Experiences and own management regarding residual symptoms among people with coeliac disease

Jacobsson, Lisa Ring; Milberg, Anna; Hjelm, Katarina; Friedrichsen, Maria

doi:10.1016/j.apnr.2017.02.009

Cited by 6 publications

(20 citation statements)

References 30 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The message people diagnosed with CD get from healthcare providers is that, ‘if you follow a strict GFD, the symptoms you experience will disappear’. However, it is not unusual that people diagnosed with CD still experience various symptoms in spite of a GDF . The participants in the present study described the core belief to be a struggle to regain a bodily balance.…”

Section: Discussionmentioning

confidence: 64%

“…Also, people with other chronic gastrointestinal conditions, such as irritable bowel syndrome (IBS) or inflammatory bowel disease (IBD), describe how subtle this balance can be, and how they try to find and maintain a balance . One way to find this bodily balance was to seek out, or experiment with, different diets in order to accomplish a balance, always trying to find the missing piece of the puzzle that could lead to improved well‐being . A common belief was that perceived continuing illness, despite a GFD, was linked to the CD and not to anything else, as the symptoms they now experienced felt the same as when prior to starting a GFD, only less severe.…”

Section: Discussionmentioning

confidence: 99%

“…A descriptive qualitative study with content analysis based on semi‐structured interviews with 22 community‐dwelling people diagnosed with CD . The interviews spring from a study where the aim was to explore experiences and management concerning residual symptoms despite following a gluten‐free diet in people with coeliac disease . These results aroused the need to explore their illness beliefs.…”

Section: Methodsmentioning

confidence: 99%

“…However, they often perceive continuing illness of various kinds . A chronic condition influences a person’s daily life, and the illness beliefs model has been used to analyse illness beliefs in people with various chronic diseases . This framework might help nurses to understand continuing problems that people with CD suffer from, in order to facilitate and support their well‐being.…”

Section: Introductionmentioning

confidence: 99%

“…This diet is considered to restore the intestinal damage and, in that way, to make symptoms disappear . However, many people with treated CD suffer from continuing illness of varying kinds , and both gastrointestinal symptoms extra‐intestinal symptoms and reduced psychological well‐being have been reported. Why these problems continue is unknown.…”

Section: Introductionmentioning

confidence: 99%

See 4 more Smart Citations

Illness beliefs among people living with treated coeliac disease

Jacobsson

Stark

Eckerblad

2019

Scandinavian Caring Sciences

View full text Add to dashboard Cite

Background Evidence suggests that many people with coeliac disease (CD) suffer from continuing illness despite following a strict gluten‐free diet. Beliefs affect how people experience and manage their residual symptoms. Illness beliefs therefore provide a useful framework for understanding these problems. Aim To explore illness beliefs among people living with treated coeliac disease. Methods The design was qualitative descriptive with semi‐structured interviews including 22 adults with coeliac disease. Data were analysed with qualitative content analysis. The study follows the ethical guidelines given in the Declaration of Helsinki and was approved by the local ethical committee (DN 2014/92‐31). Finding The source of experienced continuing illness, despite following a gluten‐free diet, was believed to be a bodily imbalance affecting participants’ lives in many ways, both private and in contact with the health services. Due to a feeling of exhaustion and lack of energy, this imbalance had prevented them from participating in school, work life and social activities. Since the participants had often been ill for many years before diagnosis, they believed their intestine to be so damaged that it was no longer possible to achieve a bodily balance. Conclusions Illness beliefs in people diagnosed and treated for CD showed that they explained various continuing conditions, physiological and/or psychological, by a bodily imbalance, originally caused by the CD. By uncovering these illness beliefs, the possibility of finding an adequate and facilitative strategy grows stronger.

show abstract

Section: Discussionmentioning

confidence: 64%

Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

Illness beliefs among people living with treated coeliac disease

Jacobsson

Stark

Eckerblad

2019

Scandinavian Caring Sciences

View full text Add to dashboard Cite

show abstract

The psychosocial experiences of adults diagnosed with coeliac disease: a qualitative evidence synthesis

Rose,

Law,

Howard

2023

Qual Life Res

View full text Add to dashboard Cite

Background Coeliac disease is a chronic autoimmune condition associated with intestinal and extraintestinal symptoms. Coeliac Disease is managed through strict adherence to a gluten-free diet, which, though usually effective, is challenging to maintain. This review synthesised qualitative research on the psychosocial experiences of adults living with coeliac disease. Methods Keyword searches were conducted of the academic databases CINAHL, EMBASE, MEDLINE, PsychINFO, SCOPUS and Web of Science for articles published (2005–2021), followed by forward and backward searches. Thematic synthesis of included articles was carried out on sections reporting findings or results, discussion, conclusions, and supporting data. The inductive thematic synthesis identified descriptive and analytical themes from the included studies. Results Of 1284 records identified, 17 articles from 15 original studies were included in the thematic synthesis. The majority of studies were from Europe (76%), with the remainder from North America and Australia. Data represented 371 adults with coeliac disease (72% female; 17–85 years old, diagnosed < 1–42 years ago) across eight countries. Findings identified six analytical themes relating to the psychosocial experience of coeliac disease: ‘Living with ongoing risk’; ‘Losing more than gluten’; ‘A changed identity’; ‘A changed relationship with food’; ‘The gluten-free diet creates a multifaceted burden’; and ‘Learning how to live well with Coeliac Disease’. Conclusions Coeliac disease changes adults’ psychosocial experiences. Adaptation involves ongoing learning, and development of psychological acceptance facilitates adjustment. Increased public education about coeliac disease may reduce stigma and risk. Psychosocial assessment and support could improve quality of life post-diagnosis.

show abstract

Evaluation of Daily Lives of Children and Adolescents with Celiac Disease and Nursing Approaches

Baş

Çavuşoğlu

2020

Gastroenterology Nursing

View full text Add to dashboard Cite

The incidence of celiac disease has been increasing in recent years. Celiac disease is an autoimmune enteropathy that emerges mostly in the childhood period. This disorder is a chronic condition of the small intestine due to gluten intake in individuals with genetic predisposition. In the treatment of celiac disease, gluten-free diet therapy is applied. However, the adaptation process to the diet may create difficulties for patients. Compliance with diet is much more difficult among patients with celiac disease in childhood and adolescence than in adult patients. Children and adolescents face distinct difficulties in their homes, at school, and in their social lives. Besides following dietary treatment, children and adolescents living with celiac disease need peer support to manage their daily routines. In this article, we aimed to discuss the problems experienced by children and adolescents living with celiac disease and nursing approaches to these problems.

show abstract

Experiences and own management regarding residual symptoms among people with coeliac disease

Cited by 6 publications

References 30 publications

Illness beliefs among people living with treated coeliac disease

Illness beliefs among people living with treated coeliac disease

The psychosocial experiences of adults diagnosed with coeliac disease: a qualitative evidence synthesis

Evaluation of Daily Lives of Children and Adolescents with Celiac Disease and Nursing Approaches

Contact Info

Product

Resources

About