Exploring the well-being of people affected by skin NTDs in Kaduna and Kwara States, Nigeria: a photovoice and scoping review study

Adekeye, Oluwatosin; Chowdhury, Shahreen; McRae, Ayuba; Olorunfemi, Temitope; Ozokede, Edward; Dubukumah, Linda; Makinde, Oluwabunmi; Ewemade, Jude; Abdulkadir, Shuaibu; Ayuba, Rebecca; Habibat, Suleiman; Gurma, Matthew; Thomson, Rachael; Isiyaku, Sunday; Dean, Laura

doi:10.1093/inthealth/ihad003

Cited by 7 publications

(1 citation statement)

References 21 publications

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“…Self-isolation was a coping strategy by BU participants in this study and this is consistent with studies of HIV, leprosy and cutaneous leishmaniasis [ 54 – 56 ]. However, avoidance strategies are commonly associated with low self-esteem, increased levels of anxiety, depression, reduced quality of life, impaired psychological and mental well-being and suicidal ideation [ 41 , 57 ]. Consistent with this, individuals with severe disease in the current study who used self-isolation for coping, reported an increased psychosocial burden, including worry, sadness and distraction in school.…”

Section: Discussionmentioning

confidence: 99%

Stigma experiences, effects and coping among individuals affected by Buruli ulcer and yaws in Ghana

Tuwor,

Mtuy,

Amoako

et al. 2024

PLoS Negl Trop Dis

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Background Stigma related to skin neglected tropical diseases like Buruli ulcer (BU) and yaws has remained underexplored and existing studies are limited to individual diseases despite the WHO call for integration in disease management. Within two districts in central Ghana, we explored stigma associated with BU and yaws to understand overlaps and disease-specific nuances to help guide integrated interventions. Methodology/Principal findings In-depth interviews were conducted with 31 current or formerly affected individuals to assess the experiences, effects and coping strategies adopted to manage disease related stigma. Data were analysed along broad themes based on the sociological construct of macro and micro interaction and Goffman’s treatise on stigma. Disapproving community labels fueled by misconceptions were noted among BU participants which contributed to macro stigma experiences, including exclusion, discrimination and avoidance. In contrast, a high level of social acceptance was reported among yaws participants although some micro-level stigma (anticipated, felt and self-stigma) were noted by individuals with both diseases. While younger participants experienced name-calling and use of derogatory words to address affected body parts, older participants and caregivers discussed the pain of public staring. Stigma experiences had negative consequences on psychosocial well-being, schooling, and social relations, particularly for BU affected people. Problem-focused strategies including confrontation, selective disclosure and concealment as well as emotion-focused strategies (religious coping and self-isolation) were noted. Conclusions and significance The types and levels of stigma varied for BU and yaws. Stigma experiences also differed for adults and children in this setting and these differences should be accounted for in integrated interventions for these skin NTDs. School health programs need to prioritize educating school teachers about skin NTDs and the negative impact of stigma on the wellbeing of children.

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Section: Discussionmentioning

confidence: 99%

Stigma experiences, effects and coping among individuals affected by Buruli ulcer and yaws in Ghana

Tuwor,

Mtuy,

Amoako

et al. 2024

PLoS Negl Trop Dis

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Assessing the Influence of Work-Related Pressure on Employee Performance: A Case Study of Solidarity Insurance Company in the Kingdom of Bahrain

Ateeq,

Abdulrazaq,

Alzoraiki

et al. 2024

Studies in Systems, Decision and Control

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A holistic approach to well-being and neglected tropical diseases: evaluating the impact of community-led support groups in Nigeria using community-based participatory research

Chowdhury

Adekeye²,

McRae³

et al. 2023

International Health

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Background Neglected tropical diseases (NTDs) affect around 1 billion people, many living in the poorest parts of the world. NTDs often lead to serious long-term physical impairments. Stigma, disability, poverty and social isolation interact, resulting in poor quality of life and significant psychosocial impacts. The holistic health and psychosocial needs of persons affected by NTDs are often overlooked in integrated NTD programme design and research. Furthermore, the viewpoints of persons affected are often absent and spaces for empowerment and advocacy are limited. Methods Using a community-based participatory research design, our study partnered with persons affected and caregivers as co-researchers to address this gap. Through the process, we co-designed and implemented community-based support groups in Kaduna and Kwara, Nigeria, where NTDs are endemic. This paper utilises photovoice with support group facilitators (persons affected); participant observation of group meetings; rapid micronarratives with support group members; and key informant interviews with programme implementers at the state and local government area levels to explore the impact of the support groups from the perspective of people affected by NTDs and other health system actors. Results Perceived impacts of the support groups included a sense of ownership and empowerment, stigma reduction, improved self-esteem, improved health knowledge and health outcomes and capacity strengthening through vocational training. Conclusions Support groups, as community spaces of healing, offer a low-cost holistic intervention for chronic disease and disability.

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Exploring the well-being of people affected by skin NTDs in Kaduna and Kwara States, Nigeria: a photovoice and scoping review study

Cited by 7 publications

References 21 publications

Stigma experiences, effects and coping among individuals affected by Buruli ulcer and yaws in Ghana

Stigma experiences, effects and coping among individuals affected by Buruli ulcer and yaws in Ghana

Assessing the Influence of Work-Related Pressure on Employee Performance: A Case Study of Solidarity Insurance Company in the Kingdom of Bahrain

A holistic approach to well-being and neglected tropical diseases: evaluating the impact of community-led support groups in Nigeria using community-based participatory research

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