Exploring the attitudes of adolescents with asthma towards monitoring and sharing of data on their inhaler use

Howard, Sam; Lang, Alexandra; Youle, Caroline; Vyas, Harish; Sharples, Sarah; Shaw, Dominick

doi:10.1183/13993003.congress-2015.oa4773

Cited by 3 publications

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“…V oorend - van B ergen et al [ 116 ] showed that a somewhat similar approach was cost-effective. Fortunately adolescents and parents have a positive attitude to having their adherence measured and shared with healthcare providers, although the social acceptability of Smartinhalers needs attention [ 117 ]. Although systematic reviews did not show an overall effect of e-health interventions on asthma outcomes, careful analyses of studies that did show an effect can be helpful in determining which interventions may be useful, in which populations, how often and how extensively [ 118 ].…”

Section: E-health In Paediatric Asthmamentioning

confidence: 99%

Key paediatric messages from Amsterdam

Grigg

Barben²,

Bohlin

et al. 2016

ERJ Open Res

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The Paediatric Assembly of the European Respiratory Society (ERS) maintained its high profile at the 2015 ERS International Congress in Amsterdam. There were symposia on preschool wheeze, respiratory sounds and cystic fibrosis; an educational skills workshop on paediatric respiratory resuscitation; a hot topic session on risk factors and early origins of respiratory diseases; a meet the expert session on paediatric lung function test reference values; and the annual paediatric grand round. In this report the Chairs of the Paediatric Assembly's Groups highlight the key messages from the abstracts presented at the Congress.

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Section: E-health In Paediatric Asthmamentioning

confidence: 99%

Key paediatric messages from Amsterdam

Grigg

Barben²,

Bohlin

et al. 2016

ERJ Open Res

View full text Add to dashboard Cite

show abstract

“…10 Initial evidence now suggests that adolescents feel positively towards the monitoring and reminding capabilities of EMDs for helping them to demonstrate their adherence and for ensuring they remember to take their inhaler on time, with their main concerns surrounding the bulkiness and unusual appearance of the devices. 11 However, in order to improve asthma care at a population level, EMDs would also require interaction from a variety of healthcare professionals; all of whom have clinical…”

Section: Introductionmentioning

confidence: 99%

What are the pros and cons of electronically monitoring inhaler use in asthma? A multistakeholder perspective

Howard,

Lang,

Sharples

et al. 2016

BMJ Open Resp Res

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IntroductionElectronic monitoring devices (EMDs) are the optimal method for collecting objective data on inhaler use in asthma. Recent research has investigated the attitudes of patients with asthma towards these devices. However, no research to date has formally considered the opinions of stakeholders and decision-makers in asthma care. These individuals have important clinical requirements that need to be taken into account if EMDs are to be successfully provisioned, making collecting their opinions on the key barriers facing these devices a valuable process.MethodsThree rounds of surveys in a Delphi format were used to assess the most important pros and cons of EMDs for asthma care in a sample of 31 stakeholders which included healthcare professionals and members of clinical commissioning groups.ResultsThe respondents identified 29 pros and 32 cons. Pros that were rated as most important included new visual evidence to aid clinical discussions with a patient and an increase in patient involvement and motivation. The cons that were rated as most important included a need for more clinical evidence of the effectiveness of EMDs, as well as better clarity over who has responsibilities in managing, interpreting and discussing data with a patient.ConclusionsThe research provides a guide for EMD developers by highlighting where these devices may provide the most benefit as well as prioritising the key issues that need addressing if they are to be used effectively in everyday asthma care.

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Toward the Design of Sensing-Based Medication Adherence Aids That Support Individualized Activities of Daily Living: Survey and Interviews With Patients and Providers

Biehl¹,

Patel²,

Lee³

2023

JMIR Hum Factors

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Background Nearly half of Americans taking prescription medications do not take them properly. The resulting implications have a broad impact. Nonadhering patients develop worsened medical conditions and increased comorbidity of disease or die. Objective Clinical studies have shown that the most effective strategies for addressing adherence are those that are individualized to the context that each patient and situation require. However, existing aids for adherence are relatively ridged and poorly support adaptation to individual behaviors and lifestyles. The aim of our study was to better understand this design tension. Methods A series of 3 qualitative studies was conducted: a web-based survey of 200 Americans that investigated existing adherence strategies and behaviors and perception of how hypothetical in-home tracking technologies would assist adherence; in-person semistructured interviews with 20 medication takers from Pittsburgh, PA, that investigated personal adherence behaviors, which included demonstration of medication locations and routines as well as an assessment of hypothetical technologies; and semistructured interviews with 6 pharmacists and 3 family physicians to gain a provider perspective on patient adherence strategies, which included feedback on hypothetical technologies in the context of their patient populations. Inductive thematic coding of all interview data was performed. Studies were conducted consecutively, with the results informing the subsequent studies. Results Synthesized, the studies identified key medication adherence behaviors amenable to technological interventions, distilled important home-sensing literacy considerations, and detailed critical privacy considerations. Specifically, 4 key insights were obtained: medication routines are heavily influenced and adapted by and through the physical location and placement of medications relative to activities of daily living, routines are chosen to be inconspicuous to maintain privacy, the value of provider-involved routines is motivated by a desire to build trust in shared decision-making, and the introduction of new technologies can create further burden on patients and providers. Conclusions There is considerable potential to improve individual medication adherence by creating behavior-focused interventions that leverage emerging artificial intelligence (AI), machine learning (ML), and in-home Internet of Things (IoT) sensing technologies. However, success will be dependent on the technology’s ability to learn effectively and accurately from individual behaviors, needs, and routines and tailor interventions accordingly. Patient routines and attitudes toward adherence will likely affect the use of proactive (eg, AI-assistant routine modification) versus reactive (eg, notification of associated behaviors with missed dosages) intervention strategies. Successful technological interventions must support the detection and tracking of patient routines that can adjust to variations in patient location, schedule, independence, and habituation.

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Exploring the attitudes of adolescents with asthma towards monitoring and sharing of data on their inhaler use

Cited by 3 publications

References 0 publications

Key paediatric messages from Amsterdam

Key paediatric messages from Amsterdam

What are the pros and cons of electronically monitoring inhaler use in asthma? A multistakeholder perspective

Toward the Design of Sensing-Based Medication Adherence Aids That Support Individualized Activities of Daily Living: Survey and Interviews With Patients and Providers

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