Experiences of living with asthma – a focus group study with adolescents and parents of children with asthma

Abstract

Living with asthma leads to developing personal strategies in self-management of asthma. Moreover both parents and adolescents had expectations of being met by competent and understanding health care professionals. Developing a partnership between patients and health care professionals could be a successful way to improve the care of patients with asthma.

Adolescent, caregiver, and friend preferences for integrating social support and communication features into an asthma self-management app

“…These findings are not surprising given that previous studies have shown that adolescents want to avoid appearing different from their peers, which can lead to denying, hiding, or ignoring symptoms and subsequent failure to use medication in the presence of others. [29] This may also explain why only three of twenty adolescents recruited friends to participate in the study. Adolescents may have been uncomfortable asking their friends to participate in an activity that focused on their asthma; thereby, emphasizing how they were different from their friends.…”

Factors associated with concordance between parental‐reported use and dispensed asthma drugs in adolescents: findings from the BAMSE birth cohort

“…Adolescents with asthma are a specific group of patients with different problems and needs comparison with children and adults with asthma. The disease varies a lot during growth, which needs to be taken into account when treating an adolescent with asthma . Developmental behavior, peer pressure, and the difficult transition to health care leads to under‐diagnosis and under‐treatment of asthma in adolescents.…”

“It's not who I am”: Children's experiences of growing up with a long‐term condition in England, Australia, and New Zealand

“…Most evidence relating to the experience of growing up with a long‐term condition and the impact this may have on a child's expected developmental trajectory (Venning, Eliott, Wilson, & Kettler, ) is quantitative and addresses the perspectives of older children and adolescents (e.g., Smith, Taylor, Newbould, & Keady, ) with diabetes, asthma, cystic fibrosis, and rheumatic conditions (see, e.g., Cartwright, Fraser, Edmunds, Wilkinson, & Jacobs, ; Jessup & Parkinson, ; Jonsson, Egmar, Hallner, & Kull, ; Marshall, Carter, Rose, & Brotherton, ). The impact and influence of a long‐term condition on adolescents tend to be reported in terms of the young people's resilience and how the young people adjust to and aim for control over the disruption associated with the condition (Cartwright et al., ; Ferguson & Walker, ; Tong, Jones, Craig, & Singh‐Grewal, ).…”