Experiences of family caregivers in forensic mental health care—A qualitative evidence synthesis

Abstract

Accessible Summary What is known on the subject Internationally, research and policy agendas recommend that family caregivers of service users in mental health care be involved in care and treatment, to support the service user's recovery process. Family caregivers of service users in mental health care are often highly burdened. There is a lack of research‐based knowledge about the experiences of family caregivers of service users in forensic mental health care (FMHC) and their involvement in care and treatment. What this paper adds to existing knowledge This study indicates a persistent caregiver presence and/or caregiver advocacy in regard to care and treatment of the service user in FMHC. This study indicates that health care professionals (HCPs) might play a role in eliciting a persistent caregiver presence and/or caregiver advocacy. What are the implications for practice HCPs need to develop their collaborative skills and be more willing to listen to and understand caregivers' persistent presence and/or advocacy. HCPs need to be more skilled to understand caregivers' and families' living with the complexities of mental illness and offence. HCPs are encouraged to adjust the involvement of family caregivers in care and treatment to FMHC. Abstract IntroductionThere is a lack of research about experiences of family caregivers of service users in forensic mental health care (FMHC) and their involvement in care and treatment. Research shows that caregivers are burdened. Further knowledge is required, to provide a foundation for improving clinical practice. AimTo review research literature, to investigate existing knowledge about caregiver experiences and, secondly, caregivers' experiences of facilitators and barriers related to their involvement in care and treatment. MethodQualitative evidence synthesis undertaken in a thematic synthesis of thirteen peer‐reviewed studies. ResultsThe analysis identified three descriptive themes: violence against family; a great burden of responsibility; and difficult collaboration, together with an additional three analytical themes: bearing witness; persistent presence; and advocacy becomes necessary. DiscussionPersistent caregiver presence and/or caregiver advocacy may be elicited by health care professionals' (HCPs') exclusion of caregivers from care and treatment. Caregivers' feelings of guilt in relation to the service user's offence may play an additional role in persistent presence and advocacy and, therefore, in HCPs' exclusion of them. Implications for PracticeHCPs need to develop their collaboration with caregivers by their willingness to listen to caregivers to understand emotional complexities within families experiencing mental illness and offence.

Walking Alongside: Views of Family Members on Medical Assistance in Dying for Mental Illness as the Sole Underlying Medical Condition

“…In that regard, the literature has reported that, for family caregivers, certain care settings (i.e., hospitals) are identified as contexts in which collaborative and trusting relationships with healthcare professionals are difficult to establish ( Dirik et al, 2017 ; Doody et al, 2017 ). The challenges for the involvement of family caregivers in care planning and decision-making have been discussed in empirical studies and literature reviews, with family caregivers’ voices being frequently critical of the lack of opportunities for active and meaningful involvement ( Stuart et al, 2020 ; Vestphal et al, 2023 ; Wilkinson & McAndrew, 2008 ). Gaps have also been identified between caregivers’ and clinicians’ views on the involvement of family ( Sharon et al, 2020 ).…”

‘Ya Ondan Önce Ölürsem?' Palyatif Bakımda Bakımverenlerin Endişeleri

“…[8,9] The expectations, confidence, pain management challenges, and problems of family caregivers were tried in various studies. [5,[10][11][12] To deliver patient-and family-centred care within palliative care services, it is crucial to thoroughly evaluate the needs and anticipations of family caregivers. [13] This study aims to better understand the feelings of caregivers behind their behaviors.…”