Explanatory Models of Illness May Facilitate Cultural Competence in Genetic Counseling

Abad, Peter James B.

doi:10.1007/s10897-012-9487-9

Cited by 8 publications

(9 citation statements)

References 10 publications

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“…Hence, it is important to assess a patient's beliefs about cancer etiology before presenting numerical risk information (Trepanier et al 2004). Abad (2012) proposed the need for the genetic counselors practicing in the Philippines to use explanatory models of illness, e.g., Kleinman's framework (Table 4). This will provide an opportunity for genetic counselors to obtain information about the patient's understanding and perception of genetic risks and overall acceptance of the disease (Abad 2012).…”

Section: Cancer Genetic Counseling Implicationsmentioning

confidence: 99%

Risk perception and screening behavior of Filipino women at risk for breast cancer: implications for cancer genetic counseling

et al. 2018

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The burden and experiences that come with a breast cancer diagnosis in a family impact how women perceive personal cancer risk and pursue preventive strategies and/or early detection screening. Hence, this study sought to understand how Filipino women incorporate their experiences living with a sister diagnosed with early-onset breast cancer to their personal perceived risk and screening behavior. Guided by phenomenological approach of inquiry, a face-to-face, semi-structured interview was conducted with 12 purposively sampled women with a female sibling diagnosed with breast cancer before age 50. Transcripts were analyzed using thematic analysis. Results revealed that the respondents tend to compare themselves with their sister when constructing views of personal cancer vulnerability. The subjective risk is also shaped by their beliefs regarding cancer causation such as personalistic causes, personal theory of inheritance, and locus of control. Their sisters' cancer diagnoses serve as a motivation for them to perform breast self-examination. However, clinical breast examination and screening mammography are underutilized due to perceived barriers such as difficulty allotting time to medical consultation, fear, and lack of finances. Overall, cancer risk perception and screening behavior are important factors that must be addressed during cancer genetic counseling consultations. Better understanding of these factors will aid in the formulation of an effective management plan for at-risk women.

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Section: Cancer Genetic Counseling Implicationsmentioning

confidence: 99%

Risk perception and screening behavior of Filipino women at risk for breast cancer: implications for cancer genetic counseling

et al. 2018

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“…Indeed, the strong influence of culture on an individual's understanding of genetic conditions is partly attributed to the minimal or even non-existent basic comprehension of genetic terminologies and concepts (Abad 2012). This limited knowledge on genetic concepts is not only a concern in developing countries like the Philippines.…”

Section: Implications In Genetic Counselingmentioning

confidence: 99%

“…It is the understanding that a cultural divide exists between the patient and health professional (Winkelman 2009). Though challenging to always be cognizant to cultural awareness, Abad (2012) suggests that the use of explanatory models (EM) of illness could facilitate this task. It provides a framework on the understanding of a patient on the cause of his/her illness, and this may include the meanings and values he/she associates with the condition (Winkelman 2009;Kleinman et al 1978).…”

Section: Introductionmentioning

confidence: 99%

“…It provides a framework on the understanding of a patient on the cause of his/her illness, and this may include the meanings and values he/she associates with the condition (Winkelman 2009;Kleinman et al 1978). Eliciting the EM of genetic illnesses is an important first step since it ensures that the patient and the health care provider (e.g., genetic counselor) are communicating in the same contextual framework, thus minimizing the cultural barrier that initially exists between the two (Winkelman 2009;Abad 2012).…”

Section: Introductionmentioning

confidence: 99%

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Cultural beliefs on disease causation in the Philippines: challenge and implications in genetic counseling

et al. 2014

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The provision of culturally competent health care is an important professional issue recognized by the pioneer genetic counselors in the Philippines. Being an archipelago consisting of 7,107 islands, the Philippines has approximately 175 ethnolinguistic groups with their own unique cultural identity and health practices. The emphasis on culture in our genetic counseling training recognizes its crucial role in molding an individual's conceptualization of health, as well as other life aspects, especially since the Filipino culture is a mixture of indigenous as well as imported and borrowed elements. As part of this endeavor, we will describe in this paper seven common Filipino cultural beliefs: namamana, lihi, sumpa, gaba, pasma, namaligno, and kaloob ng Diyos. We will also share examples on how these common beliefs provide explanation as cause of illness and its implications in our genetic counseling profession.

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“…The populations of developed countries, such as the USA, are discussing clinical guidelines, regulatory policies and the educational effort that will be needed to promote the informed use of the genetic tests that are being sold and advertised to consumers and healthcare providers, as well as the impact on healthcare providers selling and advertising genetic tests directly to consumers (Myers 2011). In contrast, the majority of the populations in underdeveloped countries, including Brazil, the Philippines, India and Turkey, do not seem have the minimum knowledge about genetic terminology or biological concepts (Mohanty and Das 2011;Tschudin et al 2011;Abad 2012). For example, consanguineous marriages that are rare in developed countries are still a GC challenge in some populations with around 1.1 billion people currently living in countries where consanguineous marriages are customary (Strauss 2009;Chkioua et al 2011;Hamamy et al 2011).…”

Section: Introductionmentioning

confidence: 99%

Effects of a Genetic Counseling Model on Mothers of Children with Down Syndrome: A Brazilian Pilot Study

Micheletto

Valerio

Fett‐Conte

2013

Journal of Genetic Counseling

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Down syndrome occurs in approximately 1:600 live births. Genetic counseling is indicated for these families and may be beneficial for adaptation to the challenges that accompany by this diagnosis. Although the basic counseling goals are similar, there are many models of genetic counseling practiced around the world. The aim of this article is to report the results of a pilot study that evaluated the level of satisfaction with a model of service delivery of genetic counseling practiced in Brazil, the knowledge assimilated about Down syndrome and whether this process resulted in a feeling of well-being and psychological support. Thirty mothers of under 6-month-old children with Down syndrome were interviewed after having two sessions of genetic counseling in a public healthcare service within a period of 30 days. A semi-structured questionnaire was developed by the researchers to collect identification, socioeconomic and demographic data and to assess the client's satisfaction with the model of genetic counseling. Data were collected using both open and closed questions. The reported level of satisfaction was high. The knowledge assimilated about Down syndrome after only two sessions was considered technically vague by raters in 44 % of cases. Most mothers (96.7 %) reported that genetic counseling was beneficial and provided psychological support. The model was considered satisfactory, but further research is needed to identify ways to improve knowledge retention by this population. These results highlight the utility of referring families for genetic counseling when there is a suspicion of a diagnosis of Down syndrome.

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Explanatory Models of Illness May Facilitate Cultural Competence in Genetic Counseling

Cited by 8 publications

References 10 publications

Risk perception and screening behavior of Filipino women at risk for breast cancer: implications for cancer genetic counseling

Risk perception and screening behavior of Filipino women at risk for breast cancer: implications for cancer genetic counseling

Cultural beliefs on disease causation in the Philippines: challenge and implications in genetic counseling

Effects of a Genetic Counseling Model on Mothers of Children with Down Syndrome: A Brazilian Pilot Study

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