2021
DOI: 10.1186/s12913-021-06303-9
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Experiences of Inuit in Canada who travel from remote settings for cancer care and impacts on decision making

Abstract: Background Inuit experience the highest cancer mortality rates from lung cancer in the world with increasing rates of other cancers in addition to other significant health burdens. Inuit who live in remote areas must often travel thousands of kilometers to large urban centres in southern Canada and negotiate complex and sometimes unwelcoming health care systems. There is an urgent need to improve Inuit access to and use of health care. Our study objective was to understand the experiences of In… Show more

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Cited by 14 publications
(18 citation statements)
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“…Although Indigenous Peoples represent a smaller percentage of the population, they often experience disproportionately worse health outcomes [ 2 ]. Cancer is now one of the leading causes of death in Native Americans and Alaskan Natives [ 3 ], Aboriginal and Torres Strait Islander People [ 4 ], Māori [ 5 ], and Indigenous Peoples of Canada (First Nations, Métis, and Inuit) [ 6 , 7 ], where studies report higher incidence rates, lower screening rates, and a greater likelihood of death after diagnosis [ 1 , 4 , 6 , 8 ]. For other Indigenous groups, such as the Sámi in Europe and Indigenous Peoples of Latin America, there are inadequate surveillance data; however, there is some evidence of small disparities in cancer incidence compared to the general population [ 9 ].…”
Section: Introductionmentioning
confidence: 99%
“…Although Indigenous Peoples represent a smaller percentage of the population, they often experience disproportionately worse health outcomes [ 2 ]. Cancer is now one of the leading causes of death in Native Americans and Alaskan Natives [ 3 ], Aboriginal and Torres Strait Islander People [ 4 ], Māori [ 5 ], and Indigenous Peoples of Canada (First Nations, Métis, and Inuit) [ 6 , 7 ], where studies report higher incidence rates, lower screening rates, and a greater likelihood of death after diagnosis [ 1 , 4 , 6 , 8 ]. For other Indigenous groups, such as the Sámi in Europe and Indigenous Peoples of Latin America, there are inadequate surveillance data; however, there is some evidence of small disparities in cancer incidence compared to the general population [ 9 ].…”
Section: Introductionmentioning
confidence: 99%
“…The most common type of collaboration was between southern-based academic researchers with health and political representatives at the national, regional and local levels (Hamlet, Council) (n=177). Thirty-nine studies21 32 39 41 44 47 48 65 67 71–73 75–98 established an advisory committee to oversee the research and to provide feedback on the research protocols.…”
Section: Resultsmentioning
confidence: 99%
“…The International Polar Survey and the Nunavik Health Survey used a DVD to watch before getting the consent of the participants to support oral Inuit traditions 21 124. The researchers who sought verbal approval are self-identified participatory and community-based research 76 83 166 167…”
Section: Knowledge Translationmentioning
confidence: 99%
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“…30,31,33,41,50,102,103 This directly influences the availability and quality of care and the significant direct and indirect costs of care that can accrue. This includes long waiting times for specialist appointments for public patients, a shortage of medical doctors 104,105 , high staff turnover among rural GPs 10,18,30 , travel for medical appointments or diagnostic tests, diagnostic delays in the primary healthcare setting and long waiting times for specialist care 10,31,98,100 , delays in treatment and overall cancer care, and associated accommodation and food needs. 5,10,30,31,102 These different logistical barriers have made the cancer journey fragmented for many Indigenous people.…”
Section: Geographical Isolation Infrastructure and Logistical Barriersmentioning
confidence: 99%