Experiences of advanced dementia care in seven European countries: implications for educating the workforce

Crespo, Manuel Lillo; Riquelme, Jorge; MacRae, Rhoda; Abreu, Wilson; Hanson, Elizabeth; Holmerová, Iva; Cabañero, Ma José; Ferrer, Rosario; Tolson, Debbie

doi:10.1080/16549716.2018.1478686

Cited by 19 publications

(21 citation statements)

References 13 publications

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“…As participants articulated fundamental principles of person‐centred care, they highlighted the importance of communication and rapport, and the need to focus on the individual rather than on completing a practical task. These descriptions are supported by ample evidence in favour of communication and rapport as a determinant of health and well‐being of older people with dementia, and integral to person‐centred care (Hansen et al, ; Lillo‐Crespo et al, ).…”

Section: Discussionmentioning

confidence: 95%

“…Globally, older people want to remain in their own homes as they age (Hansen, Hauge, & Bergland, ; Hjelle, Tuntland, Førland, & Alvsvåg, ; Low, White, Jeon, Gresham, & Brodaty, ; Wiles et al, ). However, growing care needs often jeopardise the ability of the older person to stay at home (Lillo‐Crespo et al, ; Nosraty et al, ). This is most challenging for older people with dementia, who require increasing levels of support to stay as independent as possible and in their own homes (Allen & Wiles, ; Toot, Swinson, Devine, Challis, & Orrell, ).…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

‘I know they are not trained in dementia’: Addressing the need for specialist dementia training for home care workers

Polacsek

Goh

Malta

et al. 2019

Health Soc Care Community

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Global population ageing has meant a rapid increase in the numbers of older people with dementia, most of whom live in their own homes. Staying at home is an important determinant of health and well-being. As care needs increase, the quality of community support which older people receive directly influences their capacity to remain in their own homes. While many are supported informally by family carers, formal support provided by home care workers often enables them to remain at home for longer period. However, providing community-based care for people with dementia can be challenging. Workers often lack training in dementia-specific care for clients with increasingly complex needs, and typically work without direct supervision.As the demand for person-centred home care for people with dementia increases, specialist dementia training for home care workers is urgently needed. In this qualitative study, we used in-depth interviews of a purposive sample, comprising 15 family carers and four older people with dementia, to understand the experience of receiving community care. Data analysis was guided by Braun and Clarke's approach to thematic analysis and revealed the following five overlapping themes, relating to home care workers' understanding of dementia, person-centred care, communication and rapport, mutual collaboration, and the influence of organisational constraints on continuity of care. Although participants acknowledged that service providers operated under challenging circumstances, they were frustrated with home care workers' lack of dementia knowledge and inconsistent staff rostering. Conversely, an understanding of the lived experience of dementia, effective communication and rapport, and continuity of care contributed significantly to a positive experience of receiving care.The findings of this study will be used to inform the essential elements of a training

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Section: Discussionmentioning

confidence: 95%

Section: Introductionmentioning

confidence: 99%

‘I know they are not trained in dementia’: Addressing the need for specialist dementia training for home care workers

Polacsek

Goh

Malta

et al. 2019

Health Soc Care Community

View full text Add to dashboard Cite

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“…Alzheimer’s Disease (AD) is one of the main causes of dementia among elderly people, whose prevalence by 2050 is expected to be 14 and 130 million people in Europe and worldwide, respectively 1 , 2 . It is characterised by progressive impairment of memory cognitive functions due to the degeneration of synapses and to the death of neurons, especially in hippocampus 3 .…”

Section: Introductionmentioning

confidence: 99%

Novel tacrine–benzofuran hybrids as potential multi-target drug candidates for the treatment of Alzheimer’s Disease

Fancellu

Chand

Tomás

et al. 2019

Journal of Enzyme Inhibition and Medicinal Chemistry

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Pursuing the widespread interest on multi-target drugs to combat Alzheimer s disease (AD), a new series of hybrids was designed and developed based on the repositioning of the well-known acetylcholinesterase (AChE) inhibitor, tacrine (TAC), by its coupling to benzofuran (BF) derivatives. The BF framework aims to endow the conjugate molecules with ability for inhibition of AChE (bimodal way) and of amyloid-beta peptide aggregation, besides providing metal (Fe, Cu) chelating ability and concomitant extra anti-oxidant activity, for the hybrids with hydroxyl substitution. The new TAC-BF conjugates showed very good activity for AChE inhibition (sub-micromolar range) and good capacity for the inhibition of self-and Cu-mediated Ab aggregation, with dependence on the linker size and substituent groups of each main moiety. Neuroprotective effects were also found for the compounds through viability assays of neuroblastoma cells, after Ab 1-42 induced toxicity. Structure-activity relationship analysis provides insights on the best structural parameters, to take in consideration for future studies in view of potential applications in AD therapy.

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“…In theory, the global dementia plan describes an ambitious perspective for a timely identification of this disease while providing the interventions to integrate for supporting dementia dyad (PwD and their caregiver) [5]. The notion of critical or integrated care pathway (ICP) has been used in different health settings [12][13][14]. The European Pathway Association defines a care pathway as "a complex of intervention for the mutual decision-making and organization of care process for a well-defined group of patients during a well-defined period" *12+.…”

Section: Introductionmentioning

confidence: 99%

Improving the HealthCare of People with Dementia beyond the Diagnosis: The “Carlo Poma Dementia Care Pathway” Study Protocol

Frisardi¹,

faroni²,

Bellani³

et al. 2018

obm geriatr

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The WHO global action plan on the public health response to dementia 2017-2025 stressed the need to have a comprehensive approach with deep interconnections and cross-cutting elements through several action areas. As the elderly population grows worldwide, the number of patients with dementia increases rapidly because age is an important risk factor for developing late-onset dementia. Currently, dementia syndrome represents a true emergency. Once a diagnosis of dementia was made, informal caregivers, patients and their household, they swing between desires, fear, concerns about the present and the future. In fact, in several clinical context there is not a possibility to have specific services able to address the critical issues, which could happen along the disease's course. Despite extensive research in the field of dementia, there still exist a deficiency in the quality of dementia care. There is a paucity of robust results concerning the care experiences of patients with dementia. It is mandatory to understand these experiences if we want to address care inequalities and create impactful dementia policies to improve services for supporting individuals and family caring, and promoting a good quality of life for all people affected by this devastating disease. Aim of this article is to describe the development of an operational protocol to improve the healthcare of people with cognitive impairment and their family. Unfortunately, it is not always easy to assure the whole services that a patient with dementia (PwD) needs. Frequently, this is due to a lack of communication between public hospitals and local authorities. We believe that it is possible to improve the quality of life of PwD and to optimize the public health expenditure through the creation of a specific care network. The services integration means to guarantee the continuity of care and the appropriateness of access to health care, avoiding inappropriate use. This could result in both reducing the healthcare costs and saving resources.

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Experiences of advanced dementia care in seven European countries: implications for educating the workforce

Cited by 19 publications

References 13 publications

‘I know they are not trained in dementia’: Addressing the need for specialist dementia training for home care workers

‘I know they are not trained in dementia’: Addressing the need for specialist dementia training for home care workers

Novel tacrine–benzofuran hybrids as potential multi-target drug candidates for the treatment of Alzheimer’s Disease

Improving the HealthCare of People with Dementia beyond the Diagnosis: The “Carlo Poma Dementia Care Pathway” Study Protocol

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