Exploring Parents' Self‐Blame in Relation to Adolescents' Mental Disorders

Moses, Tally

doi:10.1111/j.1741-3729.2010.00589.x

Cited by 87 publications

(97 citation statements)

References 66 publications

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“…This pattern can be explained via different mechanisms; for instance, through parental worries about the present (e.g., meeting daily demands in school) and future (e.g., occupation potential) of their child [31]; and through parental feelings that they are to blame for their child's mental disorder [47]. Furthermore, the impact on parents could be heightened because these children need more support (e.g., doing homework), which leads to less free time for the parents, less time the parents have available for other family members, and their need for greater organizational effort to balance the child's care and parents' work [48].…”

Section: Parent Ratingsmentioning

confidence: 99%

Health-related quality of life among children with mental disorders: a systematic review

2012

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PURPOSE: To systematically review studies about the quality of life (QOL) of children with various mental disorders relative to healthy controls and to describe limitations in these studies. METH-ODS: Relevant articles were searched using different databases, by checking reference lists and contacting experts. We included articles that either compared children with mental disorders to healthy controls/norm values or made such a comparison possible. RESULTS: Sixteen out of 4,560 articles met the pre-defined inclusion criteria. These studies revealed that the QOL of children with various mental disorders is compromised across multiple domains. The largest effect sizes were found for psychosocial and family-related domains and for the total QOL score, whereas physical domains generally were less affected. The most important limitations in the existing literature include the lack of study samples drawn from the general population, the failure to use self-ratings, not considering item overlap between measuring QOL and assessing for the presence of a particular mental disorder, and not determining whether the children were receiving medication for their mental disorder. CONCLUSIONS: Children with mental disorders experience a considerable reduction in QOL across various domains. Research studies that avoid previous limitations are crucial to fill existing knowledge gaps. Results: Sixteen out of 4,560 articles met the pre-defined inclusion criteria. These studies revealed that the QOL of children with various mental disorders is compromised across multiple domains. The largest effect sizes were found for psychosocial and family-related domains and for the total QOL score, whereas physical domains generally were less affected.The most important limitations in the existing literature include the lack of study samples drawn from the general population, the failure to use self-ratings, not considering item overlap between measuring QOL and assessing for the presence of a particular mental disorder, and not determining whether the children were receiving medication for their mental disorder. Conclusions:Children with mental disorders experience a considerable reduction in QOL across various domains. Research studies that avoid previous limitations are crucial to fill existing knowledge gaps.

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Section: Parent Ratingsmentioning

confidence: 99%

Health-related quality of life among children with mental disorders: a systematic review

2012

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“…Mental health problems are, among other conditions, prevalent in this age group due to the early onset of many disorders [3][4][5][6][7]. Such problems also account for a large proportion of the disease burden in young people [7,8], compromise various quality of life domains [9] and exert an additional impact upon parents (e.g., experiencing stigma or self-blame) [10][11][12][13].…”

Section: Introductionmentioning

confidence: 99%

Children with mental versus physical health problems: differences in perceived disease severity, health care service utilization and parental health literacy

Dey

Wang

Jorm

et al. 2014

Soc Psychiatry Psychiatr Epidemiol

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2 ABSTRACTPurpose: To compare children with mental and physical health problems regarding i) perceived disease severity; ii) the impact of their condition on their families; iii) their utilization of health care services (including satisfaction with care); and iv) parents' health literacy about their child's condition and its treatment. Furthermore, we examined whether parents' health literacy differs between types of mental health condition. Methods:Parental reports about their 9 to 14 year old children with mental (n=785) or physical health problems (n=475) were analysed from the population-based National Survey of Children with Special Health Care Needs in Switzerland.Results: Mental health problems were perceived as being more severe (p<.001) and exerting a larger impact upon the family (e.g., financial impact) than physical health problems. Furthermore, fewer parents of children with a mental health problem mentioned having a particular person or place to contact if they needed information or advice regarding the child's condition (p=.004) and were satisfied with the health care services their child received (p<.001). The odds of low health literacy was higher among parents with children suffering from mental health problems versus parents of children with physical health problems (OR in the adjusted model=1.92; 95% CI = 1.47-2.50; p<.001); this finding held generally for mental health problem (although only a trend was observable for internalizing problems). Conclusions:The large impact of children's mental health conditions on themselves and their families might be reduced by adapting the provision of health care and by increasing parents' health literacy.

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“…As previously noted, the parents in the study clearly experienced significant self-blame for their child's illness. In a study of parental self-blame, Moses (2010b) found that 60% of the 70 caregiver sample felt fully or partially responsible for their adolescents' Similarly, a process occurred in this present research where parent blame morphed into staff blame.…”

Section: Principal Theme 3: Ubiquitous Painmentioning

confidence: 87%

“…This suggests that a role for teams could be to act as a reflexive sounding board for parents who are usually in a state of anxious confusion about their child's well-being. By doing so, teams have the opportunity to challenge some of the myths of mental illness with the parents while at the same time addressing their own biases and assumptions (Moses, 2010b). Geraghty et al's (2011) study of 50 caregiver experiences also revealed that when staff took the time to respond to parent needs, frustration and stress were considerably reduced.…”

Section: The Importance Of Reflexivity In the Teammentioning

confidence: 99%

“…Disenfranchised grief has been defined as when an individual incurs a personal loss that is not openly acknowledged, socially sanctioned, or publicly mourned (Doka, 2009). The literature has consistently shown that while those individuals and families who have experienced mental illness also encounter significant stigma, the parents in particular tend to be blamed for their child's illness (Hinshaw & Stier, 2008;Moses, 2010aMoses, , 2010b. Consequently, when their child becomes unwell, there is less opportunity for any resultant losses to be acknowledged and consequently grieved.…”

Section: The Parent's Experience Of Their Child's Mental Illnessmentioning

confidence: 99%

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The long sleep-over: the lived experience of teenagers, parents and staff in an adolescent psychiatric unit

Ward¹

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Adolescents are in a particular life cycle stage that involves numerous psychosocial changes. When this stage of life is compounded by serious mental health difficulties, the effects can have significant repercussions for both teenager and family. For some adolescents, an extended inpatient stay is necessary in order to address these difficulties. This research investigates the subjective experience of adolescents, their parents and staff who live, work and have a child in such a facility; the Barrett Adolescent Centre (BAC) located in Brisbane Australia. The qualitative study was completed by the sole social work practitioner who was employed at the Unit for over eight years.The Unit was a long stay residential facility and provided the opportunity to collect data over an extended period of time. The research therefore emerges from an insider, practitioner-researcher context. The primary research question focused on how the collective experiences of adolescent consumers, parents and staff can inform mental health practice in adolescent residential settings.A review of the literature suggests that there is a strong tendency to incorporate concepts from the adult mental health literature into adolescent mental health practice. The notion of recovery is an example, which is heavily influenced by conceptualisations of adult experience. Consequently, the aim of the present research was to better understand the participants holistically, but also in the appropriate developmental context; incorporating the social, emotional and experiential domains that form the lived experience of inpatient life. Broadly speaking, the key areas of interest included how the notion of recovery was experienced by the adolescents, the experiences of the parents during their child's inpatient stay, and the experiences of the staff while helping the adolescents.The research emphasises and values subjectivity as well as the interpretation of significant personal experience. Subsequently, the study is located within an interpretative phenomenological analysis frame. It is also informed by critical realism that posits that mental illness is an objectively real phenomenon, though experienced uniquely by each individual affected by it. Semi-structured interviews formed the basis of the data, involving the three population groups of adolescent inpatients, their parents and staff. A total of 13 adolescents, 10 staff and 8 parents were interviewed.Single interviews were utilised for all participant groups as well as a small focus group of the three primary staff professions; that of Allied Health, Nursing and Education. The use of photography was also utilised with the adolescents in order to explore various facets of the therapeutic milieu from their perspective. The adolescents were also offered successive interviews over a number of ii months to enrich the picture of inpatient life. Elements such as family, education, consumer-staff relations as well as the recovery process were investigated.Hermeneutical thematic analysis uncovered ric...

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Exploring Parents' Self‐Blame in Relation to Adolescents' Mental Disorders

Cited by 87 publications

References 66 publications

Health-related quality of life among children with mental disorders: a systematic review

Health-related quality of life among children with mental disorders: a systematic review

Children with mental versus physical health problems: differences in perceived disease severity, health care service utilization and parental health literacy

The long sleep-over: the lived experience of teenagers, parents and staff in an adolescent psychiatric unit

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