Exploring the reciprocal relationship between caregiver burden and the functional health of frail older adults in China: A cross-lag analysis

Lü, Nan; Liu, Jinyu; Lou, VW

doi:10.1016/j.gerinurse.2015.08.014

Cited by 25 publications

(19 citation statements)

References 30 publications

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“…Owing to advanced age, multiple comorbid conditions and recurrent hospitalizations, functional dependence is highly prevalent among elderly dialysis patients (Ulutas et al 2016). Previous studies have consistently shown that loss of function in the patients would cause them to become unable to perform activities of daily life, which would have an impact on the caregivers’ burden (Lu et al 2016; Mello et al 2017). However, there is evidence showing that caregivers of patients with assisted PD do not experience a greater burden than those of self‐care PD, even though the former report greater involvement in task‐oriented activities during the care process (Griva et al 2016).…”

Section: Literature Reviewmentioning

confidence: 99%

Family caregiver's burden and the social support for older patients undergoing peritoneal dialysis

Tao

Chow

Hai-fen

et al. 2020

Journal of Renal Care

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SUMMARY Background Most elderly people undergoing peritoneal dialysis (PD) treatment have a high incidence of frailty, cognitive impairment and emotional disturbance leading to a significant impact on families. The burden experienced by the family caregivers could affect their physical and emotion health. The objective of this study was to examine the level of burden on family caregivers of elderly adults receiving PD and to identify any contributing factors. Materials and Methods This was a cross‐sectional study employing convenience sampling. Patient–caregiver dyads were recruited from the outpatient clinic of a university hospital in China in 2019. Caregivers provided information on their perceived burden and health‐related quality of life. The elderly patients reported their functional dependence and depressive symptoms in the same interview. Linear regression analyses were used to determine the factors contributing to caregivers’ burden. Results Sixty patient–caregiver dyads were recruited. The patients had a mean age of 70.7 ± 7.4 years. The caregivers reported moderate levels of burden having ZBI score of 30.5 ± 15.9. Multivariate analyses showed that being female, perceiving one's financial status as insufficient, a low level of social support for the caregiver, depressive symptoms in the patients and disability in carrying out the instrumental activities of daily life were statistically significant predictors of caregiver burden (adjusted R2 = 0.46, p < 0.001). Conclusion Elderly adults receiving PD who experience physical dependence and depressive symptoms are a burden for caregivers. In response to this challenge, interventions designed with the goal of supporting the emotional and mental wellbeing of caregivers are warranted.

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Section: Literature Reviewmentioning

confidence: 99%

Family caregiver's burden and the social support for older patients undergoing peritoneal dialysis

Tao

Chow

Hai-fen

et al. 2020

Journal of Renal Care

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“…Based on previous work examining caregiver burden in similar populations, we hypothesize that increased tremor severity ( 14 ), longer duration of care ( 28 ), and cognitive impairment ( 29 ) will be associated with burden. Finally, previous research in multiple illness contexts has shown that caregivers who perceive their partner to be suffering experience a higher level of burden ( 23 ). Suffering as a construct is typically measured along three parameters (psychological, physical, and existential/spiritual distress) ( 30 ) and is assessed from the perspective of both the caregiver and the patient.…”

Section: Introductionmentioning

confidence: 97%

“…In the literature, caregiver burden is defined as the diminishment of one’s emotional, physical, social, or financial well-being as a result of providing care ( 22 ). Caregiver burden has been well-described in patient populations that share similarities with ET, including the frail elderly ( 23 ), Parkinson’s disease (PD) ( 24 ), dementia ( 25 ), and MCI ( 26 ). In these studies, burden is associated with a pattern of patient and caregiver attributes.…”

Section: Introductionmentioning

confidence: 99%

The Experience of Essential Tremor Caregivers: Burden and Its Correlates

et al. 2017

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BackgroundEssential tremor (ET) is associated with physical and cognitive impairments, as well as embarrassment, avoidance of social settings, and related difficulties that negatively impact the lives of patients. In similar disease contexts, burden on friends and relatives acting as caregivers has been noted and has well-documented implications. There has been no study examining caregiver burden related to ET.MethodsData were gathered from 55 ET participants enrolled in a clinical study and their caregivers. The Zarit Burden Interview was used to assess caregiver burden. To assess clinical features that may be associated with burden, we collected several variables including the Montreal Cognitive Assessment, self-reported tremor disability, a videotaped neurological examination, questionnaires assessing ET participants’ suffering, caregivers’ perceptions of that suffering, and both caregiver and ET participant depressive symptoms. Spearman’s correlations were performed between caregiver burden and clinical features, and we created a multivariate linear regression model predicting caregiver burden.ResultsMany ET caregivers provide little to no care and experience little to no burden. However, some caregivers (11%) provide over 25 h of care/week, and 13% experience high levels of burden. Caregivers most commonly provided assistance with writing and cooking. Increased burden was associated with the ET participants’ decreased cognition, more caregiving tasks, more hours/week of caregiving activities, a longer duration of care, more ET participant falls/year, more medications taken by the ET participant, and more depressive symptoms in both the ET participant and the caregiver (all p < 0.05). ET participants’ suffering and their caregivers’ perceptions of suffering were both associated with increased burden. Neither tremor severity score nor self-reported tremor disability score was associated with increased caregiver burden. Using a multivariate linear regression model, we found that caregivers’ increased perception of their partners’ suffering was the best predictor of caregiver burden.ConclusionWhile not all relatives and friends of ET patients provide extensive care or experience high burden, there is a group reporting high levels of caregiver burden that requires the attention and counseling of clinicians. This burden is associated with primarily non-tremor symptoms of ET and with caregivers’ perception that their partners are suffering.

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“…The relationship between caregiver burden and the functional health of the care-recipient is well known in the geriatric literature, notably thanks to studies focusing on the Stress Process model (Pearlin et al, 1990 ). Such a relationship has been clearly demonstrated for FIs (Lu et al, 2016 ).…”

Section: Discussionmentioning

confidence: 67%

Everyday Functioning Benefits from an Assisted Living Platform amongst Frail Older Adults and Their Caregivers

Dupuy

Charlotte

Consel

et al. 2017

Front. Aging Neurosci.

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Ambient assisted living technologies (AAL) are regarded as a promising solution to support aging in place. Yet, their efficacy has to be demonstrated in terms of benefits for independent living and for work conditions of caregivers. Hence, the purpose of this study was to assess the benefits of a multi-task AAL platform for both Frail older Individuals (FIs) and professional caregivers with respect to everyday functioning and caregiver burden. In this context, a 6-month field study involved 32 FIs living at home (half of them were equipped by the platform and the remaining half were not, as a control condition) and their caregivers. Everyday functioning measures were reported by frail participants and caregivers. Self-reported burden measures of caregiver were also collected. The main results showed that the caregiver's estimates of everyday functioning of equipped participants were unchanged across time, while they decreased for the control participants. Also, a reduction of self-reported objective burden was obtained after 6 months of AAL intervention for the equipped group, compared to the control group. Overall, these results highlighted the potential of AAL as a relevant environmental support for preventing both functional losses in FIs and objective burden professional caregiver.

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Exploring the reciprocal relationship between caregiver burden and the functional health of frail older adults in China: A cross-lag analysis

Cited by 25 publications

References 30 publications

Family caregiver's burden and the social support for older patients undergoing peritoneal dialysis

Family caregiver's burden and the social support for older patients undergoing peritoneal dialysis

The Experience of Essential Tremor Caregivers: Burden and Its Correlates

Everyday Functioning Benefits from an Assisted Living Platform amongst Frail Older Adults and Their Caregivers

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