Experience of recovery and outcome following traumatic brain injury: a metasynthesis of qualitative research

Levack, William; Kayes, Nicola; Fadyl, Joanna

doi:10.3109/09638281003775394

Cited by 202 publications

(168 citation statements)

References 51 publications

(132 reference statements)

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“…[7,49,50] This experience may be directly related to injury-related impairments, including experience of "loss of connection between one's mind and body", [51] which negatively impact on an individual's sense of agency. [8,39,42,46] These findings point to the potential role of decision-making participation in providing a means to overcome the loss of autonomy described by adults with TBI.…”

Section: Exploring Decision-making Participation In the Context Of Thmentioning

confidence: 99%

“I’ve never been a yes person”: Decision-making participation and self-conceptualization after severe traumatic brain injury

Knox

Douglas

Bigby

2016

Disability and Rehabilitation

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Purpose: Although adults who sustain a severe traumatic brain injury (TBI) require support to make decisions in their lives, little is known about their experience of this process. The aim of this study was to explore how participation in decision making contributes to self-conceptualization in adults with severe TBI. Method: We used constructivist grounded theory methods. Data included 20 in-depth interviews with adults with severe TBI. Through a process of constant comparison, analysis involved open and focused coding until clear categories emerged and data saturation was achieved. Results: Self-conceptualization emerged as a complex and multifaceted process, as individuals with TBI aimed to reestablish a sense of autonomy. We describe a recursive relationship in which decision-making participation assists the dynamic construction of self, and self-concept contributes to the experience of making decisions. The role of an individual's social support network in acting as a bridge between participation and self-conceptualization is presented. Conclusions: Findings emphasize that contributing to decisions about one's own goals across a range of life areas can reinforce a positive self-concept. It is vital that supporters understand that participation in decision making provides a pathway to conceptualizing self and aim to maximize the person's participation in the decision-making process. ä IMPLICATIONS FOR REHABILITATIONPrevious research has identified that the experience of sustaining TBI has a significant impact on a person's conceptualization of self. This study identified that decision-making experiences play an important role in the ongoing process of self-conceptualization after injury. Decision-making experiences can reinforce a person's self-concept or lead them to revise (positively or negatively) their sense of self. By maximizing the person's decision-making participation, those around them can support them to develop positive self-attributes and contribute to shaping their future goals. ARTICLE HISTORY

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Section: Exploring Decision-making Participation In the Context Of Thmentioning

confidence: 99%

“I’ve never been a yes person”: Decision-making participation and self-conceptualization after severe traumatic brain injury

Knox

Douglas

Bigby

2016

Disability and Rehabilitation

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“…In addition, patients report long-term emotional problems, such as anxiety and depression (4). Many survivors find themselves unable to return to their pre-injury lives, causing feelings of loss of "self" (11) and reduced quality of life (12).…”

Section: Introductionmentioning

confidence: 99%

Health-related Quality of Life 12 months after severe traumatic brain injury: A prospective nationwide cohort study

Søberg¹,

Røe²,

Anke³

et al. 2013

J Rehabil Med

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Objective: To assess health-related quality of life in individuals with severe traumatic brain injury at 12 months postinjury, applying the Quality of Life after Brain Injury (QO-LIBRI) instrument, and to study the relationship between injury-related factors, post-injury functioning and healthrelated quality of life. Design/subjects: The study is part of a prospective, Norwegian multicentre study of adults (≥ 16 years old) with severe traumatic brain injury, as defined by a Glasgow Coma Scale score of 3-8 during the first 24 h post-injury. A total of 126 patients were included. Methods: Socio-demographic data and injury severity variables were collected. Functioning at 3 and 12 months was assessed with the Glasgow Outcome Scale Extended (GOSE), the Functional Independence Measure (FIM), the Rivermead Post-concussion Questionnaire (RPQ), and the Hospital Anxiety and Depression Scale (HADS). Hierarchical regression analysis was applied.

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“…Azulay and Mott (2016) implemented a Mindfulness Attention Program and indicated significant improvements in DERS scores for individuals with mixed brain injuries [43]. Mindfulness programs may target the disconnect between the mind and body, which is a common theme for individuals with neurological impairments [44,19]. The current study presented qualitative data which described an increased mind-body connection for three participants following a yoga intervention.…”

Section: Emotional Regulationmentioning

confidence: 99%

Yoga after Traumatic Brain Injury: Changes in Emotional Regulation and Health-Related Quality of Life in a Case-Study

OTR¹

2017

IJCAM

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Purpose: The purpose of this study was to analyze changes in emotional regulation and health-related quality of life (HRQOL) following a yoga intervention for three participants with traumatic brain injury (TBI). Yoga was utilized as a modality to improve HRQOL and emotional regulation.Methods: A mixed method design was used to analyze changes in emotional regulation and HRQOL. Participants completed an eight-week yoga intervention and assessments were completed before and after the intervention. Outcome measures included the Difficulty in Emotional Regulation Scale (DERS) and Quality of Life after Brain Injury Scale (QOLIBRI, both are reliable and valid after TBI. The Change in score (percent change) were calculated for data from both assessments. Semi-structured interviews were completed, data were transcribed, and qualitative data were analyzed with a focus on emotional regulation and HRQOL.Results: On average, the three participants had a 16% improvement in DERS scores and 6% improvement in QOLIBRI scores following the yoga intervention. Analysis of the qualitative data indicate that participants identified improvements related to emotional regulation in the mind-body connection, peaceful and calm feelings, concentration and focus, and self-control. In relation to HRQOL participants noted social changes, physical changes leading to life changes, confidence to do things and self-development. Conclusion:Yoga is a potential intervention to address emotional regulation and HRQOL for individuals with chronic TBI. Emotional regulation and HRQOL are two important factors affected post-TBI that through this study were impacted by yoga as a focused mind-body intervention.

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Experience of recovery and outcome following traumatic brain injury: a metasynthesis of qualitative research

Cited by 202 publications

References 51 publications

“I’ve never been a yes person”: Decision-making participation and self-conceptualization after severe traumatic brain injury

“I’ve never been a yes person”: Decision-making participation and self-conceptualization after severe traumatic brain injury

Health-related Quality of Life 12 months after severe traumatic brain injury: A prospective nationwide cohort study

Yoga after Traumatic Brain Injury: Changes in Emotional Regulation and Health-Related Quality of Life in a Case-Study

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