Exploring Patient Experiences of Cancer Services in Regional Australia

Drury, Vicki; Inma, Chutarat

doi:10.1097/ncc.0b013e3181af5675

Cited by 18 publications

(32 citation statements)

References 39 publications

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“…Access to cancer care for people from rural Australia is an ongoing challenge (Drury & Inma ; Burris & Andrykowski ; White et al . , ; Smith et al .…”

Section: Introductionmentioning

confidence: 99%

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Returning home: psychosocial care during the re-entry phase of cancer survivorship in rural Australia

Pascal

Johnson

Dickson‐Swift

et al. 2014

Eur J Cancer Care (Engl)

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The purpose of this research was to highlight gaps in formal psychosocial care for cancer survivors in rural communities. The study was conducted in rural Victoria, Australia, and involved interviews with people with various stages of cancer progression, cancer diagnoses and survival times, who were interviewed about their experiences of psychosocial cancer care. Interviews focused on their experience of psychosocial care and were audio-recorded and transcribed verbatim. Data were thematically analysed to identify key themes. Findings demonstrate that psychosocial care is essentially informal within the re-entry period after cancer diagnosis and treatment. Despite current Australian clinical guidelines on psychosocial care for people with cancer, which indicate the need for the provision of formal psychosocial care, participants in this study largely cared for themselves, or received informal support from family, friends and community members. Many psychosocial needs remained unmet and professional support was lacking. While this study was conducted in rural Australia, many of our findings have been echoed in studies from other countries. The findings have implications for treatment protocols and discharge planning, health professional-patient-family relationships, and the long-term well-being of cancer survivors living in rural communities. A model for understanding the experience of formal supportive care during the re-entry phase of survivorship is proposed.

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“…Access to cancer care for people from rural Australia is an ongoing challenge (Drury & Inma ; Burris & Andrykowski ; White et al . , ; Smith et al .…”

Section: Introductionmentioning

confidence: 99%

“…; National Rural Health Alliance ; Smith ). Poor service accessibility in under‐funded, under‐resourced, rural communities is well documented in both Australia and internationally (Drury & Inma ; Burris & Andrykowski ; White et al . , ).…”

Section: Introductionmentioning

confidence: 99%

Returning home: psychosocial care during the re-entry phase of cancer survivorship in rural Australia

Pascal

Johnson

Dickson‐Swift

et al. 2014

Eur J Cancer Care (Engl)

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“…2008; Onega et al . 2008; Drury & Inma 2010), income (van Doorslaer et al . 2006), ethnicity (Shi & Stevens 2005) and health insurance (Hoffman & Paradise 2008).…”

Section: Introductionmentioning

confidence: 99%

Cancer patients' concerns regarding access to cancer care: perceived impact of waiting times along the diagnosis and treatment journey

Paul

Carey

Anderson

et al. 2011

European Journal of Cancer Care

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Waiting times can raise significant concern for cancer patients. This study examined cancer patients' concern levels at each phase of waiting. Demographic, disease and psychosocial characteristics associated with concern at each phase were also assessed. 146 consenting outpatients (n= 146) were recruited from two hospitals in Sydney, Australia. Each completed a touch-screen computer survey, asking them to recall concern experienced regarding waiting times at each treatment phase. Approximately half (52%) reported experiencing concern during at least one treatment phase, while 8.9% reported experiencing concern at every phase. Higher proportions of patients reported concern about waiting times from: deciding to have radiotherapy to commencement of radiotherapy (31%); the first specialist appointment to receiving a cancer diagnosis (28%); and deciding to have chemotherapy to commencement of chemotherapy (28%). Patient groups more likely to report concern were those of lower socio-economic status, born outside Australia, or of younger age. Although a small proportion of patients reported very high levels of concern regarding waiting times, the experience of some concern was prevalent. Opportunities for reducing this concern are discussed. Vulnerable groups, such as younger and socio-economically disadvantaged patients, should be the focus of efforts to reduce waiting times and patient concern levels.

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“…Furthermore, participants indicated that there was a need to have contact with other people going through a similar situation and social outlets, as they were "lonely and bored" (McGrath, 2001). However, there is emerging evidence to suggest that the employment of Cancer Care Coordinators in rural and regional areas has reduced some of the challenges experienced by patients returning home from a specialist metropolitan hospital, giving subsequent rise to perceived wellbeing (Bray et al, 2011;Drury and Inma, 2010).…”

Section: Introductionmentioning

confidence: 96%

Disease isolation: The challenges faced by mothers living with multiple myeloma in rural and regional Australia

Wagland

Levesque

Connors

2015

European Journal of Oncology Nursing

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Exploring Patient Experiences of Cancer Services in Regional Australia

Cited by 18 publications

References 39 publications

Returning home: psychosocial care during the re-entry phase of cancer survivorship in rural Australia

Returning home: psychosocial care during the re-entry phase of cancer survivorship in rural Australia

Cancer patients' concerns regarding access to cancer care: perceived impact of waiting times along the diagnosis and treatment journey

Disease isolation: The challenges faced by mothers living with multiple myeloma in rural and regional Australia

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