Experience of palliative care for patients with head and neck cancer through the eyes of next of kin

Ledeboer, Quirine C. P.; Offerman, Marinella P. J.; Velden, Lilly–Ann van der; Boer, Maarten F. de; Pruyn, J.F.A.

doi:10.1002/hed.20733

Cited by 26 publications

(34 citation statements)

References 9 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Furthermore, the patients themselves perceive this burden of care. In a recent survey of 386 head and neck cancer patients, Precious et al [36] identified nearly half of patients having family members as carers, with one third feeling that their care was a considerable burden and 'very hard' for their careers [37]. The palliative care team should be aware of the limitations of care that families can provide and the impact of this care giving upon their lives.…”

Section: Involvement Of Family and Carersmentioning

confidence: 99%

“…The surgeon can also influence the patient perception of psychosocial support. Ledeboer et al [13] reported a positive relationship between a single surgeon attending to patient care and higher levels of psychosocial support [37]. They also reported that communication between the surgeon, MDT and patient/family was poor and an MDT logbook to improve continuity of care resulted in a reduction of psychological problems.…”

Section: Involvement Of Family and Carersmentioning

confidence: 99%

See 1 more Smart Citation

The Impact of the Multi-Disciplinary Team Approach In Managing Palliative Head and Neck Cancer Patients: A Review

Payne¹

2017

BJSTR

View full text Add to dashboard Cite

Section: Involvement Of Family and Carersmentioning

confidence: 99%

Section: Involvement Of Family and Carersmentioning

confidence: 99%

The Impact of the Multi-Disciplinary Team Approach In Managing Palliative Head and Neck Cancer Patients: A Review

Payne¹

2017

BJSTR

View full text Add to dashboard Cite

“…2,3 In addition, telephone surveys of family members of deceased head and neck cancer patients are feasible and provide valuable data. 4 A recently validated survey instrument has been designed to assess the quality of treatment at the end of life based upon the responses of family members of deceased cancer patients. This Veterans Affairs (VA) initiative is entitled the PROMISE project (Performance Reporting of Outcome Measures to Improve the Standard of care at End-of-life).…”

Section: Introductionmentioning

confidence: 99%

End of Life Care among Head and Neck Cancer Patients

Yang¹,

Prince²,

Taylor³

2010

Otolaryngol.--head neck surg.

View full text Add to dashboard Cite

Objective-This study is designed to (1) determine the perceived quality of care received by patients with head and neck cancer at the end of their lives, in order to (2) better anticipate and improve upon the experiences of future patients.Study Design-Cross-sectional survey.Setting-Single-institution, academic tertiary care medical center.Subjects and Methods-A validated survey instrument, the Family Assessment of Treatment at the End of life (FATE), was administered to families of patients who died of head and neck cancer (n=58). The primary outcome was the overall FATE score. Independent variables included clinical characteristics, treatments received and the care provided at the time of death.Results-Overall FATE scores and the domains assessing management of symptoms and care at the time of death did not vary by disease status (logoregional vs. distant metastasis) at the end of life (p=.989). The location of death in the home or in hospice (vs. hospital) significantly improves scores in all three categories (p=.023). Involvement of a palliative care team improved the care at the time of death (p<.001), and palliative treatments (radiation and/or chemotherapy) improved scores in management of symptoms and care at the time of death (p=.011, p=.017). Conclusion-The FATE survey is a useful measure of the end of life experience of head and neck cancer patients. Palliative treatments of head and neck cancer, death outside of the hospital and palliative care team involvement all improve the end of life experience in this population. KeywordsHead and neck cancer; quality of life; end of life care

show abstract

“…As secreções em doentes traqueostomizados comprometem a comunicação verbal causando disfunção bucal e sofrimento (Lovel, 2000;Wiseman, 2000;Bjordal et al, 2001;Ledeboer et al, 2008).…”

Section: Princípios Dos Cuidados Paliativosunclassified

“…Vários estudos mostram forte relação entre a associação do álcool e do tabaco com o câncer de laringe e cavidade bucal (Schlecht et al, 1999;Dobrossy, 2005), o que pode aumentar em 15 vezes o risco para estas doenças (Zender, Petruzzelli, 2005 físicos e legais, e por si só é considerado um problema de saúde pública (Reinaldo, Pillon, 2008). Isto torna os doentes com câncer de cabeça e pescoço complexos no seu cuidado e por isso necessitam de abordagem multidisciplinar e multidimensional (Ledeboer et al, 2008).…”

Section: Caracterização Da Amostra: Condição Clínica Dos Doentesunclassified

Avaliação da efetividade de um protocolo de cuidados odontológicos no alívio da dor, sintomas bucais e melhora da qualidade de vida em pacientes com câncer de cabeça e pescoço em cuidados paliativos: ensaio clínico não-controlado

Jales¹

View full text Add to dashboard Cite

AGRADECIMENTOSvi À Deus por me iluminar e me guiar.Aos meus pais Vilmar e Rosana que me deram a vida e são exemplos de força, caráter e determinação, que me inspiram para eu sempre seguir em frente.Ao Levi, Guilherme e a Beatriz, pelo companheirismo, pela compreensão nos momentos de ausência, e força nas dificuldades. Sempre me renovando com seu amor.Aos meus irmãos Victor e Vilmar Segundo pelo estímulo e carinho.Aos meus sogros Vilma e Levi Jales pelo carinho eterno, apoio constante e incondicional em todos os aspectos, especialmente no cuidado aos meus filhos.Ao Dr. Hélson e à Dra. Ângela Paiva que despertaram meu interesse pela Dor Orofacial e me guiaram para que eu chegasse até aqui.Ao Dr. José Tadeu Tesseroli de Siqueira, pesquisador visionário e entusiasta, por enxergar antes de muitos a importância dos cuidados paliativos em odontologia, idealizando este estudo. Agradeço pela oportunidade de realiza-lo, pela dedicação de tantas horas de discussão, pela paciência com que sempre me orientou e pelo incentivo constante. À Dra. Maria Paula Siqueira de Melo Peres pelo incansável apoio e compreensão, tornou possível o que foi mais que um sonho.

show abstract

Experience of palliative care for patients with head and neck cancer through the eyes of next of kin

Abstract: Not all aspects of palliative care for head and neck patients are sufficient, and improvements are, in our setting, necessary, specifically within the psychosocial field. This supports the initiation of our Expert Center to improve quality of life in the palliative stage.

Cited by 26 publications

References 9 publications

The Impact of the Multi-Disciplinary Team Approach In Managing Palliative Head and Neck Cancer Patients: A Review

The Impact of the Multi-Disciplinary Team Approach In Managing Palliative Head and Neck Cancer Patients: A Review

End of Life Care among Head and Neck Cancer Patients

Avaliação da efetividade de um protocolo de cuidados odontológicos no alívio da dor, sintomas bucais e melhora da qualidade de vida em pacientes com câncer de cabeça e pescoço em cuidados paliativos: ensaio clínico não-controlado

Contact Info

Product

Resources

About