Exploring the comparative responsiveness of a core set of outcome measures in a school‐based conductive education programme

Wright, Virginia; Boschen, Kathryn A.; Jutai, Jeffrey W.

doi:10.1111/j.1365-2214.2005.00511.x

Cited by 36 publications

(41 citation statements)

References 39 publications

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“…Discriminative validity: Detects differences between children with/without CP [12]. Activity domain difficult for children with CP [53]. Adequate Adequate Not established…”

Section: Excellent Excellent Excellentmentioning

confidence: 99%

Measuring Outcomes for Children with Cerebral Palsy Who Use Gait Trainers

Livingstone

Paleg

2016

Technologies

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Gait trainers are walking devices that provide additional trunk and pelvic support. The primary population of children using gait trainers includes children with cerebral palsy (CP) functioning at Gross Motor Function Classification System (GMFCS) levels IV and V. A recent systematic review found that evidence supporting the effectiveness of gait trainer interventions for children was primarily descriptive and insufficient to draw firm conclusions. A major limitation identified was the lack of valid, sensitive and reliable tools for measuring change in body structure and function, activity and participation outcomes. Twelve different clinical tools were identified in the systematic review and in this paper we review and discuss the evidence supporting their reliability, validity and clinical utility for use with children using gait trainers. We also describe seven additional clinical measurement tools that may be useful with this intervention and population. The Pediatric Evaluation of Disability Inventory (PEDI) rated highest across all areas at this time. Individualized outcome measures, such as the Canadian Occupational Performance Measure (COPM) and Goal Attainment Scaling and measuring user satisfaction with tools, such as the Quebec User Evaluation of Satisfaction with assistive Technology, show potential for gait trainer outcomes research. Spatiotemporal measures appear to be less useful than functional measures with this intervention and population. All tools would benefit from further development for use with children with CP functioning at GMFCS levels IV and V.

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“…Discriminative validity: Detects differences between children with/without CP [12]. Activity domain difficult for children with CP [53]. Adequate Adequate Not established…”

Section: Excellent Excellent Excellentmentioning

confidence: 99%

Measuring Outcomes for Children with Cerebral Palsy Who Use Gait Trainers

Livingstone

Paleg

2016

Technologies

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“…Wright et al reported increased parental stress after a second year of CE in an educational setting [13]. Reddighough et al reported a better outcome of parents' perception of coping for the CE-than the NDT-approach [10].…”

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confidence: 99%

Parents' conceptions of intensive group training. The case of cerebral palsy

Ödman

Richt

Öberg

2009

Disability and Rehabilitation

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Purpose:The aim was to explore what wants and needs intensive group training (IGT) fulfil for parents to children with CP and what problems that may arise due to participation. Methods:A phenomenograpical approach was used. Semi-structured interviews were conducted to elicit information about what participation means to parents. Results: Five overarching categories expressing positive functions of IGT were identified: IGT as knowledge promotion, as a complementary training resource, as a bracket to ordinary life, as a means to promote relations with therapists, and as a leisure-activity. One category: IGT as risk for ill-being expresses perceived problems. Each category is in turn divided into a number of subconceptions -13 conceptions of this kind were identified. Conclusions: The conceptions express positive and negative functions of IGT as perceived by parents. These functions in turn can be considered as reflections of basic wants and needs. The results demonstrate that IGT have a potential to contribute to feelings of enhanced care competence among parents, of being supported and of increased strength and vitality. All parents didn't have needs of participation in IGT for themselves. There is also a risk that IGT is experienced as an additional burden and may have negative effects on family-functioning.Key words: Cerebral Palsy, Therapeutics, Qualitative research, Conductive Education, Intensive group trainingIn family-centered child and youth habilitation it is believed that the functioning of the child is enhanced in a supportive family and in an ordinary life context [1,2]. Different functional therapy approaches, based on theories of motor control and learning, have evolved within this framework. These approaches do not rule out training in segregated settings adapted for training acitivities, but commonly advocate that habilitation should take place in the ordinary enviroment of the child [3][4][5]. Goals should be set in collaboration with the child and family and accomplishment of tasks should be reached by identifying resources and changing constraints in the child, task, or the environment [5][6][7].Within the Swedish child and youth habilitation intensive group training (IGT) is offered to children with Cerebral Palsy (CP) and their parents. IGT is pursued in segregated contexts and is considered to be a complement to interventions done in the ordinary life environment. Such training is also offered by private caregivers working with conductive education (CE).Typically, IGT help children exercise functional skills or prerequisites for functional skills over a 3-4 week period, with reiteration of movements and activities day after day. The groups are organized according to the child's level of function and age. Participation of parents, close relatives, and/or assistants is desirable or required and is seen as a means to improve their skills in supporting the child in ordinary life. An important target with interventions is to enhance parents' well-being [8] and feelings of competence in supporting...

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“…Furthermore, the inter-rater reliability 67,73) and the test-retest . 5-point scale (-2 -+2) 0=expected level of outcome +2=much more than the expected outcome level -2=much less than the expected outcome level Each goal weighted, and T-score calculated 8,46,47) Clients/patients of mental health programs 11,48) , young children with disabilities 8,17,18,49,50) , stroke or brain injuries 21,[51][52][53] , geriatric care 54,55) ,…”

Section: Resultsmentioning

confidence: 99%

“…Therefore, this may be considered to be an interview via free conversation, to set goals. The validity, reliability, and responsiveness of GAS has been evaluated not only in the mental health field but also in various fields such as those involving children with disabilities (e.g., cerebral palsy and mental and/or physical retardation), elderly patients, brain injury patients, dementia patients, and frail elderly people (Table 3, 4) 8, 11,17,18,[48][49][50][51][52][53][54][55][56][57][58][59][60][61] . In children with disabilities, no significant correlation was noted between the standardized measure, the Peabody Gross Motor Scale, and the GAS T-score 17,18) , which suggests that GAS determines aspects different from the Peabody Gross Motor Scale.…”

Section: Resultsmentioning

confidence: 99%

“…GAS Tscores are then calculated by assigning weights to each goal. GAS evaluates the validity, reliability, and responsiveness as the goal attainment measures for patients with mental health disorders or brain damage, physically handicapped children, or the elderly 11,[48][49][50][51][52][53][54][55][56][57][58][59][60][61] . Reid et al 21) reported the clinical utility of GAS for stroke patients, but there have been no studies assessing its validity, reliability, and responsiveness.…”

Section: Discussionmentioning

confidence: 99%

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Goal-Setting Method and Goal Attainment Measures in Physical Therapy for Stroke Patients: a Systematic Review

et al. 2009

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Abstract.[Purpose] This review aimed: (1) to obtain all the facts regarding existing goal-setting methods in physical therapy; (2) to clarify the application status of the methods for stroke patients; and (3) to put forth a suggestion for the development of a format prepared by collaboration between stroke patients and physical therapists.[Methods] A systematic search was performed to identify the existing goal-setting methods and to obtain the relevant literature. We reviewed a total of 165 reports. [Results] We identified 8 types of goal-setting methods: Goal Attainment Scaling (GAS), the Canadian Occupational Performance Measure (COPM), goal forum intervention, and others. GAS was evaluated for its validity, reliability, and sensitivity for physically disabled children and the elderly, but there were no reports on the applicability of GAS to stroke patients. The COPM, which is a subjective measurement method using self-reporting, was evaluated for validity, reliability, and sensitivity for occupational therapy patients and physically disabled children. The goal forum intervention is a goal-setting method involving the collaboration of patients and physical therapists with the use of a check-list, but this method was developed for rheumatoid arthritis patients. [Conclusion] We recommend further studies on the development of a goal-setting method using a checklist for stroke patients and the evaluation of the validity and reliability of GAS for stroke patients.

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Exploring the comparative responsiveness of a core set of outcome measures in a school‐based conductive education programme

Abstract: Several strong measures of outcome were identified. Further work is needed to find valid and sensitive psychosocial and school participation measures for these young children.

Cited by 36 publications

References 39 publications

Measuring Outcomes for Children with Cerebral Palsy Who Use Gait Trainers

Measuring Outcomes for Children with Cerebral Palsy Who Use Gait Trainers

Parents' conceptions of intensive group training. The case of cerebral palsy

Goal-Setting Method and Goal Attainment Measures in Physical Therapy for Stroke Patients: a Systematic Review

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