Exploring the Lived Experience of Waiting for Persons in Long-Term Care

Mitchell, Gail J.; Pilkington, F. Beryl; Jonas-Simpson, Christine; Aiken, Fran; Carson, M. Gail; Fisher, Anne; Lyon, Pat

doi:10.1177/0894318405274829

Cited by 8 publications

(10 citation statements)

References 11 publications

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“…In the study by Naef and Bournes (2009), participants said that having the support of others helped them to wait, was encouraging, and was enlivening as personal affiliations and activities were offered while waiting. This notion was also found in a study by Mitchell and colleagues (2005) where persons described that when waiting, it was helpful in setting up patterns related to immersing oneself in various activities or thoughts and the need to engage in these activities to ease the waiting. From these findings, it may be inferred that nurses have a vital role in engaging with those who wait and enhance personal understanding by questioning and invoking what is most important to them, and how they can be helpful.…”

Section: A Humanbecoming Ethos Of Waitingmentioning

confidence: 61%

The Ethics of Waiting and Anticipating Life Beyond

Milton

2014

Nurs Sci Q

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Waiting is a common everyday experience. It is particularly important to person(s) and families living with changing complex health patterns and may be especially vital to those who are anticipating the end-of-life and beyond. The author in this column offers a discussion of potential definitions, meanings, and straight thinking responsibilities for healthcare professionals, as they provide professional services with persons and families who may be arduously experiencing the phenomenon of waiting with ever-changing health situations. Implications for professional nurse practice are offered from a humanbecoming perspective.

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Section: A Humanbecoming Ethos Of Waitingmentioning

confidence: 61%

The Ethics of Waiting and Anticipating Life Beyond

Milton

2014

Nurs Sci Q

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“…Transcendental phenomenology has been used to improve understanding about deeply personal experiences of ill-health such as hearing loss [27], organ transplantation [28], and chronic pain [29]. A recent study demonstrates its utility in exploring the experiences of long term care residents in care [30]. In the current study, it was imperative to allow the voices of residents to emerge undistorted by preconceptions or biases about the potential merits of heart failure care.…”

Section: Methodsmentioning

confidence: 99%

“It’s Somebody else’s responsibility”- perceptions of general practitioners, heart failure nurses, care home staff, and residents towards heart failure diagnosis and management for older people in long-term care: a qualitative interview study

Hancock

Mason

et al. 2013

BMC Geriatr

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BackgroundOlder people in care-facilities may be less likely to access gold standard diagnosis and treatment for heart failure (HF) than non residents; little is understood about the factors that influence this variability. This study aimed to examine the experiences and expectations of clinicians, care-facility staff and residents in interpreting suspected symptoms of HF and deciding whether and how to intervene.MethodsThis was a nested qualitative study using in-depth interviews with older residents with a diagnosis of heart failure (n=17), care-facility staff (n=8), HF nurses (n=3) and general practitioners (n=5).ResultsParticipants identified a lack of clear lines of responsibility in providing HF care in care-facilities. Many clinical staff expressed negative assumptions about the acceptability and utility of interventions, and inappropriately moderated residents’ access to HF diagnosis and treatment. Care-facility staff and residents welcomed intervention but experienced a lack of opportunity for dialogue about the balance of risks and benefits. Most residents wanted to be involved in healthcare decisions but physical, social and organisational barriers precluded this. An onsite HF service offered a potential solution and proved to be acceptable to residents and care-facility staff.ConclusionsHF diagnosis and management is of variable quality in long-term care. Conflicting expectations and a lack of co-ordinated responsibility for care, contribute to a culture of benign neglect that excludes the wishes and needs of residents. A greater focus on rights, responsibilities and co-ordination may improve healthcare quality for older people in care.Trial registrationISRCTN: ISRCTN19781227

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“…Mitchell and colleagues (2005) investigated the lived experience of waiting. The findings of their study suggested that when participants have to wait when the surgeon is delayed or their surgery is rescheduled, they think that they are being ignored or neglected and this disregard contributes to the anger and frustration that they experience.…”

Section: Related Literaturementioning

confidence: 99%

The Meaning of Changing Expectations

2012

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The purpose of this qualitative descriptive study guided by the humanbecoming school of thought was to explore the meaning of changing expectations with people who had experienced an unexpected cancellation of surgery. Twenty-seven participants described their experience of changing expectations through semi-structured interviews. Three themes emerged from the descriptions: disenchantment with uncertainty arises with acquiescence, skepticism with burdensome interruption surfaces with humiliation, and envisioning possible accommodations arises with reconciliation. The themes are described with examples from the participants, and discussed in light of humanbecoming, current knowledge, research, and practice.

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Exploring the Lived Experience of Waiting for Persons in Long-Term Care

Cited by 8 publications

References 11 publications

The Ethics of Waiting and Anticipating Life Beyond

The Ethics of Waiting and Anticipating Life Beyond

“It’s Somebody else’s responsibility”- perceptions of general practitioners, heart failure nurses, care home staff, and residents towards heart failure diagnosis and management for older people in long-term care: a qualitative interview study

The Meaning of Changing Expectations

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