Exploration of home care resources for rural families with cancer

Buehler, Janice A.; Lee, Helen J.

doi:10.1097/00002820-199215040-00008

Cited by 30 publications

(9 citation statements)

References 0 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…By studying people who had cared for family members dying of cancer while living in a rural setting, Buehler and Lee (1992) found that the greater the deterioration of the ill person and the longer the dying trajectory, the more families saw their role as difficult and perceived resources to be inadequate. Buehler and Lee suggest that nurse case management for rural/frontier families facilitates family ability to meet caregiving demands.…”

Section: Literature Reviewmentioning

confidence: 99%

The Labor of Caregiving: A Theoretical Model of Caregiving During Potentially Fatal Illness

Brown

Stetz

1999

Qual Health Res

View full text Add to dashboard Cite

The purpose of this study was to explore the influence that chronic and potentially fatal illness has on the caregiving process over time. Data were collected through in-depth interviews with 26 family caregivers of people experiencing AIDS or advanced cancer over a 4-month period. Constant comparative analysis was used to analyze the data. A substantive theory of family caregiving for people with life-threatening illnesses was developed around a core organizing theme: the labor of caregiving. Four phases emerged: becoming a caregiver, taking care, midwifing the death, and taking the next step. This study validates the taking-care or "tasks" aspect of caregiving, revealing that issues and tasks vary in each phase of caregiving. The key role of the caregiver in contributing to the quality of life of the ill person was apparent in the initial phase of an illness as well as at the time of death.

show abstract

Section: Literature Reviewmentioning

confidence: 99%

The Labor of Caregiving: A Theoretical Model of Caregiving During Potentially Fatal Illness

Brown

Stetz

1999

Qual Health Res

View full text Add to dashboard Cite

show abstract

“…While the number of hospices has grown in the last twenty years, less than 25% of the dying in the United States access this specialized service (Von Gunten, Neely & Martinez, 1996). For rural populations, hospice expertise may not exist locally (Buehler & Lee, 1992). Some patients experience their illness in isolation, without caregiver support from family or friends (Smith, 1994).…”

Section: Introductionmentioning

confidence: 99%

Telehospice: Using Telecommunication Technology for Terminally Ill Patients

Whitten¹,

Doolittle

Hellmich

2006

Journal of Computer-Mediated Communication

View full text Add to dashboard Cite

In 2000, a bi‐state telehospice project was launched in Michigan and Kansas, designed to provide end‐of‐life services to hospice patients and their caregivers. Videophones were placed in the homes of hospice patients and hospice providers used this technology to supplement traditional care. This paper presents preliminary results from the first of this two‐year project. Methods: Hospice providers (nurses and social workers) completed pre‐perception surveys. Hospice patients/caregivers participated in open‐ended telephone interviews. Patients choosing not to receive the service completed a decline survey to document the reasons for their decision. Finally, activity logs and patient charts yielded utilization data. Results: Hospice providers are cautiously enthusiastic about telehospice, but initially skeptical about the comparable quality with traditional visits. Patients and caregivers using telehospice, on the other hand, are uniformly positive about the service and wish to see increased utilization within their own care plans. Utilization data indicate steady use with decline forms reflecting some patients' hesitancy in receiving the service in the first place due to feeling overwhelmed.

show abstract

“…4 A variety of reasons have been proposed for failure to access hospice care including geographic isolation in the rural sector, lack of referral by the primary care physician, patient refusal, and cost. [6][7][8] Because it is delivered at the patient's home, hospice care telemedicine may be especially appropriate. This allows for the consultative portion of the patient-provider interaction to occur online, in real time, leaving the hands-on aspects of care to a caregiver in the patient's home.…”

Section: Introductionmentioning

confidence: 99%

An Empirical Chart Analysis of the Suitability of Telemedicine for Hospice Visits

Doolittle

Whitten

McCartney

et al. 2005

Telemedicine and e-Health

View full text Add to dashboard Cite

Telehospice (TH) utilizes telemedicine technology to provide care at the end of life. A bistate project was launched in 1998 to study the use of home-based telemedicine for routine hospice care. Videophones were deployed for telenursing visits and evaluations by social workers. In order to determine what proportion of home hospice visits could be performed using currently available telemedicine technology, we reviewed clinical records retrospectively for hospice nurse home visits. Clinical notes documenting home nursing visits were obtained from two large hospices, one based in Kansas, and the other in Michigan. Records were randomly selected for patients who received hospice nurse visits during the month of January 2000. The charts were reviewed for patient demographic information, patient assessments, teaching activities, and interventions. Five hundred ninety-seven nursing notes were analyzed using an 85-item coding instrument. After careful review of the records, the coders also made a subjective observation regarding the suitability of each visit for telemedicine. As part of this analysis, we found that 64.5% of home hospice nursing visits could be performed by telemedicine. Using TH, it is possible to reduce the number of in-person visits, thereby significantly decreasing the cost of providing hospice care.

show abstract

Exploration of home care resources for rural families with cancer

Cited by 30 publications

References 0 publications

The Labor of Caregiving: A Theoretical Model of Caregiving During Potentially Fatal Illness

The Labor of Caregiving: A Theoretical Model of Caregiving During Potentially Fatal Illness

Telehospice: Using Telecommunication Technology for Terminally Ill Patients

An Empirical Chart Analysis of the Suitability of Telemedicine for Hospice Visits

Contact Info

Product

Resources

About