Experiences of stigma in psychosis: A qualitative analysis of service users’ perspectives

Burke, Eilish; Wood, Lisa; Zabel, Elisabeth; Clark, Alexandra; Morrison, Anthony P.

doi:10.1080/17522439.2015.1115541

Cited by 32 publications

(28 citation statements)

References 18 publications

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“…These identify the negative emotional and behavioral reactions of those experiencing internal and public stigma. Burke, Wood, Zabel, Clark, and Morrison () found that individuals who experience psychosis felt shame, fear, anxiety, hopelessness, and anger due to stigma. Participants described how negative past experiences contributed to social isolation and non‐disclosure of mental health problems, which are risk factors for worsening mental health problems, thus indicating a need to develop improved strategies to enable individuals with mental health problems to cope with stigma.…”

Section: Introductionmentioning

confidence: 99%

A qualitative study: experiences of stigma by people with mental health problems

et al. 2018

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People referred to their mental health diagnosis as a label and associated that label with stigmatizing views. Promote awareness and develop improved strategies (e.g., training) to tackle the cyclical impact of the 'hierarchy of labels' on people with mental health problems, their friends and family, and institutional stigma. Ensure the implementation of clinical guidelines in providing peer support to help people to combat feeling stigmatized. Talking about mental health in psychological therapy or health care professional training helped people to take control and develop psychological resilience.

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Section: Introductionmentioning

confidence: 99%

A qualitative study: experiences of stigma by people with mental health problems

et al. 2018

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“…Some of the reviewed articles were part of a larger study and these articles did not clearly state if the actual study had ethical approval or not. The reason for this could be that the actual qualitative study was part of a larger research project that had gained ethical approval for the whole project (Burke, Wood, Zabel, Clark, & Morrison, 2016; Kidd et al, 2016; Singh, Jakhaia, Amonashvili, & Winch, 2016). Two of the reviewed studies, one from Denmark (Bjørkedal, Torsting, & Møller, 2016) and one from the Netherlands (van Langen, Beentjes, van Gaal, der Sanden, & Goossens, 2016), indicated that they had consulted their ethics boards, which had replied that no ethical approval was needed.…”

Section: Resultsmentioning

confidence: 99%

“…The sample size varied between seven and 30 participants. In most of the articles, the authors discuss or mention the implications of a small sample size as a limitation for the research results (Bjørkedal et al, 2016; Blixen et al, 2016; Burke et al, 2016; de Jager et al, 2016; Jones et al, 2016; Landon, Shepherd, McGarry, Theadom, & Miller, 2016; Rhodes, Parrett, & Mason, 2016; Topor, Ljungqvist, & Strandberg, 2016), whereas other authors do not discuss this issue, even if fewer than 10 participants were interviewed (Singh et al, 2016; van Langen et al, 2016). …”

Section: Resultsmentioning

confidence: 99%

“…One of the authors in the reviewed articles was usually responsible for the main analysis and the other authors served as additional evaluators in the analysis procedure (Bjørkedal et al, 2016; Kidd et al, 2016; Paul, 2016; Rhodes et al, 2016). Others went a step further, and included more than one author to independently read the transcripts and initial analysis (Barut et al, 2016; Blixen et al, 2016; Burke et al, 2016; Jones et al, 2016; Landon et al, 2016; Saavedra et al, 2016; Topor et al, 2016; van Langen et al, 2016; Waite et al, 2016). …”

Section: Resultsmentioning

confidence: 99%

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Ethical and methodological issues in qualitative studies involving people with severe and persistent mental illness such as schizophrenia and other psychotic conditions: a critical review

Carlsson

Blomqvist

Jormfeldt

2017

International Journal of Qualitative Studies on Health and Well

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Undertaking research studies in the field of mental health is essential in mental health nursing. Qualitative research methodologies enable human experiences to become visible and recognize the importance of lived experiences. This paper argues that involving people with schizophrenia in research is critical to promote their health and well-being. The quality of qualitative research needs scrutinizing according to methodological issues such as trustworthiness and ethical standards that are a fundamental part of qualitative research and nursing curricula. The aim of this study was to critically review recent qualitative studies involving people with severe and persistent mental illness such as schizophrenia and other psychotic conditions, regarding descriptions of ethical and methodological issues in data collection and analysis. A search for relevant papers was conducted in three electronic databases, in December 2016. Fifteen qualitative interview studies were included and reviewed regarding methodological issues related to ethics, and data collection and analysis. The results revealed insufficient descriptions of methodology regarding ethical considerations and issues related to recruitment and sampling in qualitative interview studies with individuals with severe mental illness, putting trustworthiness at risk despite detailed descriptions of data analysis. Knowledge from the perspective of individuals with their own experience of mental illness is essential. Issues regarding sampling and trustworthiness in qualitative studies involving people with severe mental illness are vital to counteract the stigmatization of mental illness.

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“…Secondly, the large geographical coverage of NHS trusts along with poor health and mobility in older adults doubles the difficulty clients experience in accessing this service. Finally, the combination of self-stigma, stigma from society and cultures (Burke et al 2015) makes it difficult for help-seeking and for outreach services to connect with them.…”

Section: Discussionmentioning

confidence: 99%

The Adaptation and Feasibility of Narrative Enhancement and Cognitive Therapy (NECT) for Late-Onset Psychosis

Ching

Smyth

Souza

et al. 2019

Community Ment Health J

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The aim of this study is to adapt and feasibility test the narrative component of Narrative Enhancement and Cognitive Therapy (NECT) for late-onset psychosis. This study followed the development and feasibility phases of the Medical Research Council framework. The original NECT intervention was adapted based on consultations with service users, experts, and clinicians. The evaluation of the feasibility test of the adapted intervention was guided by Orsmond and Cohn (Occup Particip Health 35(3):169-177, 2015)'s model for feasibility studies. The final adaptations consist of language, readability, and delivery. The adapted intervention was tested for feasibility and acceptability with one group of five patients recruited from a National Health Service (NHS) Trust in UK Results were mixed in participant outcomes and a likelihood of acceptability of the intervention. This indicates the need for a larger scale feasibility test to explore the identified benefits and challenges of implementing NECT in NHS or community settings for late-onset psychosis.

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Experiences of stigma in psychosis: A qualitative analysis of service users’ perspectives

Cited by 32 publications

References 18 publications

A qualitative study: experiences of stigma by people with mental health problems

A qualitative study: experiences of stigma by people with mental health problems

Ethical and methodological issues in qualitative studies involving people with severe and persistent mental illness such as schizophrenia and other psychotic conditions: a critical review

The Adaptation and Feasibility of Narrative Enhancement and Cognitive Therapy (NECT) for Late-Onset Psychosis

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