Explaining the use and non‐use of community‐based long‐term care services by caregivers of persons with dementia

Markle‐Reid, Maureen; Browne, Gina

doi:10.1046/j.1365-2753.2001.00306.x

Cited by 27 publications

(23 citation statements)

References 80 publications

(215 reference statements)

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“…These factors contributed to the delayed, under-utilization or inappropriate utilization of community services. These findings are consistent with the research of others (e.g., Brodaty, Thomson, Thompson, & Fine, 2005;Hawranik & Strain, 2007;Lévesque, Cossette, Potvin, & Benigeri, 2000;Markle-Reid & Browne, 2001). Caregivers' stoicism, self-reliance, feelings of obligation and commitment, and psychological distress may contribute to the under-utilization of services.…”

Section: Discussionsupporting

confidence: 93%

Availability and Acceptability of Canadian Home and Community-Based Services: Perspectives of Family Caregivers of Persons with Dementia

Forbes

Markle‐Reid

Hawranik

et al. 2008

Home Health Care Services Quarterly

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Thirty-five percent of Canadians over the age of 85 have dementia, and up to 90% of their home care is provided by family and friends. The purpose of this study was to explore the use and satisfaction with home and community-based services for persons with dementia from the perspectives of family caregivers. The study was conducted using an interpretive, descriptive, qualitative approach. Six focus groups (N = 36) and three personal interviews were conducted with rural and urban caregivers in Ontario, Manitoba, and Saskatchewan, Canada. Using Lubrosky's (1994) thematic analysis, the overarching themes identified were availability and acceptability of services. The findings suggest a need for an integrated continuing care model that includes the person living with dementia and their family caregivers as partners in care, addresses all of the determinants of health, and embraces sensitivity, diversity, flexibility, and supportive services to enhance the availability and acceptability of Canadian home and community-based services.

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Section: Discussionsupporting

confidence: 93%

Availability and Acceptability of Canadian Home and Community-Based Services: Perspectives of Family Caregivers of Persons with Dementia

Forbes

Markle‐Reid

Hawranik

et al. 2008

Home Health Care Services Quarterly

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“…Ratings are summed for a total score. A score of less than 21 indicates the individual is not depressed (Markle-Reid & Browne, 2001). The short, easily administered scale is widely used to measure depression in nonpsychiatric populations (Radloff, 1977;Radloff & Locke, 1986).…”

Section: Methodsmentioning

confidence: 99%

Impact of Support Services Provided by a Community-Based AIDS Service Organization on Persons Living With HIV/AIDS

Crook

Browne²,

Roberts³

et al. 2005

Journal of the Association of Nurses in AIDS Care

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This study examined demographic, health-related, social support, and service utilization characteristics of clients with high and low use of a community-based AIDS service organization in Canada. The study confirmed that the organizations' services were reaching the most vulnerable persons living with HIV/AIDS. It found that a significantly greater number of high users compared with low users were single, lived alone, and reported poorer health. The similarity in functional health status and depression between user groups, despite high users' poorer health and greater social vulnerability, supports client reports that services have reduced client isolation and improved health-related quality of life. Finally, high users had lower expenditures for government-provided health and social services overall, particularly HIV specialists and AIDS medication, but significantly more expenditures for emergency room services and complementary therapies. The results suggest community-based services can enhance health-related quality of life for persons living with HIV/AIDS by increasing providers' capacity to identify and address client depression and its consequences.

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“…As society confronts demographic changes (Lyons & Zarit, 1999;Markle-Reid & Browne, 2001), and the benefits of early intervention become more apparent (Alzheimer Scotland Action on Dementia, 2003;Zarit et al, 1999), there is an increasingly urgent need to understand how best to meet the needs of people with dementia at an earlier stage. Despite this growing need for early intervention for people with dementia, it is still unclear what factors increase the likelihood that people with dementia and their carers will engage with services.…”

Section: Introductionmentioning

confidence: 99%

‘It's like a revolving door syndrome’: Professional perspectives on models of access to services for people with early-stage dementia

Pratt

Clare

Kirchner³

2006

Aging & Mental Health

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As the need for services for people with dementia grows, and the benefits of early intervention become clear, it has become important to understand what factors may improve access to services for people with early-stage dementia. There are a number of models of service access, and these emphasise different areas, whether individual factors, relationships, or social context. The relevance of these models to variations in service access for people with early-stage dementia, and how well they relate to professional accounts, is not well known. In this study, 30 key professionals were interviewed about access to services for people with early-stage dementia in order to explore how different models of access were reflected in their own understandings. People with early-stage dementia were thought to have a range of complex needs, but participants felt these needs remained largely unmet. When articulating the reasons why they thought needs were unmet, participants focused on the impact of the framework within which services are delivered. The findings highlight the importance of considering relationships and socio-contextual factors, such as the impact of the framework of service delivery, when attempting to understand variations in access to services. In order to improve access to services, it will be necessary to move beyond addressing individual factors relating to access, and to consider the impact of the framework for service delivery and the relationships that influence contact with services.

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Explaining the use and non‐use of community‐based long‐term care services by caregivers of persons with dementia

Cited by 27 publications

References 80 publications

Availability and Acceptability of Canadian Home and Community-Based Services: Perspectives of Family Caregivers of Persons with Dementia

Availability and Acceptability of Canadian Home and Community-Based Services: Perspectives of Family Caregivers of Persons with Dementia

Impact of Support Services Provided by a Community-Based AIDS Service Organization on Persons Living With HIV/AIDS

‘It's like a revolving door syndrome’: Professional perspectives on models of access to services for people with early-stage dementia

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