Exploring family members’ and health care professionals’ perceptions on ICU diaries: a systematic review and qualitative data synthesis

Barreto, Bruna Brandão; Luz, Mariana; Lopes, Selma Alves Valente do Amaral; Rosa, Régis Goulart; Gusmao-Flores, Dimitri

doi:10.1007/s00134-021-06443-w

Cited by 31 publications

(30 citation statements)

References 55 publications

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“…It also helped to humanize the ICU staff, increasing trust. Even when patients did not survive, family members saw the ICU diary as a living memory of their loved one (13). Since the ICU diary is seen as a gift, the above-mentioned experiences are reason enough to try to implement the ICU diary however possible in the ICU.…”

Section: Discussionmentioning

confidence: 99%

“…It seems clear from the literature that the ICU diary is a valuable tool for the recovery of critical illness and is deeply appreciated by both patients and family members (12, 13). As long as it was understandable and there were no, or very few, days missing, patients believed that the diary helped them understand the critical illness and better accept the process of recovery (12). It also changed their perception of the healthcare professionals and allowed them to see all the love and care received from their loved ones (12).…”

Section: Discussionmentioning

confidence: 99%

“…As long as it was understandable and there were no, or very few, days missing, patients believed that the diary helped them understand the critical illness and better accept the process of recovery (12). It also changed their perception of the healthcare professionals and allowed them to see all the love and care received from their loved ones (12). Family members also valued the ICU diary because it gave them the feeling of being involved with the patient’s care and increased the sense of togetherness (13).…”

Section: Discussionmentioning

confidence: 99%

“…In a recent qualitative synthesis, patients identified components of the ICU diary that they perceived as important for recovery (12). The aim of this analysis is to identify which set of components contributed to the diary’s effectiveness in RCTs, improving our understanding of this complex intervention.…”

mentioning

confidence: 99%

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Using Qualitative Synthesis to Explore Heterogeneity of Randomized Trials on ICU Diaries*

Barreto¹,

Luz²,

Gusmao-Flores³

2022

Critical Care Medicine

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Objective: We aimed to identify which set of components differentiates the ICU diaries that were effective in reducing psychologic symptoms after critical illness. Data Sources: We searched the online databases MEDLINE, OVID, Embase, and EBSCOhost from inception to December 2021. Study Selection: Randomized controlled trials (RCTs) of the ICU diary were included, irrespective of the language, with samples of adult patients (≥ 18 yr old) and/or their relatives hospitalized in an ICU for more than 24 hours. Two qualitative syntheses on patients’ and healthcare providers’ perceptions on the ICU diary were included. Data Extraction: Four findings were extracted from the qualitative synthesis of patients’ perspectives on the ICU diary. From the RCTs, we extracted the components of the ICU diary and whether the patients were ventilated for at least 3 days. We reported the outcome as effective or not, regardless of the psychiatric symptoms and diagnostic tools used for evaluation. We built a matrix in which each column represented a recommendation for an intervention component derived from the qualitative review, and each row represented whether the components of an individual trial’s intervention matched any of the recommendations. Data Synthesis: Eight RCTs were included in the final analysis. The sample of five studies consisted of patients under mechanical ventilation (MV) for at least 3 days. Two were positive trials. Three RCTs included family members, and two of those were positive trials. CONCLUSIONS: For patients under MV for at least 3 days, the ICU diaries that were effective in preventing psychiatric symptoms after critical illness were written by the ICU staff, delivered after hospital discharge, and read with a healthcare professional in order to better understand the diary and the ICU stay. For family members, the presence of photographs was the only characteristic identified a successful ICU diary.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

mentioning

confidence: 99%

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Using Qualitative Synthesis to Explore Heterogeneity of Randomized Trials on ICU Diaries*

Barreto¹,

Luz²,

Gusmao-Flores³

2022

Critical Care Medicine

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“…Auch in Metasynthesen qualitativer Studien berichten die meisten Patient:innen von positiven Erfahrungen mit dem Tagebuch der Intensivstation, wie ein Verstehen des Erlebten, Verstehen des Genesungsprozesses, Kohärenz von Alpträumen, Bedeutung der Anwesenheit von Familie sowie eine Humanisierung von Gesundheitsfachkräften [ 4 ].…”

Section: Intensivtagebücherunclassified

Das Intensivtagebuch – ein kommunikativer Brückenschlag

Krotsetis

Deffner

Nydahl

2022

Med Klin Intensivmed Notfmed

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Tagebücher auf Intensivstationen werden meist von Familien und Pflegenden für Patient:innen mit Bewusstseinsstörungen geschrieben. In dem Tagebuch wird in laienverständlicher Sprache die Geschichte der Patient:innen anhand täglicher Berichte beschrieben. Patient:innen können später das Tagebuchbuch lesen und ihre Erfahrungen und Erlebnisse verarbeiten und ggf. anders bewerten. Intensivtagebücher senken die Risiken für psychosoziale Folgeschäden bei Patient:innen und Familien und sind mittlerweile weltweit verbreitet. Tagebücher haben unterschiedliche Zwecke und dienen auch der Kommunikation: Es werden Worte an eine Person geschrieben, die sie später hoffentlich lesen wird. Dies kann Familien darin unterstützen, verbunden zu bleiben und die Situation besser zu bewältigen. Gleichzeitig kann das Schreiben eines Tagebuchs auch von einigen Angehörigen und Pflegenden als Belastung empfunden werden, weil keine Zeit verfügbar ist oder es zu nahe scheint. Intensivtagebücher können als ein Mittel zur patienten- und familienzentrierten Versorgung genutzt werden.

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