Explaining the Disease Management Experiences of Patients With Inflammatory Bowel Disease

Mohsenizadeh, Seyed Mostafa; Manzari, Zahra Sadat; Vossoughinia, Hassan; Ebrahimipour, Hossein

doi:10.1097/sga.0000000000000595

Cited by 3 publications

(2 citation statements)

References 19 publications

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“…Even if the symptoms were eliminated and the disease was controlled effectively, the patients still did not feel relieved. Similar to the findings of a previous study (Mohsenizadeh et al, 2022), patients with IBD reported significant disease‐related concerns even when in remission. This phenomenon could be related with the “uncertainty” in illness.…”

Section: Discussionsupporting

confidence: 89%

The symptom experience of newly diagnosed Chinese patients with Crohn's disease: A longitudinal qualitative study

Chen

Zhou

2023

Journal of Advanced Nursing

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AimsTo longitudinally explore the symptom experience of Chinese patients with Crohn's disease within the first year following their diagnosis.DesignA longitudinal qualitative study.MethodEighteen newly diagnosed Chinese patients with Crohn's disease were recruited through purposive sampling. Semi‐structured interviews were conducted at four time points: soon after diagnosis, 3, 6 and 12 months post‐diagnosis. Data were collected between January 2021 and February 2022. Conventional content analysis was used for data analysis of each time point. Afterwards, the data of each time point were compared longitudinally. COREQ checklist was followed.ResultsThree themes and eight sub‐themes were formed through analysis: feelings towards symptoms (symptoms make me feel uneasy, symptoms make me feel inferior and symptoms make me feel helpless); acceptability of symptoms (difficult to accept, have to accept, be able to accept); functions of symptoms (assessing disease conditions and treatment effects, warning of disease management).ConclusionsOverall, the negative emotions related to symptoms gradually decreased over time, and the patient's acceptance of symptoms increased within the first year following diagnosis. In addition, when the disease was in remission after treatment, the warning function of symptoms gradually weakened.ImpactThe process of how patients accept their symptoms found in this study provides a basis for nurses to improve patients' acceptance of symptoms and reduce their symptom‐related negative emotions. This study also emphasizes the phenomenon that patients gradually ignore some symptoms with their increased acceptance level, which warrants additional health education to strengthen their awareness of self‐management.Patient or public contributionNo patient or public contribution was required to design or undertake this study. Patients contributed only to the data collection and member checking.

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Section: Discussionsupporting

confidence: 89%

The symptom experience of newly diagnosed Chinese patients with Crohn's disease: A longitudinal qualitative study

Chen

Zhou

2023

Journal of Advanced Nursing

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“…Therefore, supporting patients’ ability to continue self-management is crucial in maintaining their independent self-care. Additionally, they are forced to restructure various aspects of their lives, such as employment and home life [33, 34], and are expected to reconsider their self-care practices. Therefore, health care professionals should review the existing self-management depending on the circumstances.…”

Section: Discussionmentioning

confidence: 99%

Factors of Self-care Agency in Patients with Inflammatory Bowel Disease in Japan

Mizuno,

Katashima,

Sakagami

et al. 2024

Inflamm Intest Dis

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Introduction: Currently, no self-care measurement tool specific to inflammatory bowel disease (IBD) exists in Japan. The Instrument for Diabetes Self-care Agency (IDSCA) is a reliable and valid self-care measurement tool for patients with diabetes. Factors affecting self-care ability assessed by IDSCA appear to meet the requirements for patients with IBD. Therefore, we created a self-care ability measurement tool adapted from IDSCA as an original draft for the Instrument for IBD Self-care Agency and extracted factors and items required to measure the self-care ability of patients with IBD. Methods: An anonymous questionnaire survey was distributed among 226 patients. Exploratory factor analysis examined the relationship of factors from multiple perspectives, identify factors based on their content, and confirm their internal consistency. Statistical analyses were performed using JMP🄬 14.0.0. Results: Five factors with 23 items were extracted from the IDSCA, including [Ability to build a human support system], [Ability to acquire knowledge], [Ability to maintain self-care], [Ability to self-manage], and [Ability to self-assess]. Cronbach’s alpha was 0.765–0.861 for each factor and 0.904 for the entire scale. Conclusion: We could identify the self-care agencies of patients with IBD, including 5 factors and 23 items. Focusing on these self-care factors may provide critical information to guide nurses’ self-care interventions.

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Effects of three-dimensional quality assessment nursing intervention on efficacy and disease management of patients undergoing esophageal cancer surgery

Wu,

Jin,

Chen

et al. 2024

World J Gastrointest Surg

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BACKGROUND Esophageal cancer is one of the most common malignant tumors. The three-dimensional quality structure model is a quality assessment theory that includes three dimensions: Structure, process, and results. AIM To investigate the effects of nursing interventions with three-dimensional quality assessment on the efficacy and disease management ability of patients undergoing esophageal cancer surgery. METHODS In this prospective study, the control group received routine nursing, and the intervention group additionally received a three-dimensional quality assessment intervention based on the above routine care. Self-efficacy and patient disease management abilities were evaluated using the General Self-Efficacy Scale (GSES) and Exercise of Self-Care Agency scale, respectively. IBM SPSS Statistics for Windows, version 17.0, was used for the data processing. RESULTS This study recruited 112 patients who were assigned to the control and experimental groups (n = 56 per group). Before the intervention, there was no significant difference in GSES scores between the two groups (P > 0.05). After the intervention, the GSES scores of both groups increased, with the experimental group showing higher values (P < 0.05). At the time of discharge and three months after discharge, the scores for positive attitudes, self-stress reduction, and total score of health promotion in the experimental group were higher than those in the control group (P < 0.05). CONCLUSION The implementation of a three-dimensional quality structure model for postoperative patients with esophageal cancer can effectively improve their self-management ability and self-efficacy of postoperative patients.

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Explaining the Disease Management Experiences of Patients With Inflammatory Bowel Disease

Cited by 3 publications

References 19 publications

The symptom experience of newly diagnosed Chinese patients with Crohn's disease: A longitudinal qualitative study

The symptom experience of newly diagnosed Chinese patients with Crohn's disease: A longitudinal qualitative study

Factors of Self-care Agency in Patients with Inflammatory Bowel Disease in Japan

Effects of three-dimensional quality assessment nursing intervention on efficacy and disease management of patients undergoing esophageal cancer surgery

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