Exploring the perceptions and stigmatizing experiences of Israeli family caregivers of people with Parkinson's disease

AboJabel, Hanan; Argavan, Einat; Hassin‐Baer, Sharon; Inzelberg, Rivka

doi:10.1016/j.jaging.2020.100910

Cited by 5 publications

(4 citation statements)

References 67 publications

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“…The present study provides initial insights into the potential antecedents and clinical consequences of stereotype threat in people with PD. In line with previous literature describing how PD is commonly typecast as an ‘old person disease’ (AboJabel et al, 2021 ; Maffoni et al, 2017 ; Schrag et al, 2003 ), younger participants were found to be more susceptible to stereotype threat. Results also provided preliminary support for the importance of communication difficulties, with communication‐related issues significantly contributing to people with PD's beliefs that they face biased evaluations because of their diagnosis.…”

Section: Discussionsupporting

confidence: 87%

“…It is an upsetting reality that individuals with Parkinson's disease (PD) often delay revealing their diagnosis to friends and family, due to concerns of how they will be perceived and treated (AboJabel et al, 2021 ; Maffoni et al, 2017 ). A recent study also showed that over 30% of people with PD attempt to conceal their symptoms due to fears that they are not socially acceptable, and that they may be judged (Parkinson's UK, 2016 ).…”

Section: Introductionmentioning

confidence: 99%

“…As PD is commonly typecast as an ‘old person disease’ (AboJabel et al, 2021 ; Maffoni et al, 2017 ; Schrag et al, 2003 ), age was examined as a potential antecedent to stereotype threat, with the prediction that younger people with PD would be more susceptible. Additionally, five distinct impairment domains associated with PD's symptomology were considered, namely mobility (e.g., walking and getting around in private/public), completing activities of daily living (e.g., difficulties with washing and dressing), cognition (e.g., memory and concentration issues), communication (e.g., difficulties with speech and feeling ignored) and bodily discomfort (e.g., cramps, aches and unpleasantly hot).…”

Section: Introductionmentioning

confidence: 99%

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The antecedents and consequences of stereotype threat in Parkinson's disease

Coundouris

Hippel

Lehn

et al. 2022

British J Clinic Psychol

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The aim of this study was to examine what factors make people with Parkinson's disease more susceptible to stereotype threat (i.e., the concern of being evaluated in line with negative group-based stereotypes) and the clinical consequences of this. Method: Forty-nine people with Parkinson's disease completed a measure of stereotype threat, as well as measures that indexed potential antecedents and clinical consequences of stereotype threat. Results: Younger age and greater communication difficulties emerged as significant predictors of stereotype threat. Higher stereotype threat was also associated with increased emotional distress. Conclusions: These findings are an important first step in understanding stereotype threat in Parkinson's disease and may help to guide the development of intervention and educational efforts aimed at countering its effects.

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Section: Discussionsupporting

confidence: 87%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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The antecedents and consequences of stereotype threat in Parkinson's disease

Coundouris

Hippel

Lehn

et al. 2022

British J Clinic Psychol

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“…Results indicated a degree of social discrimination associated with this role. (20,21). There is a paucity of research on the experiences of individuals caring for those with MS and the in uence of MS stigmatization on marital life among MS patients (22,23,24).…”

Section: Introductionmentioning

confidence: 99%

Impact of General Population Stigmatization toward Marriage in Patients Diagnosed with Multiple Sclerosis: A Cross Sectional Study

Behgam,

Sahraian,

Ebadi

et al. 2024

Preprint

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Background Multiple Sclerosis (MS) is a long-term condition that affects the central nervous system and typically manifests in individuals during their youth. Stigma poses significant psychosocial challenges for patients with MS, leading to negative impacts on their personal and social lives. However, limited research has been conducted on the experiences of individuals and the influence of MS stigmatization on marriage. This study focused on unmarried individuals aged 20–40 years in Iran to determine the prevalence of societal stigma and their intention to marry an individual affected by MS. Methods A researcher-designed questionnaire was utilized to collect data from 343 unmarried individuals in a prospective cross-sectional study. We conducted an in-person interview to gather their overall understanding of MS and their views on marrying someone with MS. The questionnaire assessed sociodemographic variables and measured the degree of stigmatization toward MS, by including concerns related to marriage with MS patients. Results The results showed that stigmatization attitudes and concerns existed among the participants as much as 85%, including worries about physical disability, treatment costs, potential transmission of MS to future children, unemployment, and dismissal. The study findings suggested the inquiry of MS patients in managing stigmas effectively, as well as increasing social awareness regarding MS. Conclusions This study contributes to the understanding of the social implications of MS and provides insights for developing strategies to address societal stigma and improve the quality of life for MS patients. By raising awareness and providing support in society, it is feasible to establish an inclusive and accepting environment that enables individuals with MS to experience an improved quality of life and reduced stigma in various social areas, such as relationships and marriage.

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Adjustment to Transitions: Definitions of Terms

Israelashvili

2023

Advances in Prevention Science

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Exploring the perceptions and stigmatizing experiences of Israeli family caregivers of people with Parkinson's disease

Cited by 5 publications

References 67 publications

The antecedents and consequences of stereotype threat in Parkinson's disease

The antecedents and consequences of stereotype threat in Parkinson's disease

Impact of General Population Stigmatization toward Marriage in Patients Diagnosed with Multiple Sclerosis: A Cross Sectional Study

Adjustment to Transitions: Definitions of Terms

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