Exploring the meaning of everyday life, for those suffering from dementia

Holst, Göran; Hallberg, Ingalill Rahm

doi:10.1177/153331750301800605

Cited by 70 publications

(96 citation statements)

References 18 publications

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“…The review of 43 identified studies revealed the following core findings: People with early-stage dementia must deal with many losses-concrete losses, such as losing track of conversations (e.g. Holst & Hallberg, 2003;Phinney & Chesla, 2003); losing track of time (e.g. Nygard & Borell, 1998;Phinney, 1998); forgetting names and events (e.g.…”

Section: Introductionmentioning

confidence: 99%

“…Devaluing interactions increase this threat (e.g. Holst & Hallberg, 2003;Van Dijkhuizen, Clare, & Pearce, 2006). Memory difficulties may make it difficult for persons with dementia to understand their circumstances or to hide their problems from others, causing frustration, uncertainty, and fear (e.g.…”

Section: Introductionmentioning

confidence: 99%

“…Memory difficulties may make it difficult for persons with dementia to understand their circumstances or to hide their problems from others, causing frustration, uncertainty, and fear (e.g. Clare, 2003;Harris & Sterin, 1999;Holst & Hallberg, 2003). Indeed, those persons with dementia may suffer much in silence (e.g.…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Living with dementia from the perspective of older people: Is it a positive story?

Steeman

Godderis

Grypdonck

et al. 2007

Aging & Mental Health

101

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Living with dementia from the perspective of older people: Is it a positive story?

Steeman

Godderis

Grypdonck

et al. 2007

Aging & Mental Health

101

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“…People living with dementia become progressively restricted in their performance of daily activities, leading to the need for increased assistance from others in response to their functional losses (Holst & Hallberg, 2003).…”

Section: Introductionmentioning

confidence: 99%

An Exploration of Volition: Caregiver Perceptions of Persons with Dementia

Raber¹,

Stone²

2015

The Open Journal of Occupational Therapy

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The purpose of this study was to understand what formal caregivers know about the volition of older adults with moderate dementia. A qualitative approach was used at one assisted living facility. Semi-structured interviews were conducted with formal caregivers to gain their perceptions of residents' volition or motivation for occupation. Volition of resident participants was assessed using the Volitional Questionnaire (VQ). Caregiver interviews and resident VQ's were analyzed using van Manen's phenomenological approach to examine their congruence with regard to the volitional abilities of residents. Thematic analysis yielded two broad themes: (a) Caregivers possess varying layers of insight regarding the volitional abilities of the older adults with dementia, and (b) caregivers develop a script regarding the volitional abilities of the older adults with dementia. Caregivers possess knowledge about volitional abilities of older adults with dementia. Further research is needed to understand how these perceptions affect their care-giving behaviors.

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“…Access to other health care professionals trained in geriatrics 65,70,73,81,[86][87][88] Need for access to health care professionals who know the disease, respond competently at disclosure of the diagnosis, and communicate test results clearly. Need for help with ADL (commonly for bathing/dental care, dressing, and walking) and with IADL (commonly for housekeeping, meal preparation, and transportation).…”

mentioning

confidence: 99%

Family Physician–Case Manager Collaboration and Needs of Patients With Dementia and Their Caregivers: A Systematic Mixed Studies Review

Khanassov

Vedel

2016

Ann Fam Med

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PURPOSE Dementia case management (CM) in primary care is a complex intervention aimed at identifying the various needs of patients with dementia and their caregivers, as well as the organization and coordination of care. A key element of CM is the collaboration of family physicians with case managers. We conducted a systematic mixed-studies review to identify the needs of the patientcaregiver dyad and the effects of CM. METHODSWe searched MEDLINE, PsycINFO, and EMBASE up to October 2014, regardless of the study design. Our main outcomes were needs of patients and their caregivers and the effects of CM on these needs. We used narrative syntheses to develop a taxonomy of needs and to describe the effects of CM on those needs. We used meta-analysis to calculate the prevalence of needs and the standardized mean differences to evaluate the effects of CM on the needs identified.RESULTS Fifty-four studies were included. We identified needs of the patientcaregiver dyad and needs of the patient and caregiver individually. CM addressed the majority of the identified needs. Still, some very common needs (eg, early diagnosis) are overlooked while other needs (eg, education on the disease) are well addressed. Fully establishing the value of CM is difficult given the small number of studies of CM in primary care.CONCLUSIONS There is good evidence that case managers, in collaboration with family physicians, have a pivotal role in addressing the needs of the patientcaregiver dyad. 2016;14:166-177. doi: 10.1370/afm.1898. Ann Fam Med INTRODUCTIONT he proportion of people with dementia is growing dramatically. According to the US Alzheimer's Association, by 2030, 50% of Americans aged 65 years and older will be diagnosed with dementia. 1 In Canada in 2011, 747,000 Canadians lived with cognitive impairment.2 Today, the combined costs are $33 billion per year, 1 and they are projected to increase to $872 billion by 2038. 3,4 Worldwide, dementia is the main contributor to disability-adjusted life years (11.2%), representing a greater burden than cerebral vascular accident (9.5%), heart disease (5.0%), or cancer (2.4%). 5People with dementia need help with challenging changes in behavior, memory, physical disability, and mood. 6 The main source of help is family caregivers, who often suffer from the burdens of caregiving and from depression and health problems. 7 It has been shown that early intervention makes the greatest difference in management of symptoms. 1 The World Health Organization states that it would be challenging to intervene without effective involvement of primary care. 8 Dementia case management (CM) interventions are becoming a central component of primary health care organizations in North America and Europe. [9][10][11][12] According to the 167Case Management Society of America, case management is "a collaborative process of assessment, planning, facilitation, care coordination, evaluation, and advocacy for options and services to meet an individual's and family's comprehensive health needs through communi...

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Exploring the meaning of everyday life, for those suffering from dementia

Cited by 70 publications

References 18 publications

Living with dementia from the perspective of older people: Is it a positive story?

Living with dementia from the perspective of older people: Is it a positive story?

An Exploration of Volition: Caregiver Perceptions of Persons with Dementia

Family Physician–Case Manager Collaboration and Needs of Patients With Dementia and Their Caregivers: A Systematic Mixed Studies Review

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