Exploring The Challenges Faced by Informal Home Based Palliative (HBP) Caregivers in Ndola District, Zambia.

Musonda, Katentemuna Catherine; Mathew, Mathew T.; Mutale, Wilbroad; Sitali, Doreen Chilolo

doi:10.1080/15524256.2021.1976351

Cited by 4 publications

(2 citation statements)

References 27 publications

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“…Likewise, a study by Grants and Graven in England revealed a lack of financial well-being was among the challenges faced by caregivers (30). And a study in Zambia by Musonda, et al reported a lack of supporting resources being among the challenges faced by caregivers (31). The result is similar as both studies used a non-informal caregiver of a patient with HF and data were collected using a cross-sectional study design and qualitative study design where data was obtained once so it was easy for family caregivers to verbalize their challenges.…”

Section: Discussionmentioning

confidence: 99%

Experiences of family caregivers in caring for patients with heart failure at Jakaya Kikwete Cardiac Institute, Dar es Salaam, Tanzania: a qualitative study

Mcharo

Iseselo

Kahema

et al. 2023

Preprint

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Background: Heart failure (HF) continues to be a global health problem with its ramifications more pronounced in underdeveloped countries. Family members play a pivotal part in patient management which may influence the patient’s overall quality of life. Prolonged delay in attendance to health care facilities among patients indicates ineffective support from family caregivers. In the Tanzanian context, there is limited information about the experiences of family caregivers in caring for patients with HF. This study explored family caregivers' experiences in caring for HF patients. Methods: A qualitative descriptive study design was conducted at Jakaya Kikwete Cardiac Institute in Dar es Salaam, Tanzania. A purposive sampling technique was used to select the potential participants. A sample size of 10 family caregivers of patients with HF was included in the study. Thematic analysis was used to derive the main theme and sub-themes. Results: Three major themes were identified: demands for supportive care, new caring role and lifestyle, and professional support in caring for patients with HF. Caregivers needed social and financial support to facilitate the caring process. Learning to provide the required care at the right time was the new role acquired by caregivers while failing to participate in social events and caregiving in an unfavourable environment were reported as challenges in caregiving. However, compliance with instruction and effective interaction among the nurses and caregivers were considered to be positive professional support. Conclusion: Caregivers need social and financial support to provide effective care to their patients. Caregiving is a learning process that needs continuous educational support to adapt to the new caring roles and challenges. Nurses should conduct regular assessments to explore caregivers’ needs, challenges, and concerns and provide timely counselling that can facilitate coping.

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Section: Discussionmentioning

confidence: 99%

Experiences of family caregivers in caring for patients with heart failure at Jakaya Kikwete Cardiac Institute, Dar es Salaam, Tanzania: a qualitative study

Mcharo

Iseselo

Kahema

et al. 2023

Preprint

View full text Add to dashboard Cite

show abstract

“…Likewise, a study by Grants and Graven in England revealed a lack of financial well-being was among the challenges faced by caregivers [ 33 ]. And a study in Zambia by Musonda, et al reported a lack of supporting resources being among the challenges faced by caregivers [ 34 ]. The result is similar as both studies used a non-informal caregiver of a patient with HF and data was collected using a cross-sectional study design and qualitative study design where data was obtained once so it was easy for family caregivers to verbalize their challenges.…”

Section: Discussionmentioning

confidence: 99%

Experiences of family caregivers in caring for patients with heart failure admitted at Jakaya Kikwete Cardiac Institute, Dar es Salaam, Tanzania: A qualitative study

Mcharo,

Iseselo,

Kahema

et al. 2023

PLoS ONE

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Background Heart failure (HF) continues to be a global health problem with its ramifications more pronounced in underdeveloped countries. Family members play a pivotal part in patient management which may influence the patient’s overall quality of life. Prolonged delay in attendance to health care facilities among patients indicates ineffective support from family caregivers. In the Tanzanian context, there is limited information about the experiences of family caregivers in caring for patients with HF. This study explored family caregivers’ experiences in caring for HF patients. Methods A qualitative descriptive study design was conducted at Jakaya Kikwete Cardiac Institute in Dar es Salaam, Tanzania. A purposive sampling technique was used to select the potential participants. A sample size of 10 family caregivers of patients with HF was included in the study. Thematic analysis was used to derive the main theme and sub-themes. Results Three major themes were identified: demands for supportive care, new caring role and lifestyle, and professional support in caring for patients with HF. Caregivers needed social and financial support to facilitate the caring process. Learning to provide the required care at the right time was the new role acquired by caregivers while failing to participate in social events and caregiving in an unfavourable environment were reported as challenges in caregiving. However, compliance with instruction and effective interaction among the nurses and caregivers were considered to be positive professional support. Conclusion Caregivers need social and financial support to provide effective care to their patients. Caregiving is a learning process that needs continuous educational support to adapt to the new caring roles and challenges. Nurses should conduct regular assessments to explore caregivers’ needs, challenges, and concerns and provide timely counselling that can facilitate coping.

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The Need for Hospice Care as a Preferred Environment of Death in Terminal Cancers: A Neglected Research Area in Turkey

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Yıldırım

2022

Journal of Social Work in End-of-Life & Palliative Care

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Exploring The Challenges Faced by Informal Home Based Palliative (HBP) Caregivers in Ndola District, Zambia.

Cited by 4 publications

References 27 publications

Experiences of family caregivers in caring for patients with heart failure at Jakaya Kikwete Cardiac Institute, Dar es Salaam, Tanzania: a qualitative study

Experiences of family caregivers in caring for patients with heart failure at Jakaya Kikwete Cardiac Institute, Dar es Salaam, Tanzania: a qualitative study

Experiences of family caregivers in caring for patients with heart failure admitted at Jakaya Kikwete Cardiac Institute, Dar es Salaam, Tanzania: A qualitative study

The Need for Hospice Care as a Preferred Environment of Death in Terminal Cancers: A Neglected Research Area in Turkey

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