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Background We aimed to develop an adapted information‐motivation‐behavioral skills (IMB) model to describe barriers and facilitators for adherence and self‐management among kidney transplant recipients. Methods We conducted a review of literature about kidney transplant recipients' knowledge, perceptions, and experiences and organized our results using the IMB framework. We then conducted interviews with transplant recipients and transplant providers to supplement our literature search. Results Our proposed adaption of the IMB model describes informational, motivational, and behavioral skills barriers and facilitators for medication adherence and self‐management among kidney transplant recipients. Moderating factors influence not only behavioral skills, but also recipients' understanding of information and motivation to adhere and practice self‐management. Conclusion By using the IMB model to organize current research and interviews with recipients and providers, we developed an adapted model for medication adherence and self‐management. Results are promising to impact future educational and behavioral interventions for kidney transplant recipients.

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“…Most patients traveled for kidney transplants, the majority of which were living unrelated . Patients also traveled for liver transplants .…”

Section: Resultsmentioning

confidence: 99%

On Patients Who Purchase Organ Transplants Abroad

Ambagtsheer

Jong

Bramer

et al. 2016

American Journal of Transplantation

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The international transplant community portrays organ trade as a growing and serious crime involving large numbers of traveling patients who purchase organs. We present a systematic review about the published number of patients who purchased organs. With this information, we discuss whether the scientific literature reflects a substantial practice of organ purchase. Between 2000 and 2015, 86 studies were published. Seventy-six of these presented patients who traveled and 42 stated that the transplants were commercial. Only 11 studies reported that patients paid, and eight described to what or whom patients paid. In total, during a period of 42 years, 6002 patients have been reported to travel for transplantation. Of these, only 1238 were reported to have paid for their transplants. An additional unknown number of patients paid for their transplants in their native countries. We conclude that the scientific literature does not reflect a large number of patients buying organs. Organ purchases were more often assumed than determined. A reporting code for transplant professionals to report organ trafficking networks is a potential strategy to collect and quantify cases.

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Experience of Hong Kong patients awaiting kidney transplantation in mainland China

Cited by 18 publications

References 37 publications

The views of patients and carers in treatment decision making for chronic kidney disease: systematic review and thematic synthesis of qualitative studies

The views of patients and carers in treatment decision making for chronic kidney disease: systematic review and thematic synthesis of qualitative studies

Describing barriers and facilitators for medication adherence and self‐management among kidney transplant recipients using the information‐motivation‐behavioral skills model

On Patients Who Purchase Organ Transplants Abroad

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