Experiences and management of fatigue in everyday life among adult patients living with heart failure

Schjoedt, Inge; Sommer, Iris E.; Bjerrum, Merete

doi:10.11124/jbisrir-2016-2441

Cited by 26 publications

(27 citation statements)

References 46 publications

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“…However, no males were represented in the sample and the NYHA classification level was not adjudicated through provider or records review, thus it questions if the sample was representative of class III and IV patients, as the authors described. Recently, Schjoedt et al (2016) reported Hagglund et al's findings along with findings from four other studies in their systematic review of qualitative data on fatigue. The five studies had a combined sample of 61 with an appropriately spread for gender and age for the heart failure population.…”

Section: Introductionmentioning

confidence: 93%

Patients experience of fatigue in advanced heart failure

et al. 2019

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Aims: To explore the experience of fatigue and living with fatigue in persons with advanced heart failure. Design: Single-setting, qualitative interview study. Methods: In-depth in-person interviews were conducted with participants from November 2012 to June 2013. Participant responses to open-ended questions were analysed using thematic content analysis. Inclusion criteria were: 18 years and older, diagnosis of New York Heart Association class III-IV heart failure with reduced ejection fraction by a consultant cardiologist, and able to participate in conversational-style interviews in their own language. Major exclusion criteria was cognitive deficit identified by Abbreviated Mental Test Score. Twenty-three adults participated in the study. Results: Participants (age 72.5 ± 9.5 years, 10/23 female, 17/23 New York Heart Association class III, and 6/23 class IV) identified experiencing fatigue almost daily with over 14/23 reporting it as their worst symptom or combined worst symptom with breathlessness. 9/23 identified fatigue as their second-worst symptom. Three key themes were identified: fatigue as a physical barrier, psychological response to fatigue, and living with fatigue as a part of daily life. The three themes however combine to influence a patients well-being and we suggest need to be acknowledged when planning self-care management. Conclusion: As heart failure progresses fatigue influences patients' daily life and may negatively affect self-care abilities however patients strive to adapt to these limitations. Understanding the patient experience of fatigue and living with fatigue is important to optimize health management strategies. Impact:  What problem did the study address? How fatigue is experienced by patients with heart failure as their condition progresses. This is currently unknown  What were the main findings? 14/23 patients reported fatigue as their worse symptom Patients reported feeling fatigue every day Fatigue affects physical and psychological health in patients with advanced heart failure  Where and on whom will the research have impact? This research will add to the evidence pertaining to patients experience of fatigue in advanced heart failure. The pattern of fatigue presented could inform patient centred care, including selfcare management strategies for patients in this stage of disease progression. Routine monitoring of fatigue must include assessing patient perceptions which may lead to timely recognition of progression and appropriate action taken to improve patient outcomes.

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Section: Introductionmentioning

confidence: 93%

Patients experience of fatigue in advanced heart failure

et al. 2019

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“…Fatigue is associated with restricted physical ability [38] and along with dyspnea and increased NYHA classification is associated with diminished QoL [40]. Schjoedt et al [41] reported that the unpredictability and the fluctuation of fatigue are associated with several limitations in daily activities and increased dependency on others. Patients try to maintain balance between adjusting to and struggling against fatigue.…”

Section: Discussionmentioning

confidence: 99%

Hospitalized patients with heart failure: the impact of anxiety, fatigue, and therapy adherence on quality of life

Polikandrioti

Κoutelekos

Panoutsopoulos

et al. 2019

Arch Med Sci Atheroscler Dis

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Introduction: Heart failure (HF) is a major global health problem associated with increased morbidity and mortality and reduced quality of life (QoL). The aim of the study was to assess the impact of anxiety, fatigue and adherence to therapeutic guidelines on HF patients' QoL. Material and methods: A hundred and twenty hospitalized HF patients were enrolled in the study. Data collection was performed by completion of the Minnesota Living With Heart Failure Questionnaire (MLHFQ), the Greek version of the Modified Fatigue Impact Scale (MFIS-Greek), the Zung Self-Rating Anxiety Scale (SAS) and a questionnaire that measured adherence to therapeutic guidelines. Results: Data analysis showed moderate levels of anxiety and high levels of adherence to therapeutic guidelines as well as moderate to large effects of HF on patients' fatigue and QoL. A statistically significant positive linear association was observed between anxiety and QoL (rho > 0.6) as well as fatigue and QoL (rho > 0.3). An increase in the anxiety or fatigue score indicated an increase also in the QoL score, meaning that the more anxiety and fatigue a patient felt the worse the QoL also was. Moreover, a statistically significant negative linear association was observed between adherence to therapeutic guidelines and QoL (rho <-0.2). An increase in adherence score indicated a decrease in QoL score, meaning that the more adherent a patient was the better was the QoL. Conclusions: The present findings suggest that QoL may be improved when adherence to therapy is increased and fatigue and anxiety are alleviated.

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“…One systematic review found decreased physical capacity, unpredictability, and varying intensity which where central features of fatigue experiences, which cause limitations in performing daily and social activities, increased dependency of others and loss of self‐esteem, identity and intellectual function in patients with CHF. Patients’ management of fatigue and its consequences was a process involving activities to handle fatigue (Schjoedt, Sommer, & Bjerrum, ). It was shown in another study that managing disease behaviour and discomforts of illness symptoms patients with CHF may be helped to improve their functional status (Herr et al., ).…”

Section: Introductionmentioning

confidence: 99%

“…Patients' management of fatigue and its consequences was a process involving activities to handle fatigue (Schjoedt, Sommer, & Bjerrum, 2016). It was shown in another study that managing disease behaviour and discomforts of illness symptoms patients with CHF may be Why is this research needed?…”

Section: Introductionmentioning

confidence: 99%

A complex intervention of self‐management for patients with COPD or CHF in primary care improved performance and satisfaction with regard to own selected activities; A longitudinal follow‐up

Zakrisson

Arne

Hasselgren

et al. 2018

Journal of Advanced Nursing

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Aim To test a self‐management intervention in primary health care (PHC) for patients with chronic obstructive pulmonary disease (COPD) or chronic heart failure (CHF) on self‐efficacy, symptoms, functioning, and health. Background Patients with COPD or CHF experience often the same symptoms such as shortness of breath, cough, lack of energy, dry mouth, numbness or tingling in hands and feet, pain and sleeping problems. Design A multicentre randomized control trial. Method The trial was conducted with one intervention group (N = 73) and one control group (N = 77). The trial was performed from September 2013–September 2015 at nine PHC centres in three county councils in Sweden. At baseline patients with COPD and CHF experienced any symptom. Follow‐ups were performed after 3 months and 1 year. The intervention was structured on Bandura's theory of self‐efficacy in six meetings and individual action plans based on personal problems were performed and discussed. Results At baseline, there were no differences between the groups except for SF‐36 social function. After 3 months, the intervention group improved performance and satisfaction with regard to own selected activities, otherwise no differences were found. Conclusion When designing a program, the patient's own difficulties must be taken into consideration if person‐centred care is to be established. It is feasible to include both patients with COPD and CHF in the same group in PHC. Healthcare professionals need supervision in pedagogics during intervention in self‐management.

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Experiences and management of fatigue in everyday life among adult patients living with heart failure

Cited by 26 publications

References 46 publications

Patients experience of fatigue in advanced heart failure

Patients experience of fatigue in advanced heart failure

Hospitalized patients with heart failure: the impact of anxiety, fatigue, and therapy adherence on quality of life

A complex intervention of self‐management for patients with COPD or CHF in primary care improved performance and satisfaction with regard to own selected activities; A longitudinal follow‐up

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