Experiences of patients who developed oral mucositis during solid neoplasms treatment: a Ugandan qualitative study

Abstract

Background Research on the management of complications of chemotherapy is important in facilitating the growing approaches to individualized patient management. Hence the need to document patient’s perspectives about chemotherapy-induced mucositis and the support they need from cancer care teams. Methods We carried out a qualitative study using in-depth interviews (IDI) and focus group discussions (FGD). We collected patient’s experiences on chemotherapy-induced mucositis by conducting 5 FGD and 13 IDIs. Results One glaring improvement that we need to make is the provision of information and counseling before, during, and after chemotherapy. Additionally, we need to explore inexpensive mucositis preventive strategies to aid our patients as they undergo treatment. Conclusion As a country, we must move away from taking cancer patients’ needs as those of common tropical diseases. This will allow us to provide that extra help needed outside the usual diagnosis and administration of medication.

Stem cell transplantation patients receiving a novel oral care protocol for oral mucositis prevention and treatment: patient-reported outcomes and quality of life

“…1 a and b), with the nadir of QoL scores at day + 7 post-transplant. Although OM is considered one of the worst toxic effects of the conditioning regimens [20], few studies have provided any information about the link between QoL and OM in HSCT patients [44], and only one study has attempted to understand the patients' experience when affected by OM [45]. Further quantitative and qualitative studies are necessary to explore patients' perception and to enhance its role in daily practice.…”

Stem Cell Transplantation Patients Receiving a Novel Oral Care Protocol for Oral Mucositis Prevention and Treatment: Patient-reported Outcomes and Quality of Life

“…1a and b), with the nadir of QoL scores at day + 7 post-transplant. Althoug OM is considered one of the worst toxic effects of the conditioning regimens [20], few studies have provided any information about the link between QoL and OM in HSCT patients [44], and only one study has attempted to understand the patients' experience when affected by OM [45]. Further quantitative and qualitative studies are necessary to explore patients' perception and to enhance its role in daily practice.…”

Oral health of chemotherapy patients before and after provision of oral hygiene instructions at a tertiary care hospital: pre-post design

“…Numerous research studies have explored the advantages of receiving professional oral care to prevent oral mucositis (OM), but only a limited number of them have placed significant emphasis on educating patients in this regard [ 10 , 11 ]. Therefore, difficulty in the implementation of standard oral hygiene practice persists especially among cancer patients.…”