Experiences of Brazilian children and family caregivers facing the recurrence of cancer

Arruda-Colli, Marina Noronha Ferraz de; Perina, Elisa Marina; Santos, Manoel Antônio dos

doi:10.1016/j.ejon.2015.02.004

Cited by 33 publications

(47 citation statements)

References 23 publications

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“…On the other hand, occurrence of psychological issues including death anxiety and chronic sorrow were factors, which affected ineffective coping of mothers. Participating mothers frequently expressed the obsession over the death of child, which is consistent with the results of other studies (35,36). Chronic sorrow or episodic presence of behaviors like worriedness and sadness, concern and discomfort at the time of some events like a death of another child in hospital or cancer recurrence in their own child, are what most of mothers of children with cancer experience (37).…”

Section: Discussionsupporting

confidence: 79%

A Qualitative Approach to Find Nursing Diagnoses for Non-Physical Health Problems in Mothers of Children with Cancer

2017

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Objectives: This study aimed to find nursing diagnoses for non-physical health problems in mothers of children with cancer through a directed (deductive) qualitative content analysis of interviews with them. Methods:In this qualitative study, eight mothers of children with cancer were interviewed, their problem list was matched with defining characteristics of each nursing diagnosis in non-physical domains of NANDA I taxonomy II, so that they were assigned in pre-determined subcategories and categories. Results:Results showed some common health problems in domains of self-perception, role relationship, coping stress tolerance, life principles and perception/cognition. Conclusions:Qualitative approach for assessment of mothers of children with cancer can help to find their health problems in nonphysical domains, which is important to be included in the holistic family centered care plan of these children and their families.

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Section: Discussionsupporting

confidence: 79%

A Qualitative Approach to Find Nursing Diagnoses for Non-Physical Health Problems in Mothers of Children with Cancer

2017

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“…However, the researchers found that the parents' roles are important to ensure the patient is not left behind even though he missed most of the classes. Arruda-Colli et al (2015) suggested that there are six (6) coping strategies adopted by the family caregivers, namely (i) faith; (ii) family support; (iii) social support; (iv) perception of child's coping; (v) development of sense of power; and (vi) trust in the hospital institution. However, based on the findings of this case study, the researchers suggested that only two (2) main strategies arise, the internal support and external support.…”

Section: Discussionmentioning

confidence: 99%

Our Child Is Dying: Exploring the Experiences, Challenges and Coping Mechanisms of Malaysian Parents as Caregivers of a Child With Cancer

Ibrahim

Razak

Aman

et al. 2019

JATI

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Parents as caregivers to paediatric cancer patients face various challenges. This paper highlights the characteristics, caregiving tasks, resources, and other role demands/stressors experienced by a pair of parents as primary family caregivers of a child with cancer in the Malaysian setting. Besides, coping strategies are also put forward as a significant element in understanding the functions of a parent as a caregiver. Hence, this study aims to explore the in-depth experiences of caregivers and investigate the challenges as well as the coping strategies adopted by them, particularly as Muslims. Eight (8) main themes emerged from the findings: (i) chronology; (ii) caregiver roles; (iii) routine changes; (iv) making decisions; (v) financial; (vi) letting go; (vii) external support; and (viii) internal support. This study is unique because the patient was an only child, and he managed to score excellent grades in all subjects in the Malaysian Primary School Achievement Test (UPSR) despite not attending school for almost one year due to cancer treatments.

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“…Para gran parte de los cuidadores familiares el cáncer infantil significa adversidad, los encara a un conflicto consigo mismos, con otros significativos, con la vida y con el ser o fuerza superior. La asociación del cáncer con la muerte hace que el cuidador se enfrente a una crisis de significado, lo que en la mayoría de casos inhibe una transición adecuada de su rol (Arruda-Colli et al, 2015;Bally et al,2014;Flury et al, 2015;Njuguna et al, 2015;Rosenberg et al, 2013;Shortman et al, 2013;Wong y Chan, 2006). Ningún padre o allegado se prepara para tener a futuro un niño con cáncer.…”

Section: Condiciones De Transición Del Rol De Cuidador Del Niño Con Cunclassified

“…Es claro que la transición del rol del cuidador del niño con cáncer es difícil y en muchos casos dolorosa, lo que también se refleja en los patrones de respuesta que se esperan, pues en últimas el resultado deseable es que la experiencia sea lo menos traumática posible y que los cuidadores puedan encontrar en ella algún sentido que les ayude a luchar y a continuar viviendo para disfrutar los momentos que la vida les ofrece junto al niño y los otros significativos (Arruda-Colli et al, 2015;Bally et al, 2014;Flury et al, 2015;Njuguna et al, 2015;Rosenberg et al, 2013;Shortman et al, 2013;Wong y Chan, 2006).…”

Section: Patrones De Respuesta a La Transición Del Rol De Cuidador Deunclassified

Cuidador familiar del niño con cáncer: un rol en transición

Carreño-Moreno

Díaz

Blanco-Sánchez

2017

Rev. latinoam. bioet

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Convertirse en cuidador familiar de un niño con cáncer implica ejercer un nuevo rol, el cual se construye en la interacción con otros significativos. Objetivo. Integrar los hallazgos derivados de investigación que evidencian que el ser cuidador de un niño con cáncer denota un rol en transición. Materiales y métodos. Revisión integrativa de literatura que incluyó búsqueda sistemática de literatura, lectura crítica de las publicaciones, integración de hallazgos con apoyo en Atlas Ti versión 7 en un proceso de comparación constante; 46 artículos constituyeron el insumo para la revisión. Resultados. El cuidador del niño con cáncer pasa por una transición de su rol, la cual es de tipo salud – enfermedad, que se caracteriza por tener un patrón múltiple, simultáneo y relacionado. Con frecuencia el cuidador presenta insuficiencia de su rol durante la transición, por lo que intervenir sobre el conocimiento y preparación para el ejercicio del rol es clave. Los cuidadores familiares que han recibido apoyo para el ejercicio de su rol, mejoran sus habilidades para resolver problemas y conocimientos acerca del cuidado, lo que impacta en su calidad de vida, estado de ánimo y resultados de salud en su receptor de cuidados. Conclusión. Se requieren intervenciones para mejorar las condiciones de transición en el rol del cuidador de niño con cáncer, preparar al cuidador para ejercer su rol con suficiencia mejora sus resultados y los de su receptor de cuidados.

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Experiences of Brazilian children and family caregivers facing the recurrence of cancer

Cited by 33 publications

References 23 publications

A Qualitative Approach to Find Nursing Diagnoses for Non-Physical Health Problems in Mothers of Children with Cancer

A Qualitative Approach to Find Nursing Diagnoses for Non-Physical Health Problems in Mothers of Children with Cancer

Our Child Is Dying: Exploring the Experiences, Challenges and Coping Mechanisms of Malaysian Parents as Caregivers of a Child With Cancer

Cuidador familiar del niño con cáncer: un rol en transición

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