Experiences of an adolescent inpatient model of care: Adolescent and caregiver perspectives

Hayes, Claire; Simmons, Magenta; Palmer, Victoria; Hamilton, Bridget; Simons, Christine; Hopwood, Malcolm

doi:10.1111/jcap.12266

Cited by 10 publications

(25 citation statements)

References 61 publications

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“…A treatment approach that embraces shared decision‐making promotes adolescents' participation and engagement in treatment and should continue after inpatient care 1 . Most adolescents depend on their parents after discharge from inpatient care.…”

Section: Discussionmentioning

confidence: 99%

“…Those parents who used family‐oriented services with information and support maintained their trust, while those who felt excluded expressed scepticism about the treatment. The significance of family support and its relation to treatment and recovery have been established 18,29 . The more the parents learn about their adolescents' symptoms, the more support and understanding the adolescents receive 30 .…”

Section: Discussionmentioning

confidence: 99%

“…Parents' involvement and contact with healthcare professionals influence their ability to care for their children. To help parents provide the necessary support, they should be afforded informational, emotional and instrumental support 1,2 . The relationship and collaboration between parents and healthcare professionals in adolescents' inpatient units are crucial for adolescents' recovery from mental health disorders 3 .…”

Section: Introductionmentioning

confidence: 99%

“…Family members and parents are often involved in decision‐making about treatment, 10 and previous research indicates a decision‐making power shift from professionals to families 13 . According to research, parents can play a significant role in shared decision‐making processes and supporting adolescents' recovery 1,2,14 . Parents' roles can include advising, negotiating on their children's behalf and supporting and reinforcing the treatment decision as caretakers 10 …”

Section: Introductionmentioning

confidence: 99%

“…To help parents provide the necessary support, they should be afforded informational, emotional and instrumental support. 1,2 The relationship and collaboration between parents and healthcare professionals in adolescents' inpatient units are crucial for adolescents' recovery from mental health disorders. 3 However, adolescence is a distinctive developmental period requiring tailored clinical approaches.…”

Section: Introductionmentioning

confidence: 99%

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Parents' perspectives on user participation and shared decision‐making in adolescents' inpatient mental healthcare

Bjønness

Grønnestad

Johannessen

et al. 2022

Health Expectations

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Background: Parents are a resource that can be of considerable importance in supporting their adolescents' recovery and shared decision-making processes. However, involving both adolescents and their parents in treatment creates challenges. Understanding the roles of all decision stakeholders is vital to the implementation of shared decision-making and delivery of high-quality healthcare services.Objective: The aim of this study is to explore parents' experiences with adolescents' participation in mental health treatment and how parents perceive being involved in decision-making processes.Design: This was a qualitative study with a phenomenological, inductive design.Content analysis of data from qualitative interviews was performed.Setting and Participants: This study took place in a Norwegian public healthcare setting. Twelve parents of adolescents who received treatment for severe mental illness participated.Results: Four themes were identified: (1) self-determined treatment, but within limits; (2) the essential roles of parents; (3) the need for information and support; and(4) the fight for individualized treatment and service coordination. Conclusion:User participation is vital in adolescent mental healthcare and parents play essential roles regarding the shared decision-making process. However, user participation and shared decision-making pose several dilemmas. Parental involvement in treatment decisions may be necessary when adolescents are mentally ill, but could simultaneously hinder those adolescents' empowerment and recovery. Cooperation among parents, adolescents and healthcare professionals can improve treatment engagement and adherence, but may be challenged by divergent interests.Health services should provide family-oriented services to utilize the potential of parents as a resource and minimize conflicting interests.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

Parents' perspectives on user participation and shared decision‐making in adolescents' inpatient mental healthcare

Bjønness

Grønnestad

Johannessen

et al. 2022

Health Expectations

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Adolescents’ voices on self-engagement in mental health treatment: a scoping review

Svamo,

Haug,

DeMarinis

et al. 2024

Eur Child Adolesc Psychiatry

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Introduction: According to the United Nations Convention on the Rights of the Child, adolescents’ involvement in their healthcare is a fundamental right, and self-engagement in mental health treatment is vital for realizing their potential within person-centered care (PCC). Research exists that highlights barriers to involving adolescents in their care decisions. However, research on adolescents’ own voices about self-engagement in mental health treatment has been scarce. This scoping review aimed to examine and summarize current knowledge on adolescents’ voices regarding self-engagement in mental health treatment. Method: The review followed the scoping methodology of Arksey and O’Malley from 2005, updated by Levac and colleagues in 2010, involving five stages: (1) identifying the research question, (2) identifying relevant studies, (3) study selection, (4) charting the data, and (5) collating, summarizing and reporting the results. Results: Nineteen studies were included. The following themes on adolescents` voices regarding self-engagement in mental health treatment were identified: (1) the therapeutic alliance, (2) the need for active engagement in treatment, (3) different experiences due to time of data collection, (4) treatment context and healthcare system, and (5) adolescent-caregiver interaction. Conclusion: Adolescents’ understanding of self-engagement was multilevel and comprehensive, including individual, contextual and relational factors. A strong therapeutic alliance with healthcare providers, and a need to be actively engaged in treatment were highlighted. To succeed in strengthening PCC in mental healthcare for adolescents, health professionals must take this complex understanding into consideration, as treatment without adolescents` self-engagement may worsen their clinical outcomes. Future research should explore specific PCC interventions and incorporate diverse methodologies in various clinical contexts. Additionally, insights from healthcare providers and caregivers on self-engagement in mental health treatment will complement these findings.

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Expérience subjective du rapport aux soins pédopsychiatriques chez des adolescents franco-algériens : une perspective individuelle, et historique

Lambert

Lachal

Moro

2022

Neuropsychiatrie de l'Enfance et de l'Adolescence

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Experiences of an adolescent inpatient model of care: Adolescent and caregiver perspectives

Abstract: This research was partially funded by Ramsay Healthcare. However, the funders had no role in the design of the study, data collection and analysis. Furthermore, funders were not involved in the decision to publish or preparation of the manuscript.

Cited by 10 publications

References 61 publications

Parents' perspectives on user participation and shared decision‐making in adolescents' inpatient mental healthcare

Parents' perspectives on user participation and shared decision‐making in adolescents' inpatient mental healthcare

Adolescents’ voices on self-engagement in mental health treatment: a scoping review

Expérience subjective du rapport aux soins pédopsychiatriques chez des adolescents franco-algériens : une perspective individuelle, et historique

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