Experiences of Mandarin-speaking and English-speaking women of undergoing non-invasive prenatal genetic screening

Li, G.; Allyse, Megan

doi:10.1016/j.jemep.2016.07.007

Cited by 5 publications

(1 citation statement)

References 31 publications

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“…Empirical research on NIPT has frequently focused on practical and procedure-based considerations, aiming to guide its implementation within health systems [ 12 – 15 ]. This included women’s values on test safety [ 14 – 24 ], test precision [ 14 – 19 , 22 , 23 ], procedural ease [ 14 , 15 , 20 , 21 , 24 ], test timing in relation to the gestational age of the pregnancy [ 11 – 16 , 19 , 22 – 26 ], and their view on NIPT compared to other forms of prenatal testing or screening [ 14 , 15 , 17 , 23 ]. Other issues included financial considerations [ 15 , 18 , 20 , 23 , 24 , 26 ], counselling for NIPT and measures of informed consent [ 13 , 14 , 18 , 21 – 27 ].…”

Section: Introductionmentioning

confidence: 99%

Women’s experiences with non-invasive prenatal testing in Switzerland: a qualitative analysis

Fang,

Germani,

Spitale

et al. 2023

BMC Med Ethics

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Background Prenatal genetic testing, in particular non-invasive prenatal testing (NIPT), as well as screening for risks associated with pregnancy, and counseling, play pivotal roles in reproductive healthcare, offering valuable information about the health of the fetus to expectant parents. This study aims to delve into the perspectives and experiences of women considering genetic testing and screening during pregnancy, focusing on their decision-making processes and the implications for informed consent. Methods A nationwide qualitative study was conducted in Switzerland, involving in-depth interviews with women who were 1 to 2 years post-partum, covered by basic compulsory Swiss insurance, including women with a migration background. Thematic analysis was employed to identify key themes and patterns in the data. Results The findings underscore the significance of effective communication during prenatal counseling, suggesting that healthcare providers could not only convey technical information but also support women in their decision-making processes. Women need comprehensive information about genetic testing and its implications, as well as the reasons for screening during pregnancy, as there might be a need to bridge knowledge gaps and clarify misconceptions. Furthermore, the study highlights the multifaceted nature of decision-making, with women considering factors such as uncertainty, values, emotional responses, and societal support systems. The concept of acceptance emerged as a crucial theme, with some women expressing their readiness to love and accept their child, regardless of genetic anomalies or disabilities. Conclusion This study offers valuable insights into the perspectives and needs of women regarding prenatal genetic testing, screening, and counseling in Switzerland. It underscores the importance of enhancing the clinical interaction and informed consent process by providing comprehensive information, addressing misconceptions, and supporting women in decision-making about pregnancy management and the management of the child’s health, following prenatal genetic testing, including NIPT. These findings can inform healthcare providers and policymakers in improving the quality of prenatal counseling, ensuring informed consent, and supporting women in making well-informed and meaningful decisions about genetic testing, and on the use of screening during pregnancy.

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Section: Introductionmentioning

confidence: 99%

Women’s experiences with non-invasive prenatal testing in Switzerland: a qualitative analysis

Fang,

Germani,

Spitale

et al. 2023

BMC Med Ethics

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Buying reassurance: uptake of non-invasive prenatal testing among pregnant women of advanced maternal age in China

Qiu

2019

Health, Risk & Society

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Despite much ethical debate concerning non-invasive prenatal testing to abort or to detect genes, research on the experience of those who choose this new technology in China is limited, especially after the introduction of the Two-child Policy. In this article I analyse qualitative data from 25 interviews with pregnant women of advanced maternal age (pregnancy after 35) under the Two-child Policy, conducted in 2014 to 2016, as well as observational data from a 6-month, in-hospital participant observation in 2016. These data were collected with the aim to examine how noninvasive prenatal testing affects pregnant women's risk perceptions and why this technology is widely accepted by pregnant women of advanced maternal age in China. I conclude that the women in my study accepted their 'high-risk' identity within prenatal care, and that non-invasive prenatal testing was integrated in this care. Women's interactions with genetic counsellors, their husbands and close friends and community doctors produced anxieties, with women feeling responsible for the health of their foetuses. Consequently, the women in my study were willing to 'buy' this test for reassurance. The consumption of this new technology by pregnant women after the Two-child Policy lays a foundation for the market development of this technology in urban China.

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Decision-making about non-invasive prenatal testing: women’s moral reasoning in the absence of a risk of miscarriage in Germany

Reinsch

König

Rehmann‐Sutter

2020

New Genetics and Society

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Experiences of Mandarin-speaking and English-speaking women of undergoing non-invasive prenatal genetic screening

Cited by 5 publications

References 31 publications

Women’s experiences with non-invasive prenatal testing in Switzerland: a qualitative analysis

Women’s experiences with non-invasive prenatal testing in Switzerland: a qualitative analysis

Buying reassurance: uptake of non-invasive prenatal testing among pregnant women of advanced maternal age in China

Decision-making about non-invasive prenatal testing: women’s moral reasoning in the absence of a risk of miscarriage in Germany

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