Experiences of family caregivers of patients with COVID-19

Rahimi, Tahereh; Dastyar, Neda; Rafati, Foozieh

doi:10.1186/s12875-021-01489-7

Cited by 49 publications

(75 citation statements)

References 36 publications

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“…Additionally, family members need proper information, e.g. about the trajectory of mental health symptoms [ 12 ]. The present study provides clinicians with this information, enabling them to better inform COVID-19 survivors and family members.…”

Section: Discussionmentioning

confidence: 99%

“…Additionally, family members had less contact with clinicians who were taking care for their loved ones, while well-perceived communication and emotional support from clinicians are proven to be important to mitigate PICS-F in non-COVID-19 ICU survivors [ 7 ]. Furthermore, the lack of information about prognosis and long-term outcomes was often reported as a stressor by family members of COVID-19 ICU survivors [ 11 , 12 ].…”

Section: Introductionmentioning

confidence: 99%

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Mental health symptoms in family members of COVID-19 ICU survivors 3 and 12 months after ICU admission: a multicentre prospective cohort study

Heesakkers¹,

Hoeven²,

Corsten

et al. 2022

Intensive Care Med

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Purpose Long-term mental outcomes in family members of coronavirus disease 2019 (COVID-19) intensive care unit (ICU) survivors are unknown. Therefore, we assessed the prevalence of mental health symptoms, including associated risk factors, and quality of life (QoL) in family members of COVID-19 ICU survivors 3 and 12 months post-ICU. Methods A prospective multicentre cohort study in ICUs of ten Dutch hospitals, including adult family members of COVID-19 ICU survivors admitted between March 1, and July 1, 2020. Symptom prevalence rates of anxiety, depression (Hospital Anxiety and Depression Scale) and Post-Traumatic Stress Disorder (Impact of Event Scale-6), and QoL (Short Form-12) before ICU admission (baseline), and after 3 and 12 months were measured. Additionally, associations between family and patient characteristics and mental health symptoms were calculated. Results A total of 166 out of 197 (84.3%) included family members completed the 12-month follow-up of whom 46.1% and 38.3% had mental health symptoms 3 and 12 months post-ICU, respectively; both higher compared to baseline (22.4%) ( p < 0.001). The mental component summary score of the SF-12 was lower at 12-month follow-up compared with baseline [mean difference mental component score: − 5.5 (95% confidence interval (CI) − 7.4 to − 3.6)]. Furthermore, 27.9% experienced work-related problems. Symptoms of anxiety (odds ratio (OR) 9.23; 95% CI 2.296–37.24; p = 0.002) and depression (OR 5.96; 95% CI 1.29–27.42; p = 0.02) prior to ICU admission were identified as risk factors for mental health symptoms after 12 months. Conclusion A considerable proportion of family members of COVID-19 survivors reported mental health symptoms 3 and 12 months after ICU admission, disrupting QoL and creating work-related problems. Supplementary Information The online version contains supplementary material available at 10.1007/s00134-021-06615-8.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Mental health symptoms in family members of COVID-19 ICU survivors 3 and 12 months after ICU admission: a multicentre prospective cohort study

Heesakkers¹,

Hoeven²,

Corsten

et al. 2022

Intensive Care Med

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“…Along with the COVID-19 pandemic, various studies have been reported in the literature measuring the anxiety and depression frequency of COVID-19 patients and/or their relatives or referring to their experiences [ 7 , 8 , 9 , 10 ]. In addition, in a previous study, we reported by measuring the anxiety and depression levels of the relatives of patients who were followed up in the intensive care unit with the suspicion of COVID-19 during the pandemic [ 11 ].…”

Section: Discussionmentioning

confidence: 99%

Anxiety and Depression in the Relatives of COVID-19 and Non-COVID-19 Intensive Care Patients During the Pandemic

Kosovalı¹,

Tezcan²,

Aytaç³

et al. 2021

Cureus

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Background and aimIn the literature, there is no study on the anxiety and depression status of the relatives of intensive care COVID-19 and non-COVID-19 patients during the pandemic period. In this study, we aimed to compare the risk of developing anxiety and depression in the relatives of COVID-19 and non-COVID-19 intensive care patients during the pandemic, and also to determine the factors that may cause anxiety and depression. Materials and methodsRelatives of patients admitted to Ankara City Hospital COVID-19 (n=45) and non-COVID-19 (n=45) intensive care units between 15 May and 31 July 2021 were included in this prospective study. The Hospital Anxiety and Depression Scale (HADS) questionnaire was administered to the relatives of the patients within the first 48 hours of their admission to the intensive care unit. The answers were recorded and HADS, HADS-A (anxiety) and HADS-D (depression) scores were calculated accordingly. Demographics, education and marital statuses of both the patients and their relatives were recorded. Logistic regression analysis was performed to determine the factors associated with depression and anxiety. Receiver operator characteristics (ROC) curves were drawn for the factors affecting depression and anxiety, and the area under the curve values were calculated. ResultsDemographics, APACHE II score, and patient affiliation were similar in both groups. The mean HADS scores of the relatives of COVID-19 and non-COVID-19 patients were 24.76 and 16.04 (p<0.001). The mean HADS-A scores were 12.89 and 7.78 (p<0.001), and the mean of HADS-D scores were 11.87 and 8.27 (p=0.001). Moderate and high-risk anxiety and depression were significantly higher in relatives of COVID-19 patients (p=0.018, p=0.001, respectively). The area under curve (AUC) values were 0.727 in the ROC curve plotted for the independent risk factor Q3 responses that reduced anxiety, and 0.791 and 0.785 in the ROC curve drawn for the independent risk factor Q1 and Q3 responses that reduced the development of depression. ConclusionWe found that the anxiety and depression risk of the relatives of COVID-19 patients in the intensive care unit during the pandemic period is significantly higher than the relatives of non-COVID-19 patients in the intensive care unit. In addition, regardless of the diagnosis, younger intensive care patients may increase the anxiety and depression of the relatives of the patients during the pandemic. The higher-education level of the relatives of patients was determined as a factor reducing anxiety and depression.

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“…Research fndings have well established the relationship between social support and increasing the quality of caregiving. In the presence of social support, patient care becomes a valuable experience for families and health care providersy caregivers in addition to meeting patient need [14,15]. The program of "each home as a health post" in Iran, had caused families to participate in following the instructions.…”

Section: Discussionmentioning

confidence: 99%

“…With the onset of the outbreak of COVID-19, the lack of medical facilities, equipment, and staf has affected health care systems and community members around the world. The result of some studies showed that lack of access to medical equipment for caregivers made caring for COVID-19 patients a challenge In the study of Rafati et al, resource constraints were considered as the most important challenge in preventing of COVID-19 [15]. In such pandemic emergencies, health policymakers and other community members must provide a comprehensive system of support for them.…”

Section: Discussionmentioning

confidence: 99%

Experiences of Health Providers and patients in COVID‑19: A SWOT analysis

Kheirkhah¹,

Movahed²,

gheyabi³

et al. 2021

Preprint

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Background: Health providers and patients face many problems in preventing and controlling COVID-19 in the family and the health system.Aim: The aim of the present study was to explore experiences of health providers and patients in COVID‑19.Methods: directional qualitative content analysis was applied and 15 participants, including 10 patients with COVID-19 and 5 health providers. Data were collected using semi-structured interviews and analyzed by Lundman and Graneheim qualitative content analysis methods. The MAXQDA10 software was used to manage qualitative data analysis.Results: During the data analysis, "strengths", "weaknesses", "opportunities", and "threats" were defined in terms of categories. The " Benefits and Barriers " was determined as the main theme.Conclusion: Community members and policymakers should support and reinforce the positive experiences of patients and health providers and the health system and families need to be more prepared for the crisis.

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Experiences of family caregivers of patients with COVID-19

Cited by 49 publications

References 36 publications

Mental health symptoms in family members of COVID-19 ICU survivors 3 and 12 months after ICU admission: a multicentre prospective cohort study

Mental health symptoms in family members of COVID-19 ICU survivors 3 and 12 months after ICU admission: a multicentre prospective cohort study

Anxiety and Depression in the Relatives of COVID-19 and Non-COVID-19 Intensive Care Patients During the Pandemic

Experiences of Health Providers and patients in COVID‑19: A SWOT analysis

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