Exploring sociodemographic predictors of parents’ perceptions about their children’s autism and their families’ adjustment

Rosenbrock, Georgina J.; Mire, Sarah S.; Kim, Hanjoe; Aguirre-Muñoz, Zenaida

doi:10.1016/j.ridd.2020.103811

Cited by 14 publications

(8 citation statements)

References 48 publications

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“…Additionally, only one mother identified as Hispanic. This is consistent with the literature surrounding people of color being unrepresented in ASD research (Cascio et al, 2021), and the notion that family and familial support may differ based on demographic characteristics and the families' definition of family (Rosenbrock et al, 2021). In our study, the participants' discussed family as those who are related biologically/legally.…”

Section: Limitationssupporting

confidence: 89%

“I've grown”: Parent's reflections and familial support

et al. 2023

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ObjectiveWe examined the perceived familial support of parents of children with autism spectrum disorder (ASD) to better understand the assistance and gaps they experienced.BackgroundPrevious literature indicated various forms of support, including spousal, extended family members, and siblings. However, limited research considered the support parents experienced from their child with ASD.MethodUsing a qualitative methodology involving semistructured interviews, the team interviewed nine parents who had children with ASD.ResultsAlthough most extended family members were seen as supportive, some held a lack of understanding of ASD, posed questions, or made comments that the children were “spoiled.” Mothers often took on the role of “educator.” The sibling(s) helped with caregiving, but also had their own life experiences to deal with. Regarding the support that the child with ASD provided, parents explained that they had grown into a better person. They were more aware of the challenges other parents faced and held less judgements of others.ConclusionOverall, parents noted differing familial support needs based on their families' understanding of ASD. They valued the support the child with ASD provided and recognized how they had grown as a person.ImplicationsPractitioners must continue to learn how to better understand families' experiences and recognize that each family member has differing support roles.

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Section: Limitationssupporting

confidence: 89%

“I've grown”: Parent's reflections and familial support

et al. 2023

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“…Fathers with higher education level might promote their involvement in the education of children with ASD, contributing to a better development of children with ASD (Sharabi & Marom-Golan, 2018). In addition, children with ASD could obtain better ASD-related services (e.g., intervention, parenting consultation) and more support for the exploration of interests in higher-income families (Rosenbrock et al, 2021), strengthening the development of their systemizing ability. SES is an important factor that affects an individual's neural and cognitive development.…”

Section: Discussionmentioning

confidence: 99%

Psychometric properties of the Chinese version of the children's empathy quotient and systemizing quotient: 4–12 years

et al. 2022

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“…A small number of parents realize the seriousness of the situation immediately after hearing the diagnosis (Divan, 2012). Parents with higher levels of education are more knowledgeable about autism (Zhou et al, 2014;Rosenbrock et al, 2021).…”

Section: Parents' Awareness Of Autism and Its Impactmentioning

confidence: 99%

Parents' perceptions of autism and their challenges in China

Xiao

Cui

et al. 2022

Adv Dev Educ Psychol

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Autism spectrum disorder (ASD) is a neurodevelopmental disorder characterized by social communication deficits and restricted or repetitive behaviors. Parents play a significant role in research, clinical practice and policy development on autism. Parents' perceptions of autism can affect not only their own well-being, but also their children's development. Nevertheless, few studies have examined the parents’ perception of autism in Chinese context. The parents’ perception of autism questionnaire was applied to collect information from 171 families of children with ASD, mainly to investigate the knowledge of autistic children and the difficulties the family facing. The following conclusions were drawn from this study: (1) Mother as the primary caregiver for children with ASD; (2) Parents’ perception of ASD were various parents of autistic children have a good understanding of the symptoms, causes, age of onset and interventions, and their expectations of the prognosis and the future life of their autistic children are high; (3) The difficulties that faced by the parents are mainly composed of low social acceptance, family pressure and concerns about the effectiveness of interventions for their children. In consideration of the future development of children with autism and the mental health development of their parents, it is particularly crucial to support their parents with multifaceted support.

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Exploring sociodemographic predictors of parents’ perceptions about their children’s autism and their families’ adjustment

Cited by 14 publications

References 48 publications

“I've grown”: Parent's reflections and familial support

“I've grown”: Parent's reflections and familial support

Psychometric properties of the Chinese version of the children's empathy quotient and systemizing quotient: 4–12 years

Parents' perceptions of autism and their challenges in China

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