Experiences of youth growing up with anorectal malformation or Hirschsprung’s disease: a multicenter qualitative in-depth interview study

Rajasegaran, Suganthi; Chandrasagran, Raymen Arviin; Tan, Shung Ken; Ahmad, Nur Aini; Lechmiannandan, Abhirrami; Sanmugam, Anand; Tan, Wei Sheng; Tan, Yew-Wei; Nah, Shireen Anne

doi:10.1007/s00383-024-05709-w

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2024

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“…The teenage years for children with continence difficulties present new challenges [12][13][14]. Children are developing a sense of their own identity and for many, for the first time, they are starting to understand the impact of their diagnosis on their quality of life, social functioning, and development of personal relationships.…”

Section: Beyond To Transitionmentioning

confidence: 99%

Hirschsprung Disease: The Role of the Clinical Nurse Specialist

Milbery,

Curry

2024

Children

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Hirschsprung disease is a life-long condition that can have a significant impact on both children and their families. This article explores the role of the clinical nurse specialist and the support they can provide from initial diagnosis through the patient’s surgical journey and right through to transition into adult services. Through the provision of education, training, signposting of social and psychological support, and linking in with community-based services, the clinical nurse specialist can help the child and family to limit that impact of the disease.

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Section: Beyond To Transitionmentioning

confidence: 99%