Experiences of adults living with an implantable cardioverter defibrillator for cardiovascular disease: a systematic review of qualitative evidence

Pike, April; Dobbin-Williams, Karen; Swab, Michelle

doi:10.11124/jbisrir-d-19-00239

Cited by 5 publications

(1 citation statement)

References 71 publications

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“…Physicians are usually unaware of the severity of the psychological effects of cardiac implantable electronic devices (such as ICD and PM). Considering the complexity of these devices, the outpatient referral mainly focuses on the technical aspects of the device; while there is a risk of ignoring psychosocial factors 7 . For this reason, achieving a better understanding of the psychological factors and factors that may play a role in patients’ health perceptions will be useful in patient management and physician education 8 .…”

Section: Introductionmentioning

confidence: 99%

Comparison of depression and anxiety among pacemaker and implantable cardioverter‐defibrillator recipients: A cross‐sectional study

Rafsanjani

Masoudi

Radmanesh

et al. 2021

Pacing Clinical Electrophis

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Introduction Anxiety and depression among implantable cardioverter‐defibrillator (ICD) recipients can lead to physical or psychological consequences and reduce the quality of life of these patients. Few studies have compared the frequency and severity of depressive and anxiety disorders in the pacemaker (PM) and ICD recipients. The aim of the present study was to compare depression and anxiety among PM and ICD recipients. Methods This cross‐sectional study was performed on 296 patients referred to a specialized cardiology teaching hospital from October 1, 2019 to July 1, 2020. Patients were selected using convenience sampling method. Results Regarding anxiety, the results showed that the overall prevalence of anxiety in PM, ICD, and control groups was 23.5%, 28%, and 8%, respectively. Results showed no significant difference between PM and ICD recipients regarding the anxiety prevalence (p = .46). With regard to depression, the results showed that the overall prevalence of depression in the PM, ICD, and control groups was 7.1%, 23%, and 4.1%, respectively. The results showed a significant difference between PM and ICD recipients in terms of depression prevalence (p = .03). The results also showed that the prevalence of depression was significantly higher among PM and ICD recipients than the control group (p = .01). Conclusion Considering the results of the present study and the high prevalence of anxiety and depression, it seems necessary to focus more on educating patients about the effectiveness of PM and ICD devices in reducing anxiety and depression.

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Section: Introductionmentioning

confidence: 99%

Comparison of depression and anxiety among pacemaker and implantable cardioverter‐defibrillator recipients: A cross‐sectional study

Rafsanjani

Masoudi

Radmanesh

et al. 2021

Pacing Clinical Electrophis

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Patient-reported outcomes highlight the need for interventions addressing the body image concerns of patients with an implantable cardioverter-defibrillator

Nicmanis

2024

European Journal of Cardiovascular Nursing

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The Information Needs and Experiences of People Living With Cardiac Implantable Electronic Devices: Qualitative Content Analysis of Reddit Posts

Nicmanis,

Chur-Hansen,

Linehan

2023

JMIR Cardio

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Background Cardiac implantable electronic devices (CIEDs) are used to treat a range of cardiovascular diseases and can lead to substantial clinical improvements. However, studies evaluating patients’ experiences of living with these devices are sparse and have focused mainly on implantable cardioverter defibrillators. In addition, there has been limited evaluation of how people living with a CIED use social media to gain insight into their condition. Objective This study aims to analyze posts from web-based communities called subreddits on the website Reddit, intended for people living with a CIED, to characterize the informational needs and experiences of patients. Methods Reddit was systematically searched for appropriate subreddits, and we found 1 subreddit that could be included in the analysis. A Python-based web scraping script using the Reddit application programming interface was used to extract posts from this subreddit. Each post was individually screened for relevancy, and a register of participants’ demographic information was created. Conventional qualitative content analysis was used to inductively classify the qualitative data collected into codes, subcategories, and overarching categories. Results Of the 484 posts collected using the script, 186 were excluded, resulting in 298 posts from 196 participants being included in the analysis. The median age of the participants who reported this was 33 (IQR 22.0-39.5; range 17-72) years, and the majority had a permanent pacemaker. The content analysis yielded 5 overarching categories: use of the subreddit by participants, questions and experiences related to the daily challenges of living with a CIED, physical sequelae of CIED implantation, psychological experiences of living with a CIED, and questions and experiences related to health care while living with a CIED. These categories provided insight into the diverse experiences and informational needs of participants living with a CIED. The data predominantly represented the experiences of younger and more physically active participants. Conclusions Social media provides a platform through which people living with a CIED can share information and provide support to their peers. Participants generally sought information about the experiences of others living with a CIED. This was often done to help overcome a range of challenges faced by participants, including the need to adapt to living with a CIED, difficulties with navigating health care, psychological difficulties, and various aversive physical sequelae. These challenges may be particularly difficult for younger and physically active people. Health care professionals may leverage peer support and other aid to help people overcome the challenges they face while living with a CIED.

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Experiences of adults living with an implantable cardioverter defibrillator for cardiovascular disease: a systematic review of qualitative evidence

Cited by 5 publications

References 71 publications

Comparison of depression and anxiety among pacemaker and implantable cardioverter‐defibrillator recipients: A cross‐sectional study

Comparison of depression and anxiety among pacemaker and implantable cardioverter‐defibrillator recipients: A cross‐sectional study

Patient-reported outcomes highlight the need for interventions addressing the body image concerns of patients with an implantable cardioverter-defibrillator

The Information Needs and Experiences of People Living With Cardiac Implantable Electronic Devices: Qualitative Content Analysis of Reddit Posts

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