Experiences of long-term care and supportive living residents and families during the COVID-19 pandemic: “It's a lot different for us than it is for the average Joe”

Ickert, Carla; Stefaniuk, Rachel; Leask, James

doi:10.1016/j.gerinurse.2021.10.012

Cited by 23 publications

(66 citation statements)

References 19 publications

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“…Consideration of the prevailing model of nursing homes and LTRCFs is warranted, including the environmental structure and social environment. A future policy shift should include key aspects of family support while drawing a distinction between family caregivers and visitors and effectively balance the social and emotional value of visits against the risks of infection and polypharmacy [ 18 , 27 , 28 , 40 , 41 , 42 , 43 ]. This international literature does not support blanket bans on visitation and the removal of residents’ right to face-to-face meetings should be a last resort.…”

Section: Discussionmentioning

confidence: 99%

“…This international literature does not support blanket bans on visitation and the removal of residents’ right to face-to-face meetings should be a last resort. Individual cases can be complex and ethically challenging [ 44 ], and residents and their families should receive regular consultation during the planning process [ 27 , 28 , 41 , 42 ].…”

Section: Discussionmentioning

confidence: 99%

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The Experience of COVID-19 Visitor Restrictions among Families of People Living in Long-Term Residential Care Facilities during the First Wave of the Pandemic in Ireland

Cornally

Kilty

Buckley³

et al. 2022

IJERPH

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Public health responses to COVID-19 in long-term residential care facilities (LTRCFs) have restricted family engagement with residents. These restrictions impact on quality of care and the psychosocial and emotional well-being of family caregivers. Following a national cross-sectional web-based survey, respondents were invited to provide personal reflections on visitor restrictions. This study aims to describe the consequences of these restrictions for individuals living in LTRCF and their families during the first wave of the COVID-19 pandemic. Data from open-ended questions contained within the survey were analyzed using Braun and Clarke’s (2006) method of thematic analysis. Four themes were identified: 1. Altered Communication and Connection; 2. Emotional and Psychological Impact; 3. Protecting and Caring Role of Staff; 4. Family Role. Throughout the narrative accounts, it is evident that the visitor restrictions impacted on the emotional and mental well-being of families. Some respondents expressed frustration that they could not assist staff in essential care provision, reducing meaning and purpose in their own lives. COVID-19 LTRCF visitor restrictions made little distinction between those providing essential personal care and those who visit for social reasons. A partnership approach to care provision is important and should encompass strategies to maintain the psychosocial and emotional well-being of families and their relatives during times of self-isolating or restrictive measures.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

The Experience of COVID-19 Visitor Restrictions among Families of People Living in Long-Term Residential Care Facilities during the First Wave of the Pandemic in Ireland

Cornally

Kilty

Buckley³

et al. 2022

IJERPH

View full text Add to dashboard Cite

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“…“Leisure satisfaction” refers to the positive feelings that are displayed, formed or obtained by individuals due to their participation in leisure activities and the degree of satisfaction that they feel from the leisure experience [ 27 ]. After the COVID-19 outbreak, urban community residents began to pay much more attention to the different elements of leisure, such as leisure time, leisure activities, and leisure environments [ 28 ]. During the pandemic, leisure activities, especially sports and exercise activities, were associated with positive emotions and high levels of life satisfaction, in addition to good physical health [ 29 ].…”

Section: Literature Review Conceptual Framework and Hypothesesmentioning

confidence: 99%

“…Subjective well-being involves a multidimensional evaluation of life, including the cognitive judgment of life satisfaction and the emotional evaluation of feelings and emotions [ 6 ]. Under the positive influence of the pandemic, urban community residents have been more likely to devote themselves to leisure activities, thus improving their leisure satisfaction and subjective well-being [ 28 ]. Through this mechanism, pandemic influence and leisure satisfaction have positive effects on subjective well-being.…”

Section: Literature Review Conceptual Framework and Hypothesesmentioning

confidence: 99%

Exploring the Impacts of Urban Community Leisure on Subjective Well-Being during COVID-19: A Mixed Methods Case Study

Wang

Zhang

Sun

et al. 2022

IJERPH

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Participating in community leisure activities has become an important way for the public to pursue good health and a high quality of life. However, few studies have focused on the health and welfare effects of participating in urban leisure activities during the COVID-19 pandemic. In response to this gap in the literature, this study drew on the stimulus–organism–response (SOR) theory to examine the effects of community leisure on subjective well-being during the pandemic from the perspective of urban residents. A sample of 1041 urban residents in Beijing, China, was empirically analyzed by applying partial least squares structural equation modeling (PLS-SEM) and fuzzy set qualitative comparative analysis (fsQCA). The PLS-SEM results revealed the net effects of the pandemic influence, leisure satisfaction, leisure environment, and community identity on subjective well-being. The fsQCA provided causal methods for realizing subjective well-being and a necessary condition analysis supplemented the necessary antecedents. The results showed that (1) higher levels of pandemic influence and leisure environment increased leisure satisfaction; (2) pandemic influence, leisure environment, and leisure satisfaction had a positive effect on community identity; (3) pandemic influence, leisure satisfaction, and community identity also combined with leisure environment and leisure time to positively influence subjective well-being; and (4) leisure satisfaction and community identity mediated the impacts of pandemic influence and leisure environment on subjective well-being. This paper contributes not only to empirical evidence but also to theory by constructing and enriching the research models of community leisure and subjective well-being. The practical implications for the public, community managers, and policymakers are also discussed.

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“…Isolation of older adults with dementia can lead to higher incidences of responsive behaviors with a resultant increased use of antipsychotic medications by LTC staff [ 14 ]. During multiple waves of COVID-19, increased incidence of responsive behaviors in older adults in LTC was documented with the concomitant widespread isolation resulting from infection control processes and restrictions on in-person gatherings [ 15 , 16 ]. Approximately 51% of family members have reported an increase in responsive behaviors in persons with dementia since the pandemic started [ 15 ].…”

Section: Introductionmentioning

confidence: 99%

Nurse-Led Virtual Delivery of PIECES in Canadian Long-Term Care Homes to Support the Care of Older Adults Experiencing Responsive Behaviors During COVID-19: Qualitative Descriptive Study

Garnett¹,

Connelly²,

Yous³

et al. 2022

JMIR Nursing

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Background Worldwide, the COVID-19 pandemic has resulted in profound loss of life among older adults living in long-term care (LTC) homes. As a pandemic response, LTC homes enforced infection control processes, including isolating older adults in their rooms, canceling therapeutic programs, and restricting family member visits. Social isolation negatively impacts older adults in LTC, which may result in increased rates of anxiety, depression, physical and cognitive decline, disorientation, fear, apathy, and premature death. Isolation of older adults can also cause an increase in responsive behaviors (eg, yelling, hitting, calling out) to express frustration, fear, restricted movement, and boredom. To respond to the challenges in LTC and support frontline staff, older adults, and family members, a novel registered practical nurse (RPN)-led delivery of the PIECES approach for addressing responsive behaviors among older adults with dementia using virtual training/mentoring was implemented in Canadian LTC homes. PIECES employs a person- and family/care partner–centered collaborative team-based approach to provide education and capacity-building for nurses; engages families as active participants in care; and embeds evidence-informed practices to provide person- and family-centered care to older adults with complex needs, including dementia. Objective The aim of this study was to describe the experiences of LTC staff, family/care partners, and older adult research partners with implementation of a novel RPN-led virtual adaptation of the PIECES care-planning approach for responsive behaviors in two Canadian LTC homes during the COVID-19 pandemic. Methods Using a qualitative descriptive design, two focus groups were held with three to four staff members (eg, RPNs, managers) per LTC home in Ontario. A third focus group was held with three PIECES mentors. Individual semistructured interviews were conducted with RPN champions, family/care partners, and older adult research partners. Research team meeting notes provided an additional source of data. Content analysis was performed. Results A total of 22 participants took part in a focus group (n=11) or an in-depth individual interview (n=11). Participant experiences suggest that implementation of RPN-led virtual PIECES fostered individualized care, included family as partners in care, increased interdisciplinary collaboration, and improved staff practices. However, virtual PIECES, as delivered, lacked opportunities for family member feedback on older adult outcomes. Implementation facilitators included the provision of mentorship and leadership at all levels of implementation and suitable technological infrastructure. Barriers were related to availability and use of virtual communication technology (family members) and older adults became upset due to lack of comprehension during virtual care conferences. Conclusions These findings offer promising support to adopting virtual PIECES, a team approach to gather valuable family input and engagement to address residents’ unmet needs and responsive behaviors in LTC. Future research should investigate a hybridized communication format to foster sustainable person- and family-centered care-planning practices to include active collaboration of families in individualized care plans.

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Experiences of long-term care and supportive living residents and families during the COVID-19 pandemic: “It's a lot different for us than it is for the average Joe”

Cited by 23 publications

References 19 publications

The Experience of COVID-19 Visitor Restrictions among Families of People Living in Long-Term Residential Care Facilities during the First Wave of the Pandemic in Ireland

The Experience of COVID-19 Visitor Restrictions among Families of People Living in Long-Term Residential Care Facilities during the First Wave of the Pandemic in Ireland

Exploring the Impacts of Urban Community Leisure on Subjective Well-Being during COVID-19: A Mixed Methods Case Study

Nurse-Led Virtual Delivery of PIECES in Canadian Long-Term Care Homes to Support the Care of Older Adults Experiencing Responsive Behaviors During COVID-19: Qualitative Descriptive Study

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