Experiences of caregivers and individuals living with traumatic brain injury in accessing health information: a qualitative investigation

Jones, Tammie M.; Bhanji, Alaanah; Osman, Sarah; Cai, Xinsheng; Garfinkel, Steven; Weinstein, Ali A.

doi:10.1080/02699052.2022.2145366

Cited by 4 publications

(1 citation statement)

References 27 publications

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“…Various studies have investigated stroke individuals' experiences of rehabilitation, focusing either on their experiences about their daily lives and coping mechanisms after their hospital discharge or on their experiences and involvement during their inpatient physical rehabilitation (Brown et al., 2014; Lloyd et al., 2014; Taule et al., 2015). Some studies have also explored TBI's challenges, long‐lasting effects and significant impact on individuals' lives, self‐perceptions and social integration (Abrahamson et al., 2017; Jones et al., 2022; McPherson et al., 2017). Other literature has examined the negative impact of rehabilitation experiences of these individuals, such as disempowerment, lack of control, ineffective communication, loss of valued roles and activities, stigmatisation and social isolation (Luker et al., 2015; Ritchie et al., 2014; Rosewilliam et al., 2011; Villa et al., 2020).…”

Section: Introductionmentioning

confidence: 99%

Older adults' lived experiences of physical rehabilitation for acquired brain injury and their perceptions of well‐being: A qualitative phenomenological study

Lafiatoglou,

Ellis‐Hill,

Gouva

et al. 2023

Journal of Clinical Nursing

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AimTo explore the experiences of older adults (65+) living with acquired brain injury regarding their sense of well‐being during physical rehabilitation within the Greek Healthcare System.BackgroundWith the increasing ageing population and the life‐changing effects of acquired brain injury, there is a need to focus on care for older people and their potential to live well. Rehabilitation systems deserve greater attention, especially in improving the well‐being of those who are using them.DesignA qualitative study design with a hermeneutic phenomenological approach was used.MethodsFourteen older adults living with acquired brain injury and undergoing physical rehabilitation in Greece were purposively sampled. Semi‐structured interviews were conducted to collect data and were thematically analysed using van Manen's and Clarke and Braun's methods. The COREQ checklist was followed.ResultsFour themes emerged from the analysis: (1) Challenges of new life situation, (2) Seeking emotional and practical support through social interaction, (3) Identifying contextual processes of rehabilitation, (4) Realising the new self.ConclusionsThe subjective experiences, intersubjective relations and contextual conditions influence the sense of well‐being among older adults living with acquired brain injury, thus impacting the realisation of their new self. The study makes the notion of well‐being a more tangible concept by relating it to the degree of adaptation to the new situation and the potential for older adults to create a future whilst living with acquired brain injury.Relevance for Clinical PracticeIdentifying the factors that impact older adults' sense of well‐being during rehabilitation can guide healthcare professionals in enhancing the quality of care offered and providing more dignified and humanising care.Patient or Public ContributionOlder adults living with acquired brain injury were involved in the study as participants providing the research data.

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