Experiences and coping strategies of oncology patients undergoing oral chemotherapy: First steps of a grounded theory study

Gassmann, Catherine; Kolbe, Nina; Brenner, Andrea

doi:10.1016/j.ejon.2016.06.001

Cited by 13 publications

(15 citation statements)

References 33 publications

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“…Staying in the home after the beginning of treatment is a consensus in patients' discourses, which describe an empty daily life, and try to rebuild it with activities that occupy their time and their thoughts. These findings corroborate studies with patients undergoing antineoplastic treatment that demonstrated the limits that are installed in the life of these subjects, mainly due to physical incapacity and exhaustion, which prevents them from performing daily tasks (17)(18) .…”

Section: Discussionsupporting

confidence: 88%

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Rebuilding subjectivity from the experience of cancer and its treatment

et al. 2019

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Objective: To analyze the social representations of chemotherapy and the experiences built by people with cancer. Method: Descriptive study with a qualitative approach. Data collection occurred between August and December 2016, through interviews with 29 cancer patients undergoing chemotherapy at an institution in the northern part of Paraná State, and the Thematic-Categorical Content Analysis. Results: Four categories have emerged denoting attitudes, feelings and experiences associated with chemotherapy and the need for reconstruction of daily life, permeated by the distancing of social life and work. At the same time, we note the close ties with friends and family, as well as adaptive strategies, new meanings of experiences lived and life priority setting. Final considerations: Cancer represents an interruption of plans and dreams, modifying everyday tasks and generating new experiences. This process facilitates giving a new meaning to the past and the reconstruction of subjectivity.

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Section: Discussionsupporting

confidence: 88%

“…Among those interviewed, 27 never had cancer recurrence, and 21 had no metastases. Most patients (17) underwent adjuvant antineoplastic therapy, in other words, performed after tumor resections, in order to increase survival.…”

Section: Resultsmentioning

confidence: 99%

Rebuilding subjectivity from the experience of cancer and its treatment

et al. 2019

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“…The priority is on wanting to feel well from their perspective, getting on with life and having hope [27,30,40,54]. Patients focus on practical barriers to everyday living such as side effects, disruption to routines, and the practicalities of medication use, such as accessing the medication and service issues, packaging, and administering the medication [11,16,28]. In order to learn about their disease and medications, they seek information that is meaningful to them and is inclusive of many sources, including their own experience [19,24,34,48,69].…”

Section: Attributesmentioning

confidence: 99%

“…Family and friends are often a more pragmatic source of information than healthcare providers that are not as easily accessible physically and whose language may also not be easy to comprehend [13]. Furthermore, their personal evaluation of diagnosis, symptoms, effectiveness, and side effects is often practical and based on tools available to them, such as ability to perform daily activities, not feeling sick, or solving a problem to the physical body [10,21,28,29,42,53]. If they feel the same as before, medications may be perceived as irrelevant or not bad for them in any way [44,68].…”

Section: Attributesmentioning

confidence: 99%

“…Patients may have an emotional response to illness or medications that can be strong at first but may lessen over time with acceptance [34,50,67]. Adaptations to daily life and routines, learning to think of medicines and health in a new way, and learning to relate to and cope with side effects and feelings of insecurity and inconvenience [25,28,40,60] are all active processes that the medication experience engenders [44]. Even someone resisting medications, denying the need for medications, or who is a passive consumer of healthcare and medicine is actively evaluating reasons to take the medication, or not, based upon their specific situation [65].…”

Section: Attributesmentioning

confidence: 99%

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The Medication Experience: A Concept Analysis

et al. 2020

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This is a concept analysis of the medication experience with a focus on how it applies to the pharmaceutical care practice framework used by pharmacist practitioners. The medication experience is a vital component of pharmaceutical care practice and of patient-centered care. Although the experience of taking medication has been studied across disciplines for decades, a concept analysis of the medication experience is lacking. Rodgers’ evolutionary concept analysis method was utilized. Ovid Medline, CINAHL, PsycINFO, Sociological Abstracts and Google Scholar databases, references and hand searches were used to compile an international dataset of 66 papers published from 1982 to 2020. As a result of the available literature, the medication experience is defined as one of ambivalence and vulnerability in which the patient is actively engaged in an ongoing process or negotiation, which is pragmatic to the ways in which they live and experience life, contextualized and nuanced within the social construction of their individual realities. The concept of medication experience is an important addition to the scientific literature. The definition of medication experience from the perspective of the patient will help to better explain the concept for future research and theory development to move the discipline of pharmaceutical care practice forward.

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