Experiences and Perceptions of Culturally and Linguistically Diverse Family Carers of People With Dementia

Boughtwood, Desiree; Adams, Jon; Shanley, Christopher; Santalucia, Yvonne; Kyriazopoulos, Helena

doi:10.1177/1533317511411908

Cited by 33 publications

(56 citation statements)

References 21 publications

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“…Our findings suggest that conflicts between such traditionally ascribed roles and its expectations could bring resentment and dissatisfaction among family members. As disagreement in caregiving role among family members can lead to adverse health outcomes in caregivers (Boughtwood, Adams, Shanley, Santalucia, & Kyriazopoulos, 2012;Casado & Sacco, 2012), in working with Korean Americans, it is important that health care professionals assess family relationships, especially the role expectations of each family member in the caregiving situation, and address role conflicts.…”

Section: Discussionmentioning

confidence: 99%

The Experience of Family Caregivers of Older Korean Americans With Dementia Symptoms

Casado

Lee

Hong

et al. 2015

Clinical Gerontologist

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Despite the rapid growth of the older ethnic minority population, knowledge about dementia care for this population is limited. This study examined the experience of dementia caregiving among Korean Americans. We conducted four focus groups with 23 family caregivers of older Korean Americans with dementia symptoms and identified eight themes: (a) struggling and overwhelmed; (b) keeping the cultural roles and responsibility; (c) doing it by themselves; (d) family as a source of stress; (e) limited knowledge and misconceptions; (f) learning as they go; (g) undiagnosed dementia and misunderstandings about medical care; and (h) barriers to use of services and need for culturally responsive services. The findings underscore that Korean Americans need dementia caregiver programs that are linguistically and culturally responsive.

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Section: Discussionmentioning

confidence: 99%

The Experience of Family Caregivers of Older Korean Americans With Dementia Symptoms

Casado

Lee

Hong

et al. 2015

Clinical Gerontologist

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“…Unwanted Role Change. For many caregivers in the reviewed articles, impairments in function (e.g., toileting, eating) brought about role changes, the most common of which was the care recipient transforming into a childlike figure (Boughtwood, Adams, Shanley, Santalucia, & Kyriazopoulos, 2011;Flores, Hinton, Barker, Franz, & Velasquez, 2009;Quinn et al, 2008). The transformation of the care recipient from a capable adult to a seemingly dependent child was difficult for many caregivers.…”

Section: Reciprocal Synthesismentioning

confidence: 99%

The Meanings Caregivers Ascribe to Dementia-Related Changes in Care Recipients: A Meta-Ethnography

Lindauer¹,

Harvath²

2015

Research in Gerontological Nursing

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The number of individuals with dementia is increasing dramatically around the world, and because of this growth, an increase in the number of caregivers has occurred as well. Caregiving is often associated with negative outcomes (e.g., burden, depression, impaired physical health). These problems persist although much effort has been put into understanding caregiver strain. Some work has addressed the meanings caregivers ascribe to dementia-related changes, which may provide a better understanding of caregiver health and well-being. Most of this work is qualitative, but no synthesis of the literature addressing caregiver meanings of dementia-related changes has been found. The purpose of the current meta-ethnographic synthesis is to explore and interpret the literature addressing the meanings that caregivers give to dementia-related changes in their care recipients. An interpretation that incorporates findings in relation to elder mistreatment is offered. Implications for nursing care and research are discussed.

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“…Another limitation is that the findings might not be reflective of all the factors affecting the sustainability of informal care at a national Australian level. This is particularly so, as the study did not include minority migrant groups from other cultures, who may have a different set of issues associated with caregiving as shown by some recent studies (Benedetti, Cohen, & Taylor, 2013;Boughtwood, Adams, Shanley, Santalucia, & Kyriazopoulos, 2011). The vast majority of the carers (88.2%) who volunteered their participation in the present study were women.…”

Section: Discussionmentioning

confidence: 93%

Carers’ Perspectives on Sustainability of Informal Care for People With Dementia

et al. 2015

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The majority of people with dementia, even at advanced stages, receive most of their care and support from family members, friends, and neighbors, rather than formal support systems. This qualitative research undertaken in the Australian state of Queensland explored how family carers of people with dementia living in the community successfully manage and sustain informal caring. It also considers challenges these carers anticipated in continuing to support their family member with dementia in the future. What emerges through this analysis of the carers' perspective on the sustainability of care is the impact of factors including the living arrangements, generational cohort and life stage of the carer, financial issues, and ability to effectively combine caring with their other roles and responsibilities in life.

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Experiences and Perceptions of Culturally and Linguistically Diverse Family Carers of People With Dementia

Cited by 33 publications

References 21 publications

The Experience of Family Caregivers of Older Korean Americans With Dementia Symptoms

The Experience of Family Caregivers of Older Korean Americans With Dementia Symptoms

The Meanings Caregivers Ascribe to Dementia-Related Changes in Care Recipients: A Meta-Ethnography

Carers’ Perspectives on Sustainability of Informal Care for People With Dementia

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